"Normal" sweat test

J

jaazavala

New member
My daughter had her first sweat test on monday and it was a 10. I am trying to find out how many of you out there have had a normal sweat test and what the number was. Also if you were tested at a certified cf center or not. Did they weigh the sweat to see if they had enuff?

My daughters ped. will not get her genetic testing done because her sweat test was normal. She tried to explain to me that people who have had normal sweat tests were not tested at a certified cf center or they did not have enuff sweat. I do not belive that. I am just trying to validate my fellings that my daughter may still have cf.

Thanks
 
J

jaazavala

New member
My daughter had her first sweat test on monday and it was a 10. I am trying to find out how many of you out there have had a normal sweat test and what the number was. Also if you were tested at a certified cf center or not. Did they weigh the sweat to see if they had enuff?

My daughters ped. will not get her genetic testing done because her sweat test was normal. She tried to explain to me that people who have had normal sweat tests were not tested at a certified cf center or they did not have enuff sweat. I do not belive that. I am just trying to validate my fellings that my daughter may still have cf.

Thanks
 
J

jaazavala

New member
My daughter had her first sweat test on monday and it was a 10. I am trying to find out how many of you out there have had a normal sweat test and what the number was. Also if you were tested at a certified cf center or not. Did they weigh the sweat to see if they had enuff?

My daughters ped. will not get her genetic testing done because her sweat test was normal. She tried to explain to me that people who have had normal sweat tests were not tested at a certified cf center or they did not have enuff sweat. I do not belive that. I am just trying to validate my fellings that my daughter may still have cf.

Thanks
 
J

jaazavala

New member
My daughter had her first sweat test on monday and it was a 10. I am trying to find out how many of you out there have had a normal sweat test and what the number was. Also if you were tested at a certified cf center or not. Did they weigh the sweat to see if they had enuff?

My daughters ped. will not get her genetic testing done because her sweat test was normal. She tried to explain to me that people who have had normal sweat tests were not tested at a certified cf center or they did not have enuff sweat. I do not belive that. I am just trying to validate my fellings that my daughter may still have cf.

Thanks
 
J

jaazavala

New member
My daughter had her first sweat test on monday and it was a 10. I am trying to find out how many of you out there have had a normal sweat test and what the number was. Also if you were tested at a certified cf center or not. Did they weigh the sweat to see if they had enuff?
<br />
<br />My daughters ped. will not get her genetic testing done because her sweat test was normal. She tried to explain to me that people who have had normal sweat tests were not tested at a certified cf center or they did not have enuff sweat. I do not belive that. I am just trying to validate my fellings that my daughter may still have cf.
<br />
<br />Thanks
 
C

CFTEAMA

New member
"Normal

My sweat test was a 20. I found out after that that I am a DDF508!! So I don't like sweat tests they just don't work. Yes my test was done at a CF center.



---------------------------------------------
20/w CF/Bronchiectasis CFRD
 
C

CFTEAMA

New member
"Normal

My sweat test was a 20. I found out after that that I am a DDF508!! So I don't like sweat tests they just don't work. Yes my test was done at a CF center.



---------------------------------------------
20/w CF/Bronchiectasis CFRD
 
C

CFTEAMA

New member
"Normal

My sweat test was a 20. I found out after that that I am a DDF508!! So I don't like sweat tests they just don't work. Yes my test was done at a CF center.



---------------------------------------------
20/w CF/Bronchiectasis CFRD
 
C

CFTEAMA

New member
"Normal

My sweat test was a 20. I found out after that that I am a DDF508!! So I don't like sweat tests they just don't work. Yes my test was done at a CF center.



---------------------------------------------
20/w CF/Bronchiectasis CFRD
 
C

CFTEAMA

New member
"Normal

My sweat test was a 20. I found out after that that I am a DDF508!! So I don't like sweat tests they just don't work. Yes my test was done at a CF center.
<br />
<br />
<br />
<br />---------------------------------------------
<br />20/w CF/Bronchiectasis CFRD
 
T

TonyaH

Guest
"Normal

My mom lived her entire life (until 45), with the diagnosis of "acute bronchiectasis", and "bronchopulmonary aspergillosis", (now ABPA). Her sweat test when she was 19 came back negative, yet through the years she always responded favorably to CF treatments. Her pulmonologist was not a CF specialist and at that time, few people were questioning the possiblity of CF after a negative sweat test. It was not until my son was born and diagnosed with CF at two months of age that I called my mom's pulmonologist and explained to him Andrew's diagnosis. This was only two months after she died, as she died two days before Andrew was born. When I told him Andrew had CF he was just very quiet, and I remember him saying, "wow." (Kind of like, Man, I missed the boat on that one.) I do not like sweat tests, either. They give quick positives, which save families time and money. However, I think protocol should be to follow negative sweat tests with genetic testing. Too many cases go undiagnosed.

For obvious reasons, I feel very strongly about his topic. Follow your instinct.
 
T

TonyaH

Guest
"Normal

My mom lived her entire life (until 45), with the diagnosis of "acute bronchiectasis", and "bronchopulmonary aspergillosis", (now ABPA). Her sweat test when she was 19 came back negative, yet through the years she always responded favorably to CF treatments. Her pulmonologist was not a CF specialist and at that time, few people were questioning the possiblity of CF after a negative sweat test. It was not until my son was born and diagnosed with CF at two months of age that I called my mom's pulmonologist and explained to him Andrew's diagnosis. This was only two months after she died, as she died two days before Andrew was born. When I told him Andrew had CF he was just very quiet, and I remember him saying, "wow." (Kind of like, Man, I missed the boat on that one.) I do not like sweat tests, either. They give quick positives, which save families time and money. However, I think protocol should be to follow negative sweat tests with genetic testing. Too many cases go undiagnosed.

For obvious reasons, I feel very strongly about his topic. Follow your instinct.
 
T

TonyaH

Guest
"Normal

My mom lived her entire life (until 45), with the diagnosis of "acute bronchiectasis", and "bronchopulmonary aspergillosis", (now ABPA). Her sweat test when she was 19 came back negative, yet through the years she always responded favorably to CF treatments. Her pulmonologist was not a CF specialist and at that time, few people were questioning the possiblity of CF after a negative sweat test. It was not until my son was born and diagnosed with CF at two months of age that I called my mom's pulmonologist and explained to him Andrew's diagnosis. This was only two months after she died, as she died two days before Andrew was born. When I told him Andrew had CF he was just very quiet, and I remember him saying, "wow." (Kind of like, Man, I missed the boat on that one.) I do not like sweat tests, either. They give quick positives, which save families time and money. However, I think protocol should be to follow negative sweat tests with genetic testing. Too many cases go undiagnosed.

For obvious reasons, I feel very strongly about his topic. Follow your instinct.
 
T

TonyaH

Guest
"Normal

My mom lived her entire life (until 45), with the diagnosis of "acute bronchiectasis", and "bronchopulmonary aspergillosis", (now ABPA). Her sweat test when she was 19 came back negative, yet through the years she always responded favorably to CF treatments. Her pulmonologist was not a CF specialist and at that time, few people were questioning the possiblity of CF after a negative sweat test. It was not until my son was born and diagnosed with CF at two months of age that I called my mom's pulmonologist and explained to him Andrew's diagnosis. This was only two months after she died, as she died two days before Andrew was born. When I told him Andrew had CF he was just very quiet, and I remember him saying, "wow." (Kind of like, Man, I missed the boat on that one.) I do not like sweat tests, either. They give quick positives, which save families time and money. However, I think protocol should be to follow negative sweat tests with genetic testing. Too many cases go undiagnosed.

For obvious reasons, I feel very strongly about his topic. Follow your instinct.
 
T

TonyaH

Guest
"Normal

My mom lived her entire life (until 45), with the diagnosis of "acute bronchiectasis", and "bronchopulmonary aspergillosis", (now ABPA). Her sweat test when she was 19 came back negative, yet through the years she always responded favorably to CF treatments. Her pulmonologist was not a CF specialist and at that time, few people were questioning the possiblity of CF after a negative sweat test. It was not until my son was born and diagnosed with CF at two months of age that I called my mom's pulmonologist and explained to him Andrew's diagnosis. This was only two months after she died, as she died two days before Andrew was born. When I told him Andrew had CF he was just very quiet, and I remember him saying, "wow." (Kind of like, Man, I missed the boat on that one.) I do not like sweat tests, either. They give quick positives, which save families time and money. However, I think protocol should be to follow negative sweat tests with genetic testing. Too many cases go undiagnosed.
<br />
<br />For obvious reasons, I feel very strongly about his topic. Follow your instinct.
 
G

geckolady

New member
"Normal

you should definately look into further testing! dont let the docs convince you. its worth looking a little crazy. i wasn't dx till I was four because of dx like accute broncitis and celiacs and a million other shots in the dark. my mom pushed several times for sweat tests and mine came back negavite twice before i was dx! trust your instincts.
 
G

geckolady

New member
"Normal

you should definately look into further testing! dont let the docs convince you. its worth looking a little crazy. i wasn't dx till I was four because of dx like accute broncitis and celiacs and a million other shots in the dark. my mom pushed several times for sweat tests and mine came back negavite twice before i was dx! trust your instincts.
 
G

geckolady

New member
"Normal

you should definately look into further testing! dont let the docs convince you. its worth looking a little crazy. i wasn't dx till I was four because of dx like accute broncitis and celiacs and a million other shots in the dark. my mom pushed several times for sweat tests and mine came back negavite twice before i was dx! trust your instincts.
 
G

geckolady

New member
"Normal

you should definately look into further testing! dont let the docs convince you. its worth looking a little crazy. i wasn't dx till I was four because of dx like accute broncitis and celiacs and a million other shots in the dark. my mom pushed several times for sweat tests and mine came back negavite twice before i was dx! trust your instincts.
 
G

geckolady

New member
"Normal

you should definately look into further testing! dont let the docs convince you. its worth looking a little crazy. i wasn't dx till I was four because of dx like accute broncitis and celiacs and a million other shots in the dark. my mom pushed several times for sweat tests and mine came back negavite twice before i was dx! trust your instincts.
 
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