NEWS ALERT!!

[randford]

Released July 25, 2006<br>
<br>
Scientists have discovered a fat-controlling protein which could
lead to breakthrough treatment for cystic fibrosis...<br>
<br>
See link:<br>
<br>
http://www.thisislondon.com/news/articles/PA_NEWA35887811153749011A0000?source=PA%20Feed<br>

<br>
Randford, 43/CF<br>

 

[Landy]

Sounds interesting. I did not, however realize that CFs have a greater occurrence of cancer. Has anyone else heard this & if so, do you have a link to an article or a link to research that backs up this theory??

 

[thefrogprincess]

With CF our immune system is compromised so our bodies soemtimes can't kill of cancer cells before they get out of contol. I am currently being monitored to make sure I don't get cervical cancer myself.

 

[sue35]

May I ask how you are monitored for cervical cancer? do you see the doctor more often? I ask only because I had tons of cysts on my cervix and they tested them and it was negative but they have done nothing since then two years ago.

 

[thefrogprincess]

My pap smear has been abnormal for a little over a year. For every year that it stays abnormal I have to have a colposcopy which is a minor procedure. They put a solution on your cervix then shine a special light on it. Abnormal cells show up a different color. They biopsy these areas to see what stage you are at. Stage one just requires monitoring, stage two and three usually require removal of the abnormal areas (I haven't had to have that done) and then the last stage is cancer. The biopsy is really not all that bad. It feels like bad menstral cramps, you have some spotting for a couple days and can't have sex or use tampons for about 10 days.

 

[Diane]

I almost hate to say this, because it is so un-optimistic, but i have learned to get that way after hearing of all this (false ) "HOPE" in my 41 years. Instead of getting our hopes up by printing things they have "HOPE" of, why not instead wait and let us know when they have an actual "SOLUTION". something that is actually on the market that we can benefit from right now ? Hope is just an emotion that i agree we all need, but that seems to be all we ever get out of these "Breakthrough discoveries" which is starting to get on my nerves. I cant tell you how many times i have goten my hopes up about a "Great new discovery" only to never heard a word of it again. I wish they would knock that off and only open their mouths when they actually have SOMETHING ....RIGHT NOW to offer. Sorry to go on a rant, but this really gets to a person after a while. When i was like 20, i remember they found they cf gene and everyone was ecstatic.... all you heard was that a "Cure" was right behind it, well, its 19 years later.... where is it?

 

[Mockingbird]

Yeah, I agree Diane, and thanks for saying it. That 'finding the holy grail' statement really burned me up. It is nice to hear that research is making progress, but they should present it for what it is; let their yes be yes and their no be no, so to speak.

 

[thelizardqueen]

I watched a webcast from the Canadian CF foundation, and they talked about cancer and CF patients. They said that there are not a large amount of CF patients with cancer, nor is it common with CF, but because we have our digestive problems, we are more suseptable to get it then Joe-no one with no health problems (colon cancer that is).

 

[randford]

<strong>Lynda,</strong><br>
<br>
That's the first time I've heard of a link between cancer and CF.
I'm learning something new every day. If you you find
out anything, let us know. I will do the same.<br>
<br>
<b>Randford</b>, 43/CF

 

[randford]

<strong>Diane,</strong><br>
<br>
I never though of it that way. You're right. I was exited to share
the news but I'm new. I'm sure you hear these
"break-throughs" all the time. I just want to raise
everyone's spirits but I can see where it gets repetitive and
old.<br>
<br>
Hang in there.<br>
<br>
<b>Randford</b> 43/CF

 

[Landy]

That's good that you're being optimistic. I'm that way by nature, however, I'm with Diane. I remember one time years ago hearing of a cure being near & I excitedly asked my doctor about it and he said basically not to get too excited because there's been many, many near cures before.
Hopefully one day there will be a huge breakthrough for us. There are new things coming down the pike all the time it seems.

 

[Diane]

Randford,
It's ok, <img src="i/expressions/face-icon-small-smile.gif" border="0"> i'm always glad to see that they are actually working on something, so i was glad to read your post, but what got me mad is when they said ( like Mockingbird pointed out), that they found the "Holy Grail".... PLEASE !!!!!!!!!!! I'm all for giving a person hope, because we all need hope in our lives, but theres no need for them to make statements like that. Like i said, we've heard all of that before and none of it ever seems to pan out and here we sit with our false hope waiting *sigh*

 

[schmunks]

I am also being monitored for cell changes! I had a smear test about 18 months ago and had grade 3 cell change which had to be laser treated ( not a good experience). After the treatment my periods stopped for 6 months due to scarring. So now i have to have regular 6 month check ups to make sure it has'nt reappeared. It will be interesting (or not) to see if there are more of us with the same problems!
Sarah<img src="">

 

[schmunks]

I am also being monitored for cell changes! I had a smear test about 18 months ago and had grade 3 cell change which had to be laser treated ( not a good experience). After the treatment my periods stopped for 6 months due to scarring. So now i have to have regular 6 month check ups to make sure it has'nt reappeared. It will be interesting (or not) to see if there are more of us with the same problems!
Sarah<img src="">

 

[schmunks]

I am also being monitored for cell changes! I had a smear test about 18 months ago and had grade 3 cell change which had to be laser treated ( not a good experience). After the treatment my periods stopped for 6 months due to scarring. So now i have to have regular 6 month check ups to make sure it has'nt reappeared. It will be interesting (or not) to see if there are more of us with the same problems!
Sarah<img src="">

 

[schmunks]

I am also being monitored for cell changes! I had a smear test about 18 months ago and had grade 3 cell change which had to be laser treated ( not a good experience). After the treatment my periods stopped for 6 months due to scarring. So now i have to have regular 6 month check ups to make sure it has'nt reappeared. It will be interesting (or not) to see if there are more of us with the same problems!
Sarah<img src="">

 

[schmunks]

I am also being monitored for cell changes! I had a smear test about 18 months ago and had grade 3 cell change which had to be laser treated ( not a good experience). After the treatment my periods stopped for 6 months due to scarring. So now i have to have regular 6 month check ups to make sure it has'nt reappeared. It will be interesting (or not) to see if there are more of us with the same problems!
Sarah<img src="">

 

[welshgirl]

i had laser treatment for pre- cancerous cell changes about 7 yrs ago. since then all that is required is yearly "smears" ( thats what we call them in the uk) the laser traetment itself was a tad uncomfortable , more embarrasing then anything else<img src="i/expressions/face-icon-small-smile.gif" border="0">


joe just crept up behind me as i was typing . thought i would show him some icons while he is here. <img src="i/expressions/face-icon-small-blush.gif" border="0">

<img src="i/expressions/bathroom.gif" border="0"><img src="i/expressions/coughing.gif" border="0"><img src="i/expressions/dog.gif" border="0"><img src="i/expressions/iv.gif" border="0"><img src="i/expressions/neb.gif" border="0"><img src="i/expressions/noseblow.gif" border="0"><img src="i/expressions/nosepick.gif" border="0"><img src="i/expressions/proudfart.gif" border="0"><img src="i/expressions/vest.gif" border="0">

 

[welshgirl]

i had laser treatment for pre- cancerous cell changes about 7 yrs ago. since then all that is required is yearly "smears" ( thats what we call them in the uk) the laser traetment itself was a tad uncomfortable , more embarrasing then anything else<img src="i/expressions/face-icon-small-smile.gif" border="0">


joe just crept up behind me as i was typing . thought i would show him some icons while he is here. <img src="i/expressions/face-icon-small-blush.gif" border="0">

<img src="i/expressions/bathroom.gif" border="0"><img src="i/expressions/coughing.gif" border="0"><img src="i/expressions/dog.gif" border="0"><img src="i/expressions/iv.gif" border="0"><img src="i/expressions/neb.gif" border="0"><img src="i/expressions/noseblow.gif" border="0"><img src="i/expressions/nosepick.gif" border="0"><img src="i/expressions/proudfart.gif" border="0"><img src="i/expressions/vest.gif" border="0">

 

[welshgirl]

i had laser treatment for pre- cancerous cell changes about 7 yrs ago. since then all that is required is yearly "smears" ( thats what we call them in the uk) the laser traetment itself was a tad uncomfortable , more embarrasing then anything else<img src="i/expressions/face-icon-small-smile.gif" border="0">


joe just crept up behind me as i was typing . thought i would show him some icons while he is here. <img src="i/expressions/face-icon-small-blush.gif" border="0">

<img src="i/expressions/bathroom.gif" border="0"><img src="i/expressions/coughing.gif" border="0"><img src="i/expressions/dog.gif" border="0"><img src="i/expressions/iv.gif" border="0"><img src="i/expressions/neb.gif" border="0"><img src="i/expressions/noseblow.gif" border="0"><img src="i/expressions/nosepick.gif" border="0"><img src="i/expressions/proudfart.gif" border="0"><img src="i/expressions/vest.gif" border="0">