Nocardia ?

[anonymous]

my son is 13 and now has MRSA and Nocardia along with all the other 'normal' cf bugs would like to know if there are others with the nocardia? and what they are doing for it?

 

[Joblazer86]

I have mrsa but not nocardia. what is that?

 

[farmfamily]

Oh my gosh. I haven't checked this site for about a week and decided to before I go to bed. There you were. Yes my son cultured Nocardia two years ago when he was 10. I think it kind of freaked the doctors out because none of there CF patients had ever tested for it. He had been very sick for about 9 months 3 tune-ups and numerous oral antibiotics. When he went in for his third tune-up his culture grew nocardia they brought in an infectous diesease doctor to consult how to treat it. They hit it with Bactrim through the IV then he was on oral Bactrim for over a year. We just had a scare last month they thought it may be back but a culture has not grown it. My dr's had just returned from the CF Conference and apparently more and more are growing it. She thinks it may have been there but they're just now looking for it. She also said it seemed to be kind od a regional bug. Here in the Southwest where do you live? You are the first person I've known besides my son who has grown it I have surfed the web for two years looking. It sounded really scarey when I first read about it. But they try to stay on top of it. Please reply back I'd love to know more.

Terri

 

[anonymous]

the best place to learn about it is http://health.allrefer.com/health/nocardia-infection-info.html, as for my son it was resistent to bactrim and augmenten. So they are going to try minicyclin. This has given us a real scare also. He lost 10 lbs before they started to treat it and could barely walk 100 yds without geting short of breath. He still seems to tire easily and pft's have dropped. We live in the southeast but did live in Co for a short time. I was beginning to wonder if he was the only one with it also. Did your son ever cough up the milt seeds that was the first time we really noticed there was something wrong thank you for replying I hope to hear from you again

 

[farmfamily]

I was glad to hear from you. No, my son never coughed up anything like that. The one thing that I can remember him complaining about was pain in his chest. It was very 'localized' meaning that it was always a certain spot. I had addressed this with our primary care Dr and the CF clinic. He kept complaining one night we even took him to the emergency room because he was in so much pain. Of course by the time we got there an hour drive he was sound asleep something he has always done when he's in severe pain. The Dr's kept dismissing it to all kinds of things. I even had one tell me it wasn't CF related. Well when he cultured for nocardia they did CAT scans the nocardia had invaded a lymph node and guess where it was. Right at the spot that he complained about for months. He always had lots of fevers off and on and they'd come on out of the blue. He is 12 now and has had much better health.
I hope your son is on the road to recovery! I hope to talk to you again.

Terri