Hi
My son was diagnosed at birth. He had meconium ileus, which is an obstruction of sticky mucous in the bowl. He didnt poop like newborns do so they did surgery to repair his intestinal tract removing quite a bit of his lower bowel. His sister was five at the time of his birth and had symptoms of c f but our naturopath had no clue what was wrong with her, colds, earaches all the time runny stool etc that went on for about 1-2 years but she ate well and breast fed and also didnt lose weight. Ashley was diagnosed at 5 and is now 21 and is a mom with slight pulmonary difficulty but she doesnt get sick often, Brandon my son is moderate to severe now and on about 12 medications, playing basketball real well, getting excellent grades and he is a tough guy. He is in the hospital as we speak, on oxygen and having difficulty breathing. probably pa maybe mrsa, or maybe just a big mucous plug. They havent got the sputum culture back yet, so we wait and he receives albuterol treatments, iv antibiotics, g-tube feeds to gain since he has lost 10 lbs since last week. This routine goes like this every couple of months when they catch a cold or flu.
i wanna say, take it one day at a time, your child will be strong and you will develop strength by watching them deal with this. The meds they use now are so great that they help tremendously. teach your child to stay on ttrack with meds and they wills stay well. They live goo lives and they are smart kids who become independent. I have met alot of them in the teen years, and they are also sweet kids. no kidding. If you need anything email me rleec22165@comcast.net. I am still learning alot about the disease as it progresses, but, i can help you with the early years and try to answer your questions. I have a girl and a boy and two other kids who do not have the disease.
My son was diagnosed at birth. He had meconium ileus, which is an obstruction of sticky mucous in the bowl. He didnt poop like newborns do so they did surgery to repair his intestinal tract removing quite a bit of his lower bowel. His sister was five at the time of his birth and had symptoms of c f but our naturopath had no clue what was wrong with her, colds, earaches all the time runny stool etc that went on for about 1-2 years but she ate well and breast fed and also didnt lose weight. Ashley was diagnosed at 5 and is now 21 and is a mom with slight pulmonary difficulty but she doesnt get sick often, Brandon my son is moderate to severe now and on about 12 medications, playing basketball real well, getting excellent grades and he is a tough guy. He is in the hospital as we speak, on oxygen and having difficulty breathing. probably pa maybe mrsa, or maybe just a big mucous plug. They havent got the sputum culture back yet, so we wait and he receives albuterol treatments, iv antibiotics, g-tube feeds to gain since he has lost 10 lbs since last week. This routine goes like this every couple of months when they catch a cold or flu.
i wanna say, take it one day at a time, your child will be strong and you will develop strength by watching them deal with this. The meds they use now are so great that they help tremendously. teach your child to stay on ttrack with meds and they wills stay well. They live goo lives and they are smart kids who become independent. I have met alot of them in the teen years, and they are also sweet kids. no kidding. If you need anything email me rleec22165@comcast.net. I am still learning alot about the disease as it progresses, but, i can help you with the early years and try to answer your questions. I have a girl and a boy and two other kids who do not have the disease.