LuvMy2Girls
New member
Someone couldn't remeber my story, so I'm going to sum it up b/c it's long. At birth she was fullterm and 4 days late. She came out 6 lbs 8 oz. They said healthy, I said different. Her left foot was turned to the left at a 90 degree angle and her chest sank in so far you could see her ribs when she breathed. She also had NO fat on her. she was literally skin and bones. I mean her skin was actually flapped over and saggy and wrinkeley. At 4 wks I put her on formula b/c she wasn't sucking out any Breastmilk and it finally dried up. Then Nutramigen for milk allergies. At 2 mths she was hospitalized for a resp. virus and lung infection and fluid on both lungs and failure to thrive. She was under 7 lbs. at 2 mths! After the third hosp. visit to the er and then being admitted. They called DHR and said I wasn't feeding her. They also said they tested for cf and they actually didn't. This is Children's Hospital in Bham, Alabama. That is the best place. People come from all over to go there. It is supposed to have the best pulmonary clinic. This past Monday she went to the doctor finally. I asked again and again for her blood test results and SECOND sweat test results and they kept saying let me get someone for you to tell you. Never got them. Asked again...same thing. Then they want to tell me it is all from ACID REFLUX! Acid reflux does not cause rectal prolapse or slimy poop! Also, they tell me Nutramigen is not for milk allergies! Geniuses, I tell you! They couldn't give me advice on what to feed her b/c she refuses baby food. They send me to the lab for more blood to get taken from her. I'm pregnant, so I start crying b/c she's not crying...she's being a big girl. She just looked at the needle and started jabbering to the nurse. She can't even sit up and she is 8 mths old. She's almost 18 lbs, which from what I hear is unusual if it is cf b/c of failure to thrive. But at this age she should be active but isn't. She rolls, that's it. I am at my wits end. This is the best place and they suck! I was supposed to see Dr. Haygood ( Ilike him) and they make me see someone new!! I don't want to act crazy but ti is starting to look like I'm going to have to to get things done. So, they make me put her on pulmacort only once a day instead of twice and back on Prevacid. She is not even spitting up. Her poop is still slimy green and mucousy. They also said Nutramigen does that. It didn't di that with my first one. Speaking of which, My oldest who is 2 1/2 yrs old has not had a solid B.M. in almost 2 mths. Her eyes always have dark circles and she always acts sick and tired. Now don't get me wrong, she has her energetic days! But mostly tired. She gats colds all the time. Any ideas what it could be? She had a blood test and they said her platelets were low. That was it. Anyway I know this is long but I kind of had to vent.