Awhile back I wrote about my daughter having a sweat test result of 68 and having problems w/ her ped's office and how we were being sent to a CF center. Well yesterday we made our 2 1/2 hour trip to the cf center. I went there thinking they were going to do testing and i would leave knowing more about what was going on w/ my daughter. Well the only thing they really did was weigh her she did gain a pound, 1 pound in 6 months. They did a throat culture and the fellow there did manage to make me feel like an awful mother. Well the dr came in sat down and said we don't think she has CF they didn't catch it in the newborn screening and therefore we don't think she has it. They said they will do a sweat just to make sure, but they can't do it now. So on the 24th a day before her 1st b-day we have to drive all the way back up there for the sweat test, and if it comes back positive again drive up again when they can get us in. So i guess what my question is has anyone heard of a child having cf even though it wasn't caught in the newborn screening?