DS has never, ever gotten a good xray from our local hospital/cf clinic. Since he was a baby they showed thickening, infiltration, and a number of issues. Then he'd have ct and lung scans at the hospital in the city and would get a clear bill of health. We're not sure if locally they're not experienced enough to interpret CF xrays, if the techs aren't getting a clear enough picture... but it's gotten to the point that we refuse to get annual chest xrays done locally.
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Not-so-great CF appt...
- Thread starter kitomd21
- Start date
DS has never, ever gotten a good xray from our local hospital/cf clinic. Since he was a baby they showed thickening, infiltration, and a number of issues. Then he'd have ct and lung scans at the hospital in the city and would get a clear bill of health. We're not sure if locally they're not experienced enough to interpret CF xrays, if the techs aren't getting a clear enough picture... but it's gotten to the point that we refuse to get annual chest xrays done locally.
DS has never, ever gotten a good xray from our local hospital/cf clinic. Since he was a baby they showed thickening, infiltration, and a number of issues. Then he'd have ct and lung scans at the hospital in the city and would get a clear bill of health. We're not sure if locally they're not experienced enough to interpret CF xrays, if the techs aren't getting a clear enough picture... but it's gotten to the point that we refuse to get annual chest xrays done locally.
DS has never, ever gotten a good xray from our local hospital/cf clinic. Since he was a baby they showed thickening, infiltration, and a number of issues. Then he'd have ct and lung scans at the hospital in the city and would get a clear bill of health. We're not sure if locally they're not experienced enough to interpret CF xrays, if the techs aren't getting a clear enough picture... but it's gotten to the point that we refuse to get annual chest xrays done locally.
DS has never, ever gotten a good xray from our local hospital/cf clinic. Since he was a baby they showed thickening, infiltration, and a number of issues. Then he'd have ct and lung scans at the hospital in the city and would get a clear bill of health. We're not sure if locally they're not experienced enough to interpret CF xrays, if the techs aren't getting a clear enough picture... but it's gotten to the point that we refuse to get annual chest xrays done locally.
maggie has been on Pulmozyme since she was 2 1/2 years old. At that time she was having a very difficult time; needing a bronch, she had cultured MRSA for the first time and needed to be treated aggressively. I remember the doc after the bronch saying how she had so much inflammation for a child her age; and some mucus in her airway. The doc treated her aggressively and said it would give her another 6 months or so of not needing the hospital. I am afraid to say it but it's been 4 years since that doc said that and Maggie has not been admitted for resp illness. We are diligent and aggresive and her PFT are >100% so med adjustments , being flexible and trying what works for your child can make a difference. Her last CXR was ok but she has had ones that are not. I understand when they say changes on the CXR is sounds awful to a mother's ear but the doc did say it was reversible so that should be very encouraging.
maggie has been on Pulmozyme since she was 2 1/2 years old. At that time she was having a very difficult time; needing a bronch, she had cultured MRSA for the first time and needed to be treated aggressively. I remember the doc after the bronch saying how she had so much inflammation for a child her age; and some mucus in her airway. The doc treated her aggressively and said it would give her another 6 months or so of not needing the hospital. I am afraid to say it but it's been 4 years since that doc said that and Maggie has not been admitted for resp illness. We are diligent and aggresive and her PFT are >100% so med adjustments , being flexible and trying what works for your child can make a difference. Her last CXR was ok but she has had ones that are not. I understand when they say changes on the CXR is sounds awful to a mother's ear but the doc did say it was reversible so that should be very encouraging.
maggie has been on Pulmozyme since she was 2 1/2 years old. At that time she was having a very difficult time; needing a bronch, she had cultured MRSA for the first time and needed to be treated aggressively. I remember the doc after the bronch saying how she had so much inflammation for a child her age; and some mucus in her airway. The doc treated her aggressively and said it would give her another 6 months or so of not needing the hospital. I am afraid to say it but it's been 4 years since that doc said that and Maggie has not been admitted for resp illness. We are diligent and aggresive and her PFT are >100% so med adjustments , being flexible and trying what works for your child can make a difference. Her last CXR was ok but she has had ones that are not. I understand when they say changes on the CXR is sounds awful to a mother's ear but the doc did say it was reversible so that should be very encouraging.
maggie has been on Pulmozyme since she was 2 1/2 years old. At that time she was having a very difficult time; needing a bronch, she had cultured MRSA for the first time and needed to be treated aggressively. I remember the doc after the bronch saying how she had so much inflammation for a child her age; and some mucus in her airway. The doc treated her aggressively and said it would give her another 6 months or so of not needing the hospital. I am afraid to say it but it's been 4 years since that doc said that and Maggie has not been admitted for resp illness. We are diligent and aggresive and her PFT are >100% so med adjustments , being flexible and trying what works for your child can make a difference. Her last CXR was ok but she has had ones that are not. I understand when they say changes on the CXR is sounds awful to a mother's ear but the doc did say it was reversible so that should be very encouraging.
maggie has been on Pulmozyme since she was 2 1/2 years old. At that time she was having a very difficult time; needing a bronch, she had cultured MRSA for the first time and needed to be treated aggressively. I remember the doc after the bronch saying how she had so much inflammation for a child her age; and some mucus in her airway. The doc treated her aggressively and said it would give her another 6 months or so of not needing the hospital. I am afraid to say it but it's been 4 years since that doc said that and Maggie has not been admitted for resp illness. We are diligent and aggresive and her PFT are >100% so med adjustments , being flexible and trying what works for your child can make a difference. Her last CXR was ok but she has had ones that are not. I understand when they say changes on the CXR is sounds awful to a mother's ear but the doc did say it was reversible so that should be very encouraging.
JennyCoulon
New member
Our oldest who is 10 has been on Pulmozyme since he was about 4. We have a now 4 year old and I asked them when they would start him on it. They said that they usually do if their is inflamation or a change in the x-ray. My oldest has normal x-rays now and thankfully hasn't cultured for Pseudomonias, or MRSA, knock on wood. I would think that they would be starting our youngest on it soon. It seems like a very good drug especially to help thin out the mucus.
JennyCoulon
New member
Our oldest who is 10 has been on Pulmozyme since he was about 4. We have a now 4 year old and I asked them when they would start him on it. They said that they usually do if their is inflamation or a change in the x-ray. My oldest has normal x-rays now and thankfully hasn't cultured for Pseudomonias, or MRSA, knock on wood. I would think that they would be starting our youngest on it soon. It seems like a very good drug especially to help thin out the mucus.
JennyCoulon
New member
Our oldest who is 10 has been on Pulmozyme since he was about 4. We have a now 4 year old and I asked them when they would start him on it. They said that they usually do if their is inflamation or a change in the x-ray. My oldest has normal x-rays now and thankfully hasn't cultured for Pseudomonias, or MRSA, knock on wood. I would think that they would be starting our youngest on it soon. It seems like a very good drug especially to help thin out the mucus.
JennyCoulon
New member
Our oldest who is 10 has been on Pulmozyme since he was about 4. We have a now 4 year old and I asked them when they would start him on it. They said that they usually do if their is inflamation or a change in the x-ray. My oldest has normal x-rays now and thankfully hasn't cultured for Pseudomonias, or MRSA, knock on wood. I would think that they would be starting our youngest on it soon. It seems like a very good drug especially to help thin out the mucus.
JennyCoulon
New member
Our oldest who is 10 has been on Pulmozyme since he was about 4. We have a now 4 year old and I asked them when they would start him on it. They said that they usually do if their is inflamation or a change in the x-ray. My oldest has normal x-rays now and thankfully hasn't cultured for Pseudomonias, or MRSA, knock on wood. I would think that they would be starting our youngest on it soon. It seems like a very good drug especially to help thin out the mucus.