Before my transplant, I did them every night. If there was a special occasion I'd take a night off, but this would be maybe once every few months. I was on them every night in total for 17years.
When the boys got their tubes two years ago we did them every night at first. As time went on we let it go if they had something to do or if they had a good eating day. We didn't take the pumps on vacation.
This summer, with Josh's eating issues, he does the feed every night and sometimes during the day to get his calories. Jesse hasn't done his for a while because he's eating like a piggy right now.
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