Newly dx'ed 7yr old w/ severe growth failure, testing other 2 kids. Anyone relate?

hmw

New member
Thank you Gina and Melissa for your replies and making me feel welcome here. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Gina, thanks for sharing what Brea's been through in all the time it took to get her properly dx'ed. What a lot for both of you to go through. She certainly sounds like an amazingly strong kid. <img src="i/expressions/face-icon-small-smile.gif" border="0">

<div class="FTQUOTE"><begin quote>BTW poop talk will become 2nd nature to you. You will discuss it over dinner & not think a thing about it LOL!</end quote></div>Too funny, Melissa! Just when we were starting to have *some* success in getting our boys to stop talking about poop and other bodily functions at the dinner table! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> The people at our first clinic appt told us the same thing, 'get used to talking about poop and mucus'... and that the boys glory in it, want to talk about color and smell and all that, and then want to show off their mucus; whereas the girls will sit there and go 'eeewww, gross' and be ready to crawl under the table. Emily has been freaked out me looking at her poop, got very upset about the parade of people all so interested in talking about her poop at her first clinic appt... poor kid. Finally the nurse told her there'd be a prize ticket she could redeem in the gift shop next time if she let me check the toilet every day before flushing. Now she's more than happy to let me inspect poop. LOL!
 

hmw

New member
Thank you Gina and Melissa for your replies and making me feel welcome here. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Gina, thanks for sharing what Brea's been through in all the time it took to get her properly dx'ed. What a lot for both of you to go through. She certainly sounds like an amazingly strong kid. <img src="i/expressions/face-icon-small-smile.gif" border="0">

<div class="FTQUOTE"><begin quote>BTW poop talk will become 2nd nature to you. You will discuss it over dinner & not think a thing about it LOL!</end quote></div>Too funny, Melissa! Just when we were starting to have *some* success in getting our boys to stop talking about poop and other bodily functions at the dinner table! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> The people at our first clinic appt told us the same thing, 'get used to talking about poop and mucus'... and that the boys glory in it, want to talk about color and smell and all that, and then want to show off their mucus; whereas the girls will sit there and go 'eeewww, gross' and be ready to crawl under the table. Emily has been freaked out me looking at her poop, got very upset about the parade of people all so interested in talking about her poop at her first clinic appt... poor kid. Finally the nurse told her there'd be a prize ticket she could redeem in the gift shop next time if she let me check the toilet every day before flushing. Now she's more than happy to let me inspect poop. LOL!
 

hmw

New member
Thank you Gina and Melissa for your replies and making me feel welcome here. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Gina, thanks for sharing what Brea's been through in all the time it took to get her properly dx'ed. What a lot for both of you to go through. She certainly sounds like an amazingly strong kid. <img src="i/expressions/face-icon-small-smile.gif" border="0">

<div class="FTQUOTE"><begin quote>BTW poop talk will become 2nd nature to you. You will discuss it over dinner & not think a thing about it LOL!</end quote></div>Too funny, Melissa! Just when we were starting to have *some* success in getting our boys to stop talking about poop and other bodily functions at the dinner table! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> The people at our first clinic appt told us the same thing, 'get used to talking about poop and mucus'... and that the boys glory in it, want to talk about color and smell and all that, and then want to show off their mucus; whereas the girls will sit there and go 'eeewww, gross' and be ready to crawl under the table. Emily has been freaked out me looking at her poop, got very upset about the parade of people all so interested in talking about her poop at her first clinic appt... poor kid. Finally the nurse told her there'd be a prize ticket she could redeem in the gift shop next time if she let me check the toilet every day before flushing. Now she's more than happy to let me inspect poop. LOL!
 

hmw

New member
Thank you Gina and Melissa for your replies and making me feel welcome here. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Gina, thanks for sharing what Brea's been through in all the time it took to get her properly dx'ed. What a lot for both of you to go through. She certainly sounds like an amazingly strong kid. <img src="i/expressions/face-icon-small-smile.gif" border="0">

<div class="FTQUOTE"><begin quote>BTW poop talk will become 2nd nature to you. You will discuss it over dinner & not think a thing about it LOL!</end quote>Too funny, Melissa! Just when we were starting to have *some* success in getting our boys to stop talking about poop and other bodily functions at the dinner table! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> The people at our first clinic appt told us the same thing, 'get used to talking about poop and mucus'... and that the boys glory in it, want to talk about color and smell and all that, and then want to show off their mucus; whereas the girls will sit there and go 'eeewww, gross' and be ready to crawl under the table. Emily has been freaked out me looking at her poop, got very upset about the parade of people all so interested in talking about her poop at her first clinic appt... poor kid. Finally the nurse told her there'd be a prize ticket she could redeem in the gift shop next time if she let me check the toilet every day before flushing. Now she's more than happy to let me inspect poop. LOL!
 

hmw

New member
Thank you Gina and Melissa for your replies and making me feel welcome here. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Gina, thanks for sharing what Brea's been through in all the time it took to get her properly dx'ed. What a lot for both of you to go through. She certainly sounds like an amazingly strong kid. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br /><div class="FTQUOTE"><begin quote>BTW poop talk will become 2nd nature to you. You will discuss it over dinner & not think a thing about it LOL!</end quote>Too funny, Melissa! Just when we were starting to have *some* success in getting our boys to stop talking about poop and other bodily functions at the dinner table! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> The people at our first clinic appt told us the same thing, 'get used to talking about poop and mucus'... and that the boys glory in it, want to talk about color and smell and all that, and then want to show off their mucus; whereas the girls will sit there and go 'eeewww, gross' and be ready to crawl under the table. Emily has been freaked out me looking at her poop, got very upset about the parade of people all so interested in talking about her poop at her first clinic appt... poor kid. Finally the nurse told her there'd be a prize ticket she could redeem in the gift shop next time if she let me check the toilet every day before flushing. Now she's more than happy to let me inspect poop. LOL!
 

JORDYSMOM

New member
Hi Harriett. I'm so glad you found us. Yes we understand. I went through 15 years with Jordan's health problems before someone actually tested him for CF.

Yes, you will talk about poop/gas more than you ever thought possible. We even have an emoticon for it here. <img src="i/expressions/proudfart.gif" border="0">

I'm sure you are feeling quite overwhelmed right now. When I first came here, I just read and read and read. The posts answered so many questions for me. Even ones I didn't know I had. There is much support to be found here as well. There is always someone who has been where you are, and can offer some advice.

Keep us posted on your crew.

Stacey
 

JORDYSMOM

New member
Hi Harriett. I'm so glad you found us. Yes we understand. I went through 15 years with Jordan's health problems before someone actually tested him for CF.

Yes, you will talk about poop/gas more than you ever thought possible. We even have an emoticon for it here. <img src="i/expressions/proudfart.gif" border="0">

I'm sure you are feeling quite overwhelmed right now. When I first came here, I just read and read and read. The posts answered so many questions for me. Even ones I didn't know I had. There is much support to be found here as well. There is always someone who has been where you are, and can offer some advice.

Keep us posted on your crew.

Stacey
 

JORDYSMOM

New member
Hi Harriett. I'm so glad you found us. Yes we understand. I went through 15 years with Jordan's health problems before someone actually tested him for CF.

Yes, you will talk about poop/gas more than you ever thought possible. We even have an emoticon for it here. <img src="i/expressions/proudfart.gif" border="0">

I'm sure you are feeling quite overwhelmed right now. When I first came here, I just read and read and read. The posts answered so many questions for me. Even ones I didn't know I had. There is much support to be found here as well. There is always someone who has been where you are, and can offer some advice.

Keep us posted on your crew.

Stacey
 

JORDYSMOM

New member
Hi Harriett. I'm so glad you found us. Yes we understand. I went through 15 years with Jordan's health problems before someone actually tested him for CF.

Yes, you will talk about poop/gas more than you ever thought possible. We even have an emoticon for it here. <img src="i/expressions/proudfart.gif" border="0">

I'm sure you are feeling quite overwhelmed right now. When I first came here, I just read and read and read. The posts answered so many questions for me. Even ones I didn't know I had. There is much support to be found here as well. There is always someone who has been where you are, and can offer some advice.

Keep us posted on your crew.

Stacey
 

JORDYSMOM

New member
Hi Harriett. I'm so glad you found us. Yes we understand. I went through 15 years with Jordan's health problems before someone actually tested him for CF.
<br />
<br />Yes, you will talk about poop/gas more than you ever thought possible. We even have an emoticon for it here. <img src="i/expressions/proudfart.gif" border="0">
<br />
<br />I'm sure you are feeling quite overwhelmed right now. When I first came here, I just read and read and read. The posts answered so many questions for me. Even ones I didn't know I had. There is much support to be found here as well. There is always someone who has been where you are, and can offer some advice.
<br />
<br />Keep us posted on your crew.
<br />
<br />Stacey
 

Heidi

New member
I feel for you, Harriett. You are walking through some hard times right now. ((((HUGS))))
Please keep us updated.
 

Heidi

New member
I feel for you, Harriett. You are walking through some hard times right now. ((((HUGS))))
Please keep us updated.
 

Heidi

New member
I feel for you, Harriett. You are walking through some hard times right now. ((((HUGS))))
Please keep us updated.
 

Heidi

New member
I feel for you, Harriett. You are walking through some hard times right now. ((((HUGS))))
Please keep us updated.
 

Heidi

New member
I feel for you, Harriett. You are walking through some hard times right now. ((((HUGS))))
<br />Please keep us updated.
 

hmw

New member
Thank you so much Heidi & Stacey. <img src="i/expressions/face-icon-small-smile.gif" border="0">

This has been a hard adjustment to make, to her dx and to dealing w/ the fact that her ped should have caught this sooner, but I am trying so hard to move forward!! I have been reading and reading here and that has been helping me learn (like you did Stacey.)
 

hmw

New member
Thank you so much Heidi & Stacey. <img src="i/expressions/face-icon-small-smile.gif" border="0">

This has been a hard adjustment to make, to her dx and to dealing w/ the fact that her ped should have caught this sooner, but I am trying so hard to move forward!! I have been reading and reading here and that has been helping me learn (like you did Stacey.)
 

hmw

New member
Thank you so much Heidi & Stacey. <img src="i/expressions/face-icon-small-smile.gif" border="0">

This has been a hard adjustment to make, to her dx and to dealing w/ the fact that her ped should have caught this sooner, but I am trying so hard to move forward!! I have been reading and reading here and that has been helping me learn (like you did Stacey.)
 

hmw

New member
Thank you so much Heidi & Stacey. <img src="i/expressions/face-icon-small-smile.gif" border="0">

This has been a hard adjustment to make, to her dx and to dealing w/ the fact that her ped should have caught this sooner, but I am trying so hard to move forward!! I have been reading and reading here and that has been helping me learn (like you did Stacey.)
 

hmw

New member
Thank you so much Heidi & Stacey. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />This has been a hard adjustment to make, to her dx and to dealing w/ the fact that her ped should have caught this sooner, but I am trying so hard to move forward!! I have been reading and reading here and that has been helping me learn (like you did Stacey.)
 
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