Hi
I am just looking for some help and to be clearer in my dx's. First, before I go on I am so happy to be apart of this site which I joined in Sept. I WOULD BE lost
without the people on the site and those that have helped me out. I am so greatfull.
I was dx's three years ago at the age of 33yrs. However I did spend a lot of time being unwell from the age of 6yrs old with Ashtma (CF that my doctors did not know) I was very ill at 18yrs old up until 24yrs old. I then fell extremely ill at 27yrs old and again Was bed bound (housebound) for 2years.
I had a good year and half and then everything fell apart at the age of 27yrs old up until now. I am asking does it getting better can I ever have a few years again being untouched by IV'S.
I am wondering if anyone has my mutations and how they are doing! Just to get a picture on things and where you might be at. However, I realise we are all different and no two Cferes are the same.
I was looking through the forum and a guy had emailed in regarding his new dx's and his mutation genes. Thought it might help me to see if anyone has my mutations G.
I always seem to be on IV'S and since May I have been on them four times lasting three weeks. In Sept I was told I had B.Cenocepacia it was growing a month before I fell ill. Four times it showed up in the sameple until the last sample on the 10th of Dec. I am hoping it's gone.
I have taking on the advise u have given and a very dear person on the site to me. That is to exercise, take meds always and relax and take every day as it comes. I was told two weeks ago I need my gall bladder out!?
Thanks for your help.
--------------------------
sunnflower
36yrs old
dx's 33yrs old, CF/ABPA/B.CC
I am just looking for some help and to be clearer in my dx's. First, before I go on I am so happy to be apart of this site which I joined in Sept. I WOULD BE lost
without the people on the site and those that have helped me out. I am so greatfull.
I was dx's three years ago at the age of 33yrs. However I did spend a lot of time being unwell from the age of 6yrs old with Ashtma (CF that my doctors did not know) I was very ill at 18yrs old up until 24yrs old. I then fell extremely ill at 27yrs old and again Was bed bound (housebound) for 2years.
I had a good year and half and then everything fell apart at the age of 27yrs old up until now. I am asking does it getting better can I ever have a few years again being untouched by IV'S.
I am wondering if anyone has my mutations and how they are doing! Just to get a picture on things and where you might be at. However, I realise we are all different and no two Cferes are the same.
I was looking through the forum and a guy had emailed in regarding his new dx's and his mutation genes. Thought it might help me to see if anyone has my mutations G.
I always seem to be on IV'S and since May I have been on them four times lasting three weeks. In Sept I was told I had B.Cenocepacia it was growing a month before I fell ill. Four times it showed up in the sameple until the last sample on the 10th of Dec. I am hoping it's gone.
I have taking on the advise u have given and a very dear person on the site to me. That is to exercise, take meds always and relax and take every day as it comes. I was told two weeks ago I need my gall bladder out!?
Thanks for your help.
--------------------------
sunnflower
36yrs old
dx's 33yrs old, CF/ABPA/B.CC