Newbie

[bubblesarefun2009]

Hello my name is Selina Stevens and I am 21 Years old. I have cysticfibrosis. I've had a mild case of cf till i turned 19 I was in the hosptial last month for 3weeks I'm on oxgen 2litters at home 24/7 I am 5'3 weigh around 90lbs. I also do tpn. which we just started it about a month ago. I just wanted to introduce myself. my yahoo messenger id is: bubblesarefun2009
my msn id is: SelinaMandler@hotmail.com
my e-mail is: Selina.Stevens@gmail.com

If you would like to chat feel free to contact me. thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[anonymous]

Hi Selena,
My name is Lynsey, my daughter is two and has CF. I am sorry your health has turned for the worse you just have to hope that it will get better. I just wrote a post on the families section asking if anyone had a mild case as a child that go worse as an adult. Well reading your post answered my question. So far my daughter has also has a mild case of CF and my hopes are that it will stay that way, but I guess it doesn't always. Welcome to the forum! I search this site often when I just need to talk to someone or am feeling down.

Lynsey - mom to Avery 2 yrs.w/CF and Rhett 7mos. w/o CF

 

[bubblesarefun2009]

Yeah It's hard to to see someone you love sick.. But if you would like to chat any time just add me to yahoo or msn messenger or e-mail me
Selina.Stevens@gmail.com

thanks for the welcome.

 

[firey8]

Hello
I was wondering what mild CF is? Do you just have some problems and then develop the rest later? My son is going through oodles of tests right now adn I am trying to get as much info as I can thanks for any help...

 

[anonymous]

Hey there,
My daughters symptoms of CF so far have been mild. To me that is. She has mostly only the digestive issues. As far as respiratory, she hasn't had any. Only the constant runny nose and occasional nightime coughing. I hope your sons tests come back good.
Good Luck,
Lynsey- mom to Avery 2 yrs. w/CF and Rhett 7mos. w/o CF

 

[anonymous]

Hi, My name is Lyn.
I am a 41 year old w/C.F. I had a very mild case..virtually no symptons. The only reason I was tested, was , I had 2 olderr sisters tht passed on. Mary died a year before my birth and Susan a year after. At nineteen I was pregnant and had my first bad case of bronchitis. At 22, my second child, my first double pnuemonia. I still remained mild, but changes were there. Hospitalizations were more frequent. At 39 they took out my galbladder and found cirhosis of the liver. I have also been treated for funus and Mac. In march I had an emergency bowl obstruction surgery ...a few weeks later got pnuemonia and ended in respitory failure..I was on full oxygen for a few days. At the beginning of April I was released with oxygen. In May I went back in the hospital for a new port...the one I had, there was a recall. After a few days it quit. They put in a new one, blood clots developed under my arm and in the juggler vein. They put in a new one. A few days later, I was released. At the beginning of June a mass was found on my right ovary,it was making my uterous turn to the left. I had to have a hysterectomy. They had to give me 2 pints of blood, the another respitory problem was arising. I have been home for a few monthe. My oxygen level has not gone up yet and still have a infection....but am alive I got to see my grandchild, which I was led to believe I would never see. I got to see me son graduate from the Marine Corps..(he has been deployed 2 times and will do one more before he is out), My other son, through a court case.
God is Good...

 

[firey8]

I know this may sound like a silly question but does that mean that he could only have the respitory problems? He had severe digestive problems when he was a baby adn had to have Nutrimegen(sp) formula but kinda grew out of them by about 3. He has had respitory problems since he was 14 months and now they are getting worse. He has had pnemonia 5 times between March and June. The Dr said that his xrays mirroed a person with CF but doubted he had it because he is big for his age. Had a negative sweat test and the Dr siad that ment that there was no way he had CF. Then when I started doing my own research I found out that sweat tests aren't the most accurate. Hes on a bunch of meds to keep his lungs from collapsing, and is having to have xrays every 3 months. You guys are a load of help to prepare me for his next Dr visit because now I have tons more questions and more knowledge to go with it. Thanks<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[anonymous]

A "mild" case of CF is classified as being pancreatic sufficient. Put cystic fibrosis genetic mutations severity in your search engine and you will find literature about "mild" CF. If you are pancreatic insufficient you are considered as having a "severe" CF because over time your lungs will be affected if your nutritional status is compromised.