Non related CF cough?????

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sdelorenzo

Guest
Allansarmy-I appreciate your kind words and wisdom. Thank you. Just to clarify though, I am not anxious or upset about both of my children's CF cough. That is just goes along with the disease. Of course, I wish and pray that don't have to deal with coughing, but they do.

What I was trying to explain was that my son had a habit cough for 6 weeks when he was five years old, which is very different that your usual CF cough. A habit cough can be a result from having CF as in my son's case but not caused by CF. I think my son's habit was caused by his sinus surgery. My son's habit cough was a cough that appeared suddenly. He would cough about once every five second throughout the day for weeks on end. It did not happen when he was asleep or when swimming. It was from the throat and perhaps due to a tickle in his throat or new drainage from the sinus surgery. It was determined that his coughing was not caused by new bacteria or mucus in his lungs. His pft at the time was in the 130's. Habit coughs tend to happen to those in their teenage years the doctors' said. Thankfully it was during the summer as he would not have been able to attend school during that time. So what ended up happening was I had to ask my son every time he made that noise (cough) if he really needed to cough. I could tell the difference between the habit cough and CF cough, so I wouldn't correct him when he needed to clear mucus. It only took 3 or 4 days of correcting him before his habit cough ended and he went back to coughing about once every 30 minute.
Sharon, mom of Sophia, 10 and Jack, 8 both with CF and Grant, 2 and Paige, 1 both without CF
 

LouLou

New member
I was age 12 when I started to have a baseline cough. The article was interesting Sharon. It got me thinking that if someone had incentivized me to stop coughing (by doing better lung clearance) at that age it might have really worked. I know now that I am a very "incentive" driven person. It's not that I wasn't doing lung clearance but if the patient takes a more active role (huff coughing, etc.) It is much more productive. And for the right reward I may have been willing to "work it" in a way I didn't even know how to do then. As disease progressives the incentive is clear enough lungs to function. When a person is younger and it seems there is no incentive why comply. And then the cough appears.

I guess my question for you seems like the obvious to me but I will state it. Your clinic recommended additional pt sessions, right? How many are you doing? Have you tried just one more in order to see what his cough is like between sessions? When our son is sick he is to do 4 pt sessions a day. So I guess my point is see how much you have to do in order to get rid of it. Another option for one of Mason's 4 pt sessions couuld be a 15 minute run. See how much he coughs during running....that's an acid test as if it is mucus the running will make him produce a cough.
 

LouLou

New member
I was age 12 when I started to have a baseline cough. The article was interesting Sharon. It got me thinking that if someone had incentivized me to stop coughing (by doing better lung clearance) at that age it might have really worked. I know now that I am a very "incentive" driven person. It's not that I wasn't doing lung clearance but if the patient takes a more active role (huff coughing, etc.) It is much more productive. And for the right reward I may have been willing to "work it" in a way I didn't even know how to do then. As disease progressives the incentive is clear enough lungs to function. When a person is younger and it seems there is no incentive why comply. And then the cough appears.

I guess my question for you seems like the obvious to me but I will state it. Your clinic recommended additional pt sessions, right? How many are you doing? Have you tried just one more in order to see what his cough is like between sessions? When our son is sick he is to do 4 pt sessions a day. So I guess my point is see how much you have to do in order to get rid of it. Another option for one of Mason's 4 pt sessions couuld be a 15 minute run. See how much he coughs during running....that's an acid test as if it is mucus the running will make him produce a cough.
 

LouLou

New member
I was age 12 when I started to have a baseline cough. The article was interesting Sharon. It got me thinking that if someone had incentivized me to stop coughing (by doing better lung clearance) at that age it might have really worked. I know now that I am a very "incentive" driven person. It's not that I wasn't doing lung clearance but if the patient takes a more active role (huff coughing, etc.) It is much more productive. And for the right reward I may have been willing to "work it" in a way I didn't even know how to do then. As disease progressives the incentive is clear enough lungs to function. When a person is younger and it seems there is no incentive why comply. And then the cough appears.

I guess my question for you seems like the obvious to me but I will state it. Your clinic recommended additional pt sessions, right? How many are you doing? Have you tried just one more in order to see what his cough is like between sessions? When our son is sick he is to do 4 pt sessions a day. So I guess my point is see how much you have to do in order to get rid of it. Another option for one of Mason's 4 pt sessions couuld be a 15 minute run. See how much he coughs during running....that's an acid test as if it is mucus the running will make him produce a cough.
 
A

Allansarmy

Guest
@<strong><a href="http://www.cysticfibrosis.com/profile/index.cfm/sdelorenzo">sdelorenzo</a> <br><br>Thanks for your response. This "habit cough" is new to me for sure. I will have to look into this. Now my son does cough a lot in the mornings, usually coughing into tissue and going through a half box of Kleenex daily. I will spare you the description as most of you are aware. <br><br>Has anyone of you or your children ever been prescribed or given in the hospital Hypertonic Saline for CF treatment?<br><br><br></strong>
 
A

Allansarmy

Guest
@<strong><a href="http://www.cysticfibrosis.com/profile/index.cfm/sdelorenzo">sdelorenzo</a> <br><br>Thanks for your response. This "habit cough" is new to me for sure. I will have to look into this. Now my son does cough a lot in the mornings, usually coughing into tissue and going through a half box of Kleenex daily. I will spare you the description as most of you are aware. <br><br>Has anyone of you or your children ever been prescribed or given in the hospital Hypertonic Saline for CF treatment?<br><br><br></strong>
 
A

Allansarmy

Guest
@<strong><a href="http://www.cysticfibrosis.com/profile/index.cfm/sdelorenzo">sdelorenzo</a> <br><br>Thanks for your response. This "habit cough" is new to me for sure. I will have to look into this. Now my son does cough a lot in the mornings, usually coughing into tissue and going through a half box of Kleenex daily. I will spare you the description as most of you are aware. <br><br>Has anyone of you or your children ever been prescribed or given in the hospital Hypertonic Saline for CF treatment?<br><br><br></strong>
 
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