JennifersHope
New member
Hi,
I am sorry that you joined our club... but I always like to point out to the parents one fact... I am 34 years old and I just graduated nursing school last year and I am now an RN.. I work full time.. soon to be part time because it is to much but anyway..my lungs are decent..
My point is this.. when I was born, the average life span of someone with CF was in the low teenage years, as time went on, the life span age went up, and up and up.. and is now at 37.5 years old.
So keep that in mind, I don't believe that they discovered all that they are ever going to discover in the way of improving treatments .. I believe just like history has shown that the average life span is going to increase and increase for a lot of CFers..
There are some CFers that that isn't the case for.. and sadly that is the truth that some children, even children on this forum now are suffering a lot more then the average adult Cfer.. so it does all depend.. but you have every reason to be hopeful especially in this day and age.
Many, many, of us are adults living a decent life now. I won't lie it is hard as heck sometimes being young and feeling like I have the body of a 100 year old but usually for most of us, we take the hardship and turn it around and become stronger and kinder human beings for it.
Welcome to this website, I know you will find a lot of great help and support here.. Feel free to vent,ask questions and share anything you want..
Jennifer
34 with CF/Addison's disease/ osteroporsis. CFRD, HTN and a million and one other things I won't go into BUT is about to buy her first home.. and who in spite of having it really hard a lot of the time.. LOVes her life
I am sorry that you joined our club... but I always like to point out to the parents one fact... I am 34 years old and I just graduated nursing school last year and I am now an RN.. I work full time.. soon to be part time because it is to much but anyway..my lungs are decent..
My point is this.. when I was born, the average life span of someone with CF was in the low teenage years, as time went on, the life span age went up, and up and up.. and is now at 37.5 years old.
So keep that in mind, I don't believe that they discovered all that they are ever going to discover in the way of improving treatments .. I believe just like history has shown that the average life span is going to increase and increase for a lot of CFers..
There are some CFers that that isn't the case for.. and sadly that is the truth that some children, even children on this forum now are suffering a lot more then the average adult Cfer.. so it does all depend.. but you have every reason to be hopeful especially in this day and age.
Many, many, of us are adults living a decent life now. I won't lie it is hard as heck sometimes being young and feeling like I have the body of a 100 year old but usually for most of us, we take the hardship and turn it around and become stronger and kinder human beings for it.
Welcome to this website, I know you will find a lot of great help and support here.. Feel free to vent,ask questions and share anything you want..
Jennifer
34 with CF/Addison's disease/ osteroporsis. CFRD, HTN and a million and one other things I won't go into BUT is about to buy her first home.. and who in spite of having it really hard a lot of the time.. LOVes her life