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A
Aidenmurphy
Guest
Yeah I posted an update under the adults......but not much of an update we go for the sweat test on june 7th, but he has some GI issues we weren't aware of
A
Aidenmurphy
Guest
Yeah I posted an update under the adults......but not much of an update we go for the sweat test on june 7th, but he has some GI issues we weren't aware of
A
Aidenmurphy
Guest
Yeah I posted an update under the adults......but not much of an update we go for the sweat test on june 7th, but he has some GI issues we weren't aware of
A
Aidenmurphy
Guest
Yeah I posted an update under the adults......but not much of an update we go for the sweat test on june 7th, but he has some GI issues we weren't aware of
A
Aidenmurphy
Guest
Yeah I posted an update under the adults......but not much of an update we go for the sweat test on june 7th, but he has some GI issues we weren't aware of
A
Aidenmurphy
Guest
Yeah I posted an update under the adults......but not much of an update we go for the sweat test on june 7th, but he has some GI issues we weren't aware of
grannylana
New member
Hello,
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be improving with it so the waiting is some better. They won't give us a final diagnosis of CF without the mutation found but at least they are treating her. We have 2 low positive sweat tests.
We did change hospitals when our calls were not returned until the next day or maybe even for 2 days. I know it is hard to change but it was the best thing we ever did. The drive is twice as far but the peace of being listened to is so great.
Good Luck and WE all are waiting with you!
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be improving with it so the waiting is some better. They won't give us a final diagnosis of CF without the mutation found but at least they are treating her. We have 2 low positive sweat tests.
We did change hospitals when our calls were not returned until the next day or maybe even for 2 days. I know it is hard to change but it was the best thing we ever did. The drive is twice as far but the peace of being listened to is so great.
Good Luck and WE all are waiting with you!
grannylana
New member
Hello,
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be improving with it so the waiting is some better. They won't give us a final diagnosis of CF without the mutation found but at least they are treating her. We have 2 low positive sweat tests.
We did change hospitals when our calls were not returned until the next day or maybe even for 2 days. I know it is hard to change but it was the best thing we ever did. The drive is twice as far but the peace of being listened to is so great.
Good Luck and WE all are waiting with you!
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be improving with it so the waiting is some better. They won't give us a final diagnosis of CF without the mutation found but at least they are treating her. We have 2 low positive sweat tests.
We did change hospitals when our calls were not returned until the next day or maybe even for 2 days. I know it is hard to change but it was the best thing we ever did. The drive is twice as far but the peace of being listened to is so great.
Good Luck and WE all are waiting with you!
grannylana
New member
Hello,
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be improving with it so the waiting is some better. They won't give us a final diagnosis of CF without the mutation found but at least they are treating her. We have 2 low positive sweat tests.
We did change hospitals when our calls were not returned until the next day or maybe even for 2 days. I know it is hard to change but it was the best thing we ever did. The drive is twice as far but the peace of being listened to is so great.
Good Luck and WE all are waiting with you!
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be improving with it so the waiting is some better. They won't give us a final diagnosis of CF without the mutation found but at least they are treating her. We have 2 low positive sweat tests.
We did change hospitals when our calls were not returned until the next day or maybe even for 2 days. I know it is hard to change but it was the best thing we ever did. The drive is twice as far but the peace of being listened to is so great.
Good Luck and WE all are waiting with you!
grannylana
New member
Hello,
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be improving with it so the waiting is some better. They won't give us a final diagnosis of CF without the mutation found but at least they are treating her. We have 2 low positive sweat tests.
We did change hospitals when our calls were not returned until the next day or maybe even for 2 days. I know it is hard to change but it was the best thing we ever did. The drive is twice as far but the peace of being listened to is so great.
Good Luck and WE all are waiting with you!
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be improving with it so the waiting is some better. They won't give us a final diagnosis of CF without the mutation found but at least they are treating her. We have 2 low positive sweat tests.
We did change hospitals when our calls were not returned until the next day or maybe even for 2 days. I know it is hard to change but it was the best thing we ever did. The drive is twice as far but the peace of being listened to is so great.
Good Luck and WE all are waiting with you!
grannylana
New member
Hello,
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be improving with it so the waiting is some better. They won't give us a final diagnosis of CF without the mutation found but at least they are treating her. We have 2 low positive sweat tests.
We did change hospitals when our calls were not returned until the next day or maybe even for 2 days. I know it is hard to change but it was the best thing we ever did. The drive is twice as far but the peace of being listened to is so great.
Good Luck and WE all are waiting with you!
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be improving with it so the waiting is some better. They won't give us a final diagnosis of CF without the mutation found but at least they are treating her. We have 2 low positive sweat tests.
We did change hospitals when our calls were not returned until the next day or maybe even for 2 days. I know it is hard to change but it was the best thing we ever did. The drive is twice as far but the peace of being listened to is so great.
Good Luck and WE all are waiting with you!
grannylana
New member
Hello,
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be improving with it so the waiting is some better. They won't give us a final diagnosis of CF without the mutation found but at least they are treating her. We have 2 low positive sweat tests.
We did change hospitals when our calls were not returned until the next day or maybe even for 2 days. I know it is hard to change but it was the best thing we ever did. The drive is twice as far but the peace of being listened to is so great.
Good Luck and WE all are waiting with you!
I read your update on the adults page and I too am appalled at the stupidity of some people that are allowed to call themselves "doctors"!
The waiting is the hardest, I can relate to that since we are still waiting also. However they have began treating her for CF and she seems to be improving with it so the waiting is some better. They won't give us a final diagnosis of CF without the mutation found but at least they are treating her. We have 2 low positive sweat tests.
We did change hospitals when our calls were not returned until the next day or maybe even for 2 days. I know it is hard to change but it was the best thing we ever did. The drive is twice as far but the peace of being listened to is so great.
Good Luck and WE all are waiting with you!