Not yet diagnosed/testing next week

[Aidenmurphy]

My name is Rikki and our son (Aiden) is 3 in August, was diagnosed w/ asthma last Dec, he's been on pulmacorte nebulizer, multiple allergy medicines that aren't working, and nasonex. He's been at his worse in April and May, coughs and gags and throws up mucus in the mornings, constant ear infections, croupe multiple times, pnemonia, at 8 months old he had an intusseption, (intestine blockage) We go in to Childrens Mercy in our area on Wednesday for an upper GI x-ray, chest x-ray and sweat test after seeing the allergy/asthma dr for the 2nd time and he said that he doesn't think it's asthma he has cause the nebulizer sin't helping any other of his symptoms (runny nose, cough, ear drainage, mucus build up), so he's referred us to a pulmenologist. Not sure if I or dad carries the CF gene. Does this sound like it could be a possibility?<img src="i/expressions/face-icon-small-confused.gif" border="0">

 

[Aidenmurphy]

My name is Rikki and our son (Aiden) is 3 in August, was diagnosed w/ asthma last Dec, he's been on pulmacorte nebulizer, multiple allergy medicines that aren't working, and nasonex. He's been at his worse in April and May, coughs and gags and throws up mucus in the mornings, constant ear infections, croupe multiple times, pnemonia, at 8 months old he had an intusseption, (intestine blockage) We go in to Childrens Mercy in our area on Wednesday for an upper GI x-ray, chest x-ray and sweat test after seeing the allergy/asthma dr for the 2nd time and he said that he doesn't think it's asthma he has cause the nebulizer sin't helping any other of his symptoms (runny nose, cough, ear drainage, mucus build up), so he's referred us to a pulmenologist. Not sure if I or dad carries the CF gene. Does this sound like it could be a possibility?<img src="i/expressions/face-icon-small-confused.gif" border="0">

 

[Aidenmurphy]

My name is Rikki and our son (Aiden) is 3 in August, was diagnosed w/ asthma last Dec, he's been on pulmacorte nebulizer, multiple allergy medicines that aren't working, and nasonex. He's been at his worse in April and May, coughs and gags and throws up mucus in the mornings, constant ear infections, croupe multiple times, pnemonia, at 8 months old he had an intusseption, (intestine blockage) We go in to Childrens Mercy in our area on Wednesday for an upper GI x-ray, chest x-ray and sweat test after seeing the allergy/asthma dr for the 2nd time and he said that he doesn't think it's asthma he has cause the nebulizer sin't helping any other of his symptoms (runny nose, cough, ear drainage, mucus build up), so he's referred us to a pulmenologist. Not sure if I or dad carries the CF gene. Does this sound like it could be a possibility?<img src="i/expressions/face-icon-small-confused.gif" border="0">

 

[Mommafirst]

Sounds like a possibility to me. Though its so hard to tell. What about his weight? Does he gain okay? Does he seem to have intestinal issues other than the blockage?

I'm sorry you are going through this. Its hard!!

The sweat test is a good start. But I urge you that since there is a reason to test, to get the actual sweat test numbers and push for more testing if it comes back questionable.

Good luck and welcome to the site. Ask lots of questions as they come up. We can help.

 

[Mommafirst]

Sounds like a possibility to me. Though its so hard to tell. What about his weight? Does he gain okay? Does he seem to have intestinal issues other than the blockage?

I'm sorry you are going through this. Its hard!!

The sweat test is a good start. But I urge you that since there is a reason to test, to get the actual sweat test numbers and push for more testing if it comes back questionable.

Good luck and welcome to the site. Ask lots of questions as they come up. We can help.

 

[Mommafirst]

Sounds like a possibility to me. Though its so hard to tell. What about his weight? Does he gain okay? Does he seem to have intestinal issues other than the blockage?

I'm sorry you are going through this. Its hard!!

The sweat test is a good start. But I urge you that since there is a reason to test, to get the actual sweat test numbers and push for more testing if it comes back questionable.

Good luck and welcome to the site. Ask lots of questions as they come up. We can help.

 

[JazzysMom]

I hope we gave you some helpful info in chat. Please update us and definitely ask any further questions. HUGS to you for now!

 

[JazzysMom]

I hope we gave you some helpful info in chat. Please update us and definitely ask any further questions. HUGS to you for now!

 

[JazzysMom]

I hope we gave you some helpful info in chat. Please update us and definitely ask any further questions. HUGS to you for now!

 

[Aidenmurphy]

His weight......at a dr's appt a few months ago he was 38 lbs and then last week he was at 32 lbs and he eats all the time.
His stool..... He poops probably 4-5 times a day, and then some days maybe once

 

[Aidenmurphy]

His weight......at a dr's appt a few months ago he was 38 lbs and then last week he was at 32 lbs and he eats all the time.
His stool..... He poops probably 4-5 times a day, and then some days maybe once

 

[Aidenmurphy]

His weight......at a dr's appt a few months ago he was 38 lbs and then last week he was at 32 lbs and he eats all the time.
His stool..... He poops probably 4-5 times a day, and then some days maybe once

 

[Aidenmurphy]

Melissa
Oh you guys were lots of help! I am glad I decided to read some blogs they are really helpfull too!! I will give an update on wednesday on what they did and what answers we got

 

[Aidenmurphy]

Melissa
Oh you guys were lots of help! I am glad I decided to read some blogs they are really helpfull too!! I will give an update on wednesday on what they did and what answers we got

 

[Aidenmurphy]

Melissa
Oh you guys were lots of help! I am glad I decided to read some blogs they are really helpfull too!! I will give an update on wednesday on what they did and what answers we got

 

[NoExcuses]

Any updates?

Did you get blood drawn for the Ambry Amplified test?

 

[NoExcuses]

Any updates?

Did you get blood drawn for the Ambry Amplified test?

 

[NoExcuses]

Any updates?

Did you get blood drawn for the Ambry Amplified test?

 

[NoExcuses]

Any updates?

Did you get blood drawn for the Ambry Amplified test?

 

[NoExcuses]

Any updates?

Did you get blood drawn for the Ambry Amplified test?