When Sheila was dx at 7 years old her Fev 1 was at 104 percent. When she turned 8 she started vest therapy twice a day, pulmozyme, and albuterol. During that year her PFT's started to drop and her FEV 1 was down to about 97-98. That was still not too bad. Her health has been good and the doctor agreed that we could try taking her off pulmozyme and albuterol unless we see her take a turn for the worse. Since she has been off all of these meds, her numbers are back up to 104. Just wondering if anyone else has gone off meds and seen improvement in lung function. By the way, I am not writing this so others will try it. I am only curious why this might be happening.
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- Thread starter grsswspr
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When Sheila was dx at 7 years old her Fev 1 was at 104 percent. When she turned 8 she started vest therapy twice a day, pulmozyme, and albuterol. During that year her PFT's started to drop and her FEV 1 was down to about 97-98. That was still not too bad. Her health has been good and the doctor agreed that we could try taking her off pulmozyme and albuterol unless we see her take a turn for the worse. Since she has been off all of these meds, her numbers are back up to 104. Just wondering if anyone else has gone off meds and seen improvement in lung function. By the way, I am not writing this so others will try it. I am only curious why this might be happening.
When Sheila was dx at 7 years old her Fev 1 was at 104 percent. When she turned 8 she started vest therapy twice a day, pulmozyme, and albuterol. During that year her PFT's started to drop and her FEV 1 was down to about 97-98. That was still not too bad. Her health has been good and the doctor agreed that we could try taking her off pulmozyme and albuterol unless we see her take a turn for the worse. Since she has been off all of these meds, her numbers are back up to 104. Just wondering if anyone else has gone off meds and seen improvement in lung function. By the way, I am not writing this so others will try it. I am only curious why this might be happening.
When Sheila was dx at 7 years old her Fev 1 was at 104 percent. When she turned 8 she started vest therapy twice a day, pulmozyme, and albuterol. During that year her PFT's started to drop and her FEV 1 was down to about 97-98. That was still not too bad. Her health has been good and the doctor agreed that we could try taking her off pulmozyme and albuterol unless we see her take a turn for the worse. Since she has been off all of these meds, her numbers are back up to 104. Just wondering if anyone else has gone off meds and seen improvement in lung function. By the way, I am not writing this so others will try it. I am only curious why this might be happening.
When Sheila was dx at 7 years old her Fev 1 was at 104 percent. When she turned 8 she started vest therapy twice a day, pulmozyme, and albuterol. During that year her PFT's started to drop and her FEV 1 was down to about 97-98. That was still not too bad. Her health has been good and the doctor agreed that we could try taking her off pulmozyme and albuterol unless we see her take a turn for the worse. Since she has been off all of these meds, her numbers are back up to 104. Just wondering if anyone else has gone off meds and seen improvement in lung function. By the way, I am not writing this so others will try it. I am only curious why this might be happening.
Some of the nebulized drugs my son takes say a side effect can be a tightening of airways - so they advise albuterol be done first. Always seemed like an unfortunate side effect for kids whose lungs we're trying to open up. But your experience makes me wonder now if some patients get more of the tightening effect and not enough of the dilation effect. I'm going to have to ask my boy's doctor about that one at the next visit.
Some of the nebulized drugs my son takes say a side effect can be a tightening of airways - so they advise albuterol be done first. Always seemed like an unfortunate side effect for kids whose lungs we're trying to open up. But your experience makes me wonder now if some patients get more of the tightening effect and not enough of the dilation effect. I'm going to have to ask my boy's doctor about that one at the next visit.
Some of the nebulized drugs my son takes say a side effect can be a tightening of airways - so they advise albuterol be done first. Always seemed like an unfortunate side effect for kids whose lungs we're trying to open up. But your experience makes me wonder now if some patients get more of the tightening effect and not enough of the dilation effect. I'm going to have to ask my boy's doctor about that one at the next visit.
Some of the nebulized drugs my son takes say a side effect can be a tightening of airways - so they advise albuterol be done first. Always seemed like an unfortunate side effect for kids whose lungs we're trying to open up. But your experience makes me wonder now if some patients get more of the tightening effect and not enough of the dilation effect. I'm going to have to ask my boy's doctor about that one at the next visit.
Some of the nebulized drugs my son takes say a side effect can be a tightening of airways - so they advise albuterol be done first. Always seemed like an unfortunate side effect for kids whose lungs we're trying to open up. But your experience makes me wonder now if some patients get more of the tightening effect and not enough of the dilation effect. I'm going to have to ask my boy's doctor about that one at the next visit.