Sharon,
My daughter has an inflammation issue with her CF. I feel if it's affecting your daughter's sleep which inturn affects her quality of life(sleep deprivation stinks) that your doc should be addressing this issue and your concerns. My daughter had issues when she was 2 1/2 year old with nighttime coughing(she also had just started culturing MRSA at the time). We ended up getting a second opinion; which led to us aggressively treating the MRSA; she also was put on pulmicort neb 2 times a day..Around the same time, the combo of aggressive treatment and pulmicort stopped the coughing. I also have her head of bed slightly elevated; use an air purifier at night in her room.. But I think the pulmicort helped; she's been on it since..
My daughter has an inflammation issue with her CF. I feel if it's affecting your daughter's sleep which inturn affects her quality of life(sleep deprivation stinks) that your doc should be addressing this issue and your concerns. My daughter had issues when she was 2 1/2 year old with nighttime coughing(she also had just started culturing MRSA at the time). We ended up getting a second opinion; which led to us aggressively treating the MRSA; she also was put on pulmicort neb 2 times a day..Around the same time, the combo of aggressive treatment and pulmicort stopped the coughing. I also have her head of bed slightly elevated; use an air purifier at night in her room.. But I think the pulmicort helped; she's been on it since..