Nissen Fundoplication

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TwistedTanya

New member
My doctor's say I need it and I also need a transplant. They are talking about doing the Nissen surgery after I'm stable from TX...about 2 weeks...while I'm still in the hospital. They also said I would be getting tube feedings for 2 weeks after it. I'm really interested to know who has had the surgery and if you had it before TX or after and how it went.
 
T

TwistedTanya

New member
My doctor's say I need it and I also need a transplant. They are talking about doing the Nissen surgery after I'm stable from TX...about 2 weeks...while I'm still in the hospital. They also said I would be getting tube feedings for 2 weeks after it. I'm really interested to know who has had the surgery and if you had it before TX or after and how it went.
 
T

TwistedTanya

New member
My doctor's say I need it and I also need a transplant. They are talking about doing the Nissen surgery after I'm stable from TX...about 2 weeks...while I'm still in the hospital. They also said I would be getting tube feedings for 2 weeks after it. I'm really interested to know who has had the surgery and if you had it before TX or after and how it went.
 
T

TwistedTanya

New member
My doctor's say I need it and I also need a transplant. They are talking about doing the Nissen surgery after I'm stable from TX...about 2 weeks...while I'm still in the hospital. They also said I would be getting tube feedings for 2 weeks after it. I'm really interested to know who has had the surgery and if you had it before TX or after and how it went.
 
T

TwistedTanya

New member
My doctor's say I need it and I also need a transplant. They are talking about doing the Nissen surgery after I'm stable from TX...about 2 weeks...while I'm still in the hospital. They also said I would be getting tube feedings for 2 weeks after it. I'm really interested to know who has had the surgery and if you had it before TX or after and how it went.
 
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Joanne

New member
Tanya,

I was txd 12 years ago and this was not offered back then.
About 1 or 2 ago, a doc who was new to UNC told me I should get it. I told him no, as I had heard negative feedback about it. Someone not able to eat for months. I told UNC I would not do it, as I did not feel it was proven to prevent chronic rejection.....I already had chronic, so why bother. And I take omeprazole, and that works great.

I just returned from my annual clinic ( I live 700 miles from UNC) and we were talking about it, and they also feel it is not proven and no they do not do it to every tx person. I know that Duke did that at one time, not sure what the protocol is now.

Ask your center to provide some research for you to read.
Before I got my lungs I did tons of research into lung tx and the like, it helped me going in to understand, and be able to ask some pertinent questions.

Good luck
Joanne
 
J

Joanne

New member
Tanya,

I was txd 12 years ago and this was not offered back then.
About 1 or 2 ago, a doc who was new to UNC told me I should get it. I told him no, as I had heard negative feedback about it. Someone not able to eat for months. I told UNC I would not do it, as I did not feel it was proven to prevent chronic rejection.....I already had chronic, so why bother. And I take omeprazole, and that works great.

I just returned from my annual clinic ( I live 700 miles from UNC) and we were talking about it, and they also feel it is not proven and no they do not do it to every tx person. I know that Duke did that at one time, not sure what the protocol is now.

Ask your center to provide some research for you to read.
Before I got my lungs I did tons of research into lung tx and the like, it helped me going in to understand, and be able to ask some pertinent questions.

Good luck
Joanne
 
J

Joanne

New member
Tanya,

I was txd 12 years ago and this was not offered back then.
About 1 or 2 ago, a doc who was new to UNC told me I should get it. I told him no, as I had heard negative feedback about it. Someone not able to eat for months. I told UNC I would not do it, as I did not feel it was proven to prevent chronic rejection.....I already had chronic, so why bother. And I take omeprazole, and that works great.

I just returned from my annual clinic ( I live 700 miles from UNC) and we were talking about it, and they also feel it is not proven and no they do not do it to every tx person. I know that Duke did that at one time, not sure what the protocol is now.

Ask your center to provide some research for you to read.
Before I got my lungs I did tons of research into lung tx and the like, it helped me going in to understand, and be able to ask some pertinent questions.

Good luck
Joanne
 
J

Joanne

New member
Tanya,

I was txd 12 years ago and this was not offered back then.
About 1 or 2 ago, a doc who was new to UNC told me I should get it. I told him no, as I had heard negative feedback about it. Someone not able to eat for months. I told UNC I would not do it, as I did not feel it was proven to prevent chronic rejection.....I already had chronic, so why bother. And I take omeprazole, and that works great.

I just returned from my annual clinic ( I live 700 miles from UNC) and we were talking about it, and they also feel it is not proven and no they do not do it to every tx person. I know that Duke did that at one time, not sure what the protocol is now.

Ask your center to provide some research for you to read.
Before I got my lungs I did tons of research into lung tx and the like, it helped me going in to understand, and be able to ask some pertinent questions.

Good luck
Joanne
 
J

Joanne

New member
Tanya,
<br />
<br />I was txd 12 years ago and this was not offered back then.
<br />About 1 or 2 ago, a doc who was new to UNC told me I should get it. I told him no, as I had heard negative feedback about it. Someone not able to eat for months. I told UNC I would not do it, as I did not feel it was proven to prevent chronic rejection.....I already had chronic, so why bother. And I take omeprazole, and that works great.
<br />
<br />I just returned from my annual clinic ( I live 700 miles from UNC) and we were talking about it, and they also feel it is not proven and no they do not do it to every tx person. I know that Duke did that at one time, not sure what the protocol is now.
<br />
<br />Ask your center to provide some research for you to read.
<br />Before I got my lungs I did tons of research into lung tx and the like, it helped me going in to understand, and be able to ask some pertinent questions.
<br />
<br />Good luck
<br />Joanne
 
T

Transplantmommy

New member
I had double lung and liver transplant 2.5 years ago and I did not have that done. My transplant docs have talked about it and wanted me to have a Ph probe done to test for acid reflux but when I went to have the test done, I choked on the tube too bad and they couldn't get it down my throat. I am on Nexium once a day and if I have any acid reflux, that seems to control it because I don't feel anything. So, as of right now, I have not had it done and I don't want it done.
 
T

Transplantmommy

New member
I had double lung and liver transplant 2.5 years ago and I did not have that done. My transplant docs have talked about it and wanted me to have a Ph probe done to test for acid reflux but when I went to have the test done, I choked on the tube too bad and they couldn't get it down my throat. I am on Nexium once a day and if I have any acid reflux, that seems to control it because I don't feel anything. So, as of right now, I have not had it done and I don't want it done.
 
T

Transplantmommy

New member
I had double lung and liver transplant 2.5 years ago and I did not have that done. My transplant docs have talked about it and wanted me to have a Ph probe done to test for acid reflux but when I went to have the test done, I choked on the tube too bad and they couldn't get it down my throat. I am on Nexium once a day and if I have any acid reflux, that seems to control it because I don't feel anything. So, as of right now, I have not had it done and I don't want it done.
 
T

Transplantmommy

New member
I had double lung and liver transplant 2.5 years ago and I did not have that done. My transplant docs have talked about it and wanted me to have a Ph probe done to test for acid reflux but when I went to have the test done, I choked on the tube too bad and they couldn't get it down my throat. I am on Nexium once a day and if I have any acid reflux, that seems to control it because I don't feel anything. So, as of right now, I have not had it done and I don't want it done.
 
T

Transplantmommy

New member
I had double lung and liver transplant 2.5 years ago and I did not have that done. My transplant docs have talked about it and wanted me to have a Ph probe done to test for acid reflux but when I went to have the test done, I choked on the tube too bad and they couldn't get it down my throat. I am on Nexium once a day and if I have any acid reflux, that seems to control it because I don't feel anything. So, as of right now, I have not had it done and I don't want it done.
 
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