hello, i am new to this forum. i am a 28 year old female, who has had a chronic cough for over a year. i have had numerous CT scans, and chest Xrays. i had chronic sinusitis and had surgery in april. i had the surgery b/c a few doctors believed that the blockage was causing my infection.i haven't been on any medicine since a year ago while my doctor tries to diagnose. just this past friday, my doctor looked at my CT scan (for the tenth time i swear) and mentions that there is an abnormal bronchial tube and then says he wants to test me for CF(which i had never heard of diagnosis in adults). he said i have micro baceteria avium? and some form of staph but can't make a proper diagnosis since they messed up my lab results and i have to resubmit samples. i am very scared b/c i don't understand why this wasn't mentioned to me the entire year i was trying to diagnosis this with him. and he dropped this in the conversation offering no support.... i am otherwise very healthy other than the cough and sinus thing (which is gone) i have sometimes stomach issues but they aren't severe at all. i just want to know if you all think he could be giving me worst case scenario? or if just b/c i had no symptoms my whole life doesn't necessarily out rule it. i took my blood test today but they said it could take up to 2 months. i don't want to unnecessarily worry my family so i am turning to this site for advice....thanks in advance!
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- Thread starter oatmeal28
- Start date
hello, i am new to this forum. i am a 28 year old female, who has had a chronic cough for over a year. i have had numerous CT scans, and chest Xrays. i had chronic sinusitis and had surgery in april. i had the surgery b/c a few doctors believed that the blockage was causing my infection.i haven't been on any medicine since a year ago while my doctor tries to diagnose. just this past friday, my doctor looked at my CT scan (for the tenth time i swear) and mentions that there is an abnormal bronchial tube and then says he wants to test me for CF(which i had never heard of diagnosis in adults). he said i have micro baceteria avium? and some form of staph but can't make a proper diagnosis since they messed up my lab results and i have to resubmit samples. i am very scared b/c i don't understand why this wasn't mentioned to me the entire year i was trying to diagnosis this with him. and he dropped this in the conversation offering no support.... i am otherwise very healthy other than the cough and sinus thing (which is gone) i have sometimes stomach issues but they aren't severe at all. i just want to know if you all think he could be giving me worst case scenario? or if just b/c i had no symptoms my whole life doesn't necessarily out rule it. i took my blood test today but they said it could take up to 2 months. i don't want to unnecessarily worry my family so i am turning to this site for advice....thanks in advance!
hello, i am new to this forum. i am a 28 year old female, who has had a chronic cough for over a year. i have had numerous CT scans, and chest Xrays. i had chronic sinusitis and had surgery in april. i had the surgery b/c a few doctors believed that the blockage was causing my infection.i haven't been on any medicine since a year ago while my doctor tries to diagnose. just this past friday, my doctor looked at my CT scan (for the tenth time i swear) and mentions that there is an abnormal bronchial tube and then says he wants to test me for CF(which i had never heard of diagnosis in adults). he said i have micro baceteria avium? and some form of staph but can't make a proper diagnosis since they messed up my lab results and i have to resubmit samples. i am very scared b/c i don't understand why this wasn't mentioned to me the entire year i was trying to diagnosis this with him. and he dropped this in the conversation offering no support.... i am otherwise very healthy other than the cough and sinus thing (which is gone) i have sometimes stomach issues but they aren't severe at all. i just want to know if you all think he could be giving me worst case scenario? or if just b/c i had no symptoms my whole life doesn't necessarily out rule it. i took my blood test today but they said it could take up to 2 months. i don't want to unnecessarily worry my family so i am turning to this site for advice....thanks in advance!
hello, i am new to this forum. i am a 28 year old female, who has had a chronic cough for over a year. i have had numerous CT scans, and chest Xrays. i had chronic sinusitis and had surgery in april. i had the surgery b/c a few doctors believed that the blockage was causing my infection.i haven't been on any medicine since a year ago while my doctor tries to diagnose. just this past friday, my doctor looked at my CT scan (for the tenth time i swear) and mentions that there is an abnormal bronchial tube and then says he wants to test me for CF(which i had never heard of diagnosis in adults). he said i have micro baceteria avium? and some form of staph but can't make a proper diagnosis since they messed up my lab results and i have to resubmit samples. i am very scared b/c i don't understand why this wasn't mentioned to me the entire year i was trying to diagnosis this with him. and he dropped this in the conversation offering no support.... i am otherwise very healthy other than the cough and sinus thing (which is gone) i have sometimes stomach issues but they aren't severe at all. i just want to know if you all think he could be giving me worst case scenario? or if just b/c i had no symptoms my whole life doesn't necessarily out rule it. i took my blood test today but they said it could take up to 2 months. i don't want to unnecessarily worry my family so i am turning to this site for advice....thanks in advance!
hello, i am new to this forum. i am a 28 year old female, who has had a chronic cough for over a year. i have had numerous CT scans, and chest Xrays. i had chronic sinusitis and had surgery in april. i had the surgery b/c a few doctors believed that the blockage was causing my infection.i haven't been on any medicine since a year ago while my doctor tries to diagnose. just this past friday, my doctor looked at my CT scan (for the tenth time i swear) and mentions that there is an abnormal bronchial tube and then says he wants to test me for CF(which i had never heard of diagnosis in adults). he said i have micro baceteria avium? and some form of staph but can't make a proper diagnosis since they messed up my lab results and i have to resubmit samples. i am very scared b/c i don't understand why this wasn't mentioned to me the entire year i was trying to diagnosis this with him. and he dropped this in the conversation offering no support.... i am otherwise very healthy other than the cough and sinus thing (which is gone) i have sometimes stomach issues but they aren't severe at all. i just want to know if you all think he could be giving me worst case scenario? or if just b/c i had no symptoms my whole life doesn't necessarily out rule it. i took my blood test today but they said it could take up to 2 months. i don't want to unnecessarily worry my family so i am turning to this site for advice....thanks in advance!
M
Mommafirst
Guest
HI -- I would strongly suggest you post this over in the adult forum. There are many adults with Cf that should be abble to answer your questions. I know there are several who were diagnosed as adults. Best of luck!!!
M
Mommafirst
Guest
HI -- I would strongly suggest you post this over in the adult forum. There are many adults with Cf that should be abble to answer your questions. I know there are several who were diagnosed as adults. Best of luck!!!
M
Mommafirst
Guest
HI -- I would strongly suggest you post this over in the adult forum. There are many adults with Cf that should be abble to answer your questions. I know there are several who were diagnosed as adults. Best of luck!!!
M
Mommafirst
Guest
HI -- I would strongly suggest you post this over in the adult forum. There are many adults with Cf that should be abble to answer your questions. I know there are several who were diagnosed as adults. Best of luck!!!
M
Mommafirst
Guest
HI -- I would strongly suggest you post this over in the adult forum. There are many adults with Cf that should be abble to answer your questions. I know there are several who were diagnosed as adults. Best of luck!!!
S
sdelorenzo
Guest
Welcome! Hope your stay here is short. There are quite a few adults these days being diagnosed. The reason is cystic fibrosis genetic testing. Many of the adults being diagnosed have a less severe case of cf obviously. In the past the drs would have never thought to have tested. It is a good thing your doctor is willing to test you and rule out cf. Did you ask the dr why you can't have a sweat test? It should give you result within a day or so. But I also imagine that it is possible if you did have a sweat test it might not show it since some cf genes do not cause elevated sweat tests. Especially in cases where the person does not have many symptoms. Sorry your doctor wasn't very supportive. It is not something to throw casually at someone.
Sharon, mom of Sophia, 8 and Jack, 5 both with cf, Grant, 6 months no cf
Sharon, mom of Sophia, 8 and Jack, 5 both with cf, Grant, 6 months no cf
S
sdelorenzo
Guest
Welcome! Hope your stay here is short. There are quite a few adults these days being diagnosed. The reason is cystic fibrosis genetic testing. Many of the adults being diagnosed have a less severe case of cf obviously. In the past the drs would have never thought to have tested. It is a good thing your doctor is willing to test you and rule out cf. Did you ask the dr why you can't have a sweat test? It should give you result within a day or so. But I also imagine that it is possible if you did have a sweat test it might not show it since some cf genes do not cause elevated sweat tests. Especially in cases where the person does not have many symptoms. Sorry your doctor wasn't very supportive. It is not something to throw casually at someone.
Sharon, mom of Sophia, 8 and Jack, 5 both with cf, Grant, 6 months no cf
Sharon, mom of Sophia, 8 and Jack, 5 both with cf, Grant, 6 months no cf
S
sdelorenzo
Guest
Welcome! Hope your stay here is short. There are quite a few adults these days being diagnosed. The reason is cystic fibrosis genetic testing. Many of the adults being diagnosed have a less severe case of cf obviously. In the past the drs would have never thought to have tested. It is a good thing your doctor is willing to test you and rule out cf. Did you ask the dr why you can't have a sweat test? It should give you result within a day or so. But I also imagine that it is possible if you did have a sweat test it might not show it since some cf genes do not cause elevated sweat tests. Especially in cases where the person does not have many symptoms. Sorry your doctor wasn't very supportive. It is not something to throw casually at someone.
Sharon, mom of Sophia, 8 and Jack, 5 both with cf, Grant, 6 months no cf
Sharon, mom of Sophia, 8 and Jack, 5 both with cf, Grant, 6 months no cf
S
sdelorenzo
Guest
Welcome! Hope your stay here is short. There are quite a few adults these days being diagnosed. The reason is cystic fibrosis genetic testing. Many of the adults being diagnosed have a less severe case of cf obviously. In the past the drs would have never thought to have tested. It is a good thing your doctor is willing to test you and rule out cf. Did you ask the dr why you can't have a sweat test? It should give you result within a day or so. But I also imagine that it is possible if you did have a sweat test it might not show it since some cf genes do not cause elevated sweat tests. Especially in cases where the person does not have many symptoms. Sorry your doctor wasn't very supportive. It is not something to throw casually at someone.
Sharon, mom of Sophia, 8 and Jack, 5 both with cf, Grant, 6 months no cf
Sharon, mom of Sophia, 8 and Jack, 5 both with cf, Grant, 6 months no cf
S
sdelorenzo
Guest
Welcome! Hope your stay here is short. There are quite a few adults these days being diagnosed. The reason is cystic fibrosis genetic testing. Many of the adults being diagnosed have a less severe case of cf obviously. In the past the drs would have never thought to have tested. It is a good thing your doctor is willing to test you and rule out cf. Did you ask the dr why you can't have a sweat test? It should give you result within a day or so. But I also imagine that it is possible if you did have a sweat test it might not show it since some cf genes do not cause elevated sweat tests. Especially in cases where the person does not have many symptoms. Sorry your doctor wasn't very supportive. It is not something to throw casually at someone.
<br />Sharon, mom of Sophia, 8 and Jack, 5 both with cf, Grant, 6 months no cf
<br />Sharon, mom of Sophia, 8 and Jack, 5 both with cf, Grant, 6 months no cf
As its becoming more apparent in the CF World.....anything is possible.
We are finding more & more older patients who have been misdiagnosed or there symptoms are so "minor" that they could be taken for other things.
We use to have a member (havent heard from her in years) that only had sinus issues which led to her diagnosis.
You may or may not be in the same boat, but one thing we know with CF is that it is important to get a diagonsis because the bacterias & other issues associated with it do require specific care.
It if it takes 2 months to get the results then it sounds like you are getting the most complete genetic testing called the full panel which is great. It doesnt leave room for much error.
I know its hard to grasp, but until you have the results dont drive yourself nuts.
Be thankful that your doctor is on top of things. There are some that have refused to test because its "impossibe" & the patient ends up with damage.
We are here for more questions if you have them.
HUGS
We are finding more & more older patients who have been misdiagnosed or there symptoms are so "minor" that they could be taken for other things.
We use to have a member (havent heard from her in years) that only had sinus issues which led to her diagnosis.
You may or may not be in the same boat, but one thing we know with CF is that it is important to get a diagonsis because the bacterias & other issues associated with it do require specific care.
It if it takes 2 months to get the results then it sounds like you are getting the most complete genetic testing called the full panel which is great. It doesnt leave room for much error.
I know its hard to grasp, but until you have the results dont drive yourself nuts.
Be thankful that your doctor is on top of things. There are some that have refused to test because its "impossibe" & the patient ends up with damage.
We are here for more questions if you have them.
HUGS
As its becoming more apparent in the CF World.....anything is possible.
We are finding more & more older patients who have been misdiagnosed or there symptoms are so "minor" that they could be taken for other things.
We use to have a member (havent heard from her in years) that only had sinus issues which led to her diagnosis.
You may or may not be in the same boat, but one thing we know with CF is that it is important to get a diagonsis because the bacterias & other issues associated with it do require specific care.
It if it takes 2 months to get the results then it sounds like you are getting the most complete genetic testing called the full panel which is great. It doesnt leave room for much error.
I know its hard to grasp, but until you have the results dont drive yourself nuts.
Be thankful that your doctor is on top of things. There are some that have refused to test because its "impossibe" & the patient ends up with damage.
We are here for more questions if you have them.
HUGS
We are finding more & more older patients who have been misdiagnosed or there symptoms are so "minor" that they could be taken for other things.
We use to have a member (havent heard from her in years) that only had sinus issues which led to her diagnosis.
You may or may not be in the same boat, but one thing we know with CF is that it is important to get a diagonsis because the bacterias & other issues associated with it do require specific care.
It if it takes 2 months to get the results then it sounds like you are getting the most complete genetic testing called the full panel which is great. It doesnt leave room for much error.
I know its hard to grasp, but until you have the results dont drive yourself nuts.
Be thankful that your doctor is on top of things. There are some that have refused to test because its "impossibe" & the patient ends up with damage.
We are here for more questions if you have them.
HUGS
As its becoming more apparent in the CF World.....anything is possible.
We are finding more & more older patients who have been misdiagnosed or there symptoms are so "minor" that they could be taken for other things.
We use to have a member (havent heard from her in years) that only had sinus issues which led to her diagnosis.
You may or may not be in the same boat, but one thing we know with CF is that it is important to get a diagonsis because the bacterias & other issues associated with it do require specific care.
It if it takes 2 months to get the results then it sounds like you are getting the most complete genetic testing called the full panel which is great. It doesnt leave room for much error.
I know its hard to grasp, but until you have the results dont drive yourself nuts.
Be thankful that your doctor is on top of things. There are some that have refused to test because its "impossibe" & the patient ends up with damage.
We are here for more questions if you have them.
HUGS
We are finding more & more older patients who have been misdiagnosed or there symptoms are so "minor" that they could be taken for other things.
We use to have a member (havent heard from her in years) that only had sinus issues which led to her diagnosis.
You may or may not be in the same boat, but one thing we know with CF is that it is important to get a diagonsis because the bacterias & other issues associated with it do require specific care.
It if it takes 2 months to get the results then it sounds like you are getting the most complete genetic testing called the full panel which is great. It doesnt leave room for much error.
I know its hard to grasp, but until you have the results dont drive yourself nuts.
Be thankful that your doctor is on top of things. There are some that have refused to test because its "impossibe" & the patient ends up with damage.
We are here for more questions if you have them.
HUGS
As its becoming more apparent in the CF World.....anything is possible.
We are finding more & more older patients who have been misdiagnosed or there symptoms are so "minor" that they could be taken for other things.
We use to have a member (havent heard from her in years) that only had sinus issues which led to her diagnosis.
You may or may not be in the same boat, but one thing we know with CF is that it is important to get a diagonsis because the bacterias & other issues associated with it do require specific care.
It if it takes 2 months to get the results then it sounds like you are getting the most complete genetic testing called the full panel which is great. It doesnt leave room for much error.
I know its hard to grasp, but until you have the results dont drive yourself nuts.
Be thankful that your doctor is on top of things. There are some that have refused to test because its "impossibe" & the patient ends up with damage.
We are here for more questions if you have them.
HUGS
We are finding more & more older patients who have been misdiagnosed or there symptoms are so "minor" that they could be taken for other things.
We use to have a member (havent heard from her in years) that only had sinus issues which led to her diagnosis.
You may or may not be in the same boat, but one thing we know with CF is that it is important to get a diagonsis because the bacterias & other issues associated with it do require specific care.
It if it takes 2 months to get the results then it sounds like you are getting the most complete genetic testing called the full panel which is great. It doesnt leave room for much error.
I know its hard to grasp, but until you have the results dont drive yourself nuts.
Be thankful that your doctor is on top of things. There are some that have refused to test because its "impossibe" & the patient ends up with damage.
We are here for more questions if you have them.
HUGS
As its becoming more apparent in the CF World.....anything is possible.
<br />
<br />We are finding more & more older patients who have been misdiagnosed or there symptoms are so "minor" that they could be taken for other things.
<br />
<br />We use to have a member (havent heard from her in years) that only had sinus issues which led to her diagnosis.
<br />
<br />You may or may not be in the same boat, but one thing we know with CF is that it is important to get a diagonsis because the bacterias & other issues associated with it do require specific care.
<br />
<br />It if it takes 2 months to get the results then it sounds like you are getting the most complete genetic testing called the full panel which is great. It doesnt leave room for much error.
<br />
<br />I know its hard to grasp, but until you have the results dont drive yourself nuts.
<br />
<br />Be thankful that your doctor is on top of things. There are some that have refused to test because its "impossibe" & the patient ends up with damage.
<br />
<br />We are here for more questions if you have them.
<br />
<br />HUGS
<br />
<br />We are finding more & more older patients who have been misdiagnosed or there symptoms are so "minor" that they could be taken for other things.
<br />
<br />We use to have a member (havent heard from her in years) that only had sinus issues which led to her diagnosis.
<br />
<br />You may or may not be in the same boat, but one thing we know with CF is that it is important to get a diagonsis because the bacterias & other issues associated with it do require specific care.
<br />
<br />It if it takes 2 months to get the results then it sounds like you are getting the most complete genetic testing called the full panel which is great. It doesnt leave room for much error.
<br />
<br />I know its hard to grasp, but until you have the results dont drive yourself nuts.
<br />
<br />Be thankful that your doctor is on top of things. There are some that have refused to test because its "impossibe" & the patient ends up with damage.
<br />
<br />We are here for more questions if you have them.
<br />
<br />HUGS