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not diagnosed but have questions
- Thread starter mikismum
- Start date
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mikismum</b></i>
thanks for the replies
i dont think that the ful test is available here in australia, typical
whith the sweat test what is considered normal , borderline and positive or is it just tolaty unaccurate</end quote></div>
I wouldnt call the Sweat Test totally inaccurate, but IMHO its not the gold standard that it use to be. Since genetic testing became available I believe that those who "passed" the sweat test (many variables can influence the test) would be left untreated if not for the genetic testing.
When the sweat test works....it works well. It just seems to have more of a "gray" area than originally thought versus it being black/white diagnoses.
thanks for the replies
i dont think that the ful test is available here in australia, typical
whith the sweat test what is considered normal , borderline and positive or is it just tolaty unaccurate</end quote></div>
I wouldnt call the Sweat Test totally inaccurate, but IMHO its not the gold standard that it use to be. Since genetic testing became available I believe that those who "passed" the sweat test (many variables can influence the test) would be left untreated if not for the genetic testing.
When the sweat test works....it works well. It just seems to have more of a "gray" area than originally thought versus it being black/white diagnoses.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mikismum</b></i>
thanks for the replies
i dont think that the ful test is available here in australia, typical
whith the sweat test what is considered normal , borderline and positive or is it just tolaty unaccurate</end quote></div>
I wouldnt call the Sweat Test totally inaccurate, but IMHO its not the gold standard that it use to be. Since genetic testing became available I believe that those who "passed" the sweat test (many variables can influence the test) would be left untreated if not for the genetic testing.
When the sweat test works....it works well. It just seems to have more of a "gray" area than originally thought versus it being black/white diagnoses.
thanks for the replies
i dont think that the ful test is available here in australia, typical
whith the sweat test what is considered normal , borderline and positive or is it just tolaty unaccurate</end quote></div>
I wouldnt call the Sweat Test totally inaccurate, but IMHO its not the gold standard that it use to be. Since genetic testing became available I believe that those who "passed" the sweat test (many variables can influence the test) would be left untreated if not for the genetic testing.
When the sweat test works....it works well. It just seems to have more of a "gray" area than originally thought versus it being black/white diagnoses.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mikismum</b></i>
thanks for the replies
i dont think that the ful test is available here in australia, typical
whith the sweat test what is considered normal , borderline and positive or is it just tolaty unaccurate</end quote></div>
I wouldnt call the Sweat Test totally inaccurate, but IMHO its not the gold standard that it use to be. Since genetic testing became available I believe that those who "passed" the sweat test (many variables can influence the test) would be left untreated if not for the genetic testing.
When the sweat test works....it works well. It just seems to have more of a "gray" area than originally thought versus it being black/white diagnoses.
thanks for the replies
i dont think that the ful test is available here in australia, typical
whith the sweat test what is considered normal , borderline and positive or is it just tolaty unaccurate</end quote></div>
I wouldnt call the Sweat Test totally inaccurate, but IMHO its not the gold standard that it use to be. Since genetic testing became available I believe that those who "passed" the sweat test (many variables can influence the test) would be left untreated if not for the genetic testing.
When the sweat test works....it works well. It just seems to have more of a "gray" area than originally thought versus it being black/white diagnoses.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mikismum</b></i>
thanks for the replies
i dont think that the ful test is available here in australia, typical
whith the sweat test what is considered normal , borderline and positive or is it just tolaty unaccurate</end quote></div>
I wouldnt call the Sweat Test totally inaccurate, but IMHO its not the gold standard that it use to be. Since genetic testing became available I believe that those who "passed" the sweat test (many variables can influence the test) would be left untreated if not for the genetic testing.
When the sweat test works....it works well. It just seems to have more of a "gray" area than originally thought versus it being black/white diagnoses.
thanks for the replies
i dont think that the ful test is available here in australia, typical
whith the sweat test what is considered normal , borderline and positive or is it just tolaty unaccurate</end quote></div>
I wouldnt call the Sweat Test totally inaccurate, but IMHO its not the gold standard that it use to be. Since genetic testing became available I believe that those who "passed" the sweat test (many variables can influence the test) would be left untreated if not for the genetic testing.
When the sweat test works....it works well. It just seems to have more of a "gray" area than originally thought versus it being black/white diagnoses.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mikismum</b></i>
thanks for the replies
i dont think that the ful test is available here in australia, typical
whith the sweat test what is considered normal , borderline and positive or is it just tolaty unaccurate</end quote>
I wouldnt call the Sweat Test totally inaccurate, but IMHO its not the gold standard that it use to be. Since genetic testing became available I believe that those who "passed" the sweat test (many variables can influence the test) would be left untreated if not for the genetic testing.
When the sweat test works....it works well. It just seems to have more of a "gray" area than originally thought versus it being black/white diagnoses.
thanks for the replies
i dont think that the ful test is available here in australia, typical
whith the sweat test what is considered normal , borderline and positive or is it just tolaty unaccurate</end quote>
I wouldnt call the Sweat Test totally inaccurate, but IMHO its not the gold standard that it use to be. Since genetic testing became available I believe that those who "passed" the sweat test (many variables can influence the test) would be left untreated if not for the genetic testing.
When the sweat test works....it works well. It just seems to have more of a "gray" area than originally thought versus it being black/white diagnoses.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mikismum</b></i>
thanks for the replies
i dont think that the ful test is available here in australia, typical
whith the sweat test what is considered normal , borderline and positive or is it just tolaty unaccurate</end quote>
I wouldnt call the Sweat Test totally inaccurate, but IMHO its not the gold standard that it use to be. Since genetic testing became available I believe that those who "passed" the sweat test (many variables can influence the test) would be left untreated if not for the genetic testing.
When the sweat test works....it works well. It just seems to have more of a "gray" area than originally thought versus it being black/white diagnoses.
thanks for the replies
i dont think that the ful test is available here in australia, typical
whith the sweat test what is considered normal , borderline and positive or is it just tolaty unaccurate</end quote>
I wouldnt call the Sweat Test totally inaccurate, but IMHO its not the gold standard that it use to be. Since genetic testing became available I believe that those who "passed" the sweat test (many variables can influence the test) would be left untreated if not for the genetic testing.
When the sweat test works....it works well. It just seems to have more of a "gray" area than originally thought versus it being black/white diagnoses.
A friend of mine's granddaughter is a few weeks younger than DS and has the same genetic mutation as DS; however, her symptoms were more upper respiratory in nature -- RSV, frequent upper respiratory infections, constipation. Whereas DS was born with a bowel obstruction caused by meconium illeus and he tends to have more sinus issues.
DS's sweat test as mentioned was 32, the granddaughter's I think was well over 100. They both have two copies of delta f508 yet sweat tests done as babies -- results were VERY different.
DS's sweat test as mentioned was 32, the granddaughter's I think was well over 100. They both have two copies of delta f508 yet sweat tests done as babies -- results were VERY different.
A friend of mine's granddaughter is a few weeks younger than DS and has the same genetic mutation as DS; however, her symptoms were more upper respiratory in nature -- RSV, frequent upper respiratory infections, constipation. Whereas DS was born with a bowel obstruction caused by meconium illeus and he tends to have more sinus issues.
DS's sweat test as mentioned was 32, the granddaughter's I think was well over 100. They both have two copies of delta f508 yet sweat tests done as babies -- results were VERY different.
DS's sweat test as mentioned was 32, the granddaughter's I think was well over 100. They both have two copies of delta f508 yet sweat tests done as babies -- results were VERY different.
A friend of mine's granddaughter is a few weeks younger than DS and has the same genetic mutation as DS; however, her symptoms were more upper respiratory in nature -- RSV, frequent upper respiratory infections, constipation. Whereas DS was born with a bowel obstruction caused by meconium illeus and he tends to have more sinus issues.
DS's sweat test as mentioned was 32, the granddaughter's I think was well over 100. They both have two copies of delta f508 yet sweat tests done as babies -- results were VERY different.
DS's sweat test as mentioned was 32, the granddaughter's I think was well over 100. They both have two copies of delta f508 yet sweat tests done as babies -- results were VERY different.
A friend of mine's granddaughter is a few weeks younger than DS and has the same genetic mutation as DS; however, her symptoms were more upper respiratory in nature -- RSV, frequent upper respiratory infections, constipation. Whereas DS was born with a bowel obstruction caused by meconium illeus and he tends to have more sinus issues.
DS's sweat test as mentioned was 32, the granddaughter's I think was well over 100. They both have two copies of delta f508 yet sweat tests done as babies -- results were VERY different.
DS's sweat test as mentioned was 32, the granddaughter's I think was well over 100. They both have two copies of delta f508 yet sweat tests done as babies -- results were VERY different.