Ok now this is REAL

S

Sevenstars

New member
It's a small world, indeed.

Sometimes I worry that my doctor is reading everything I say here. <img src="i/expressions/face-icon-small-smile.gif" border="0">

It seems tough right now, but she's getting the proper treatment so things will get better. Glad you both found the site, we can answer just about any questions you guys have. I hope your daughter/grandaughter feels better soon.
 
S

Sevenstars

New member
It's a small world, indeed.

Sometimes I worry that my doctor is reading everything I say here. <img src="i/expressions/face-icon-small-smile.gif" border="0">

It seems tough right now, but she's getting the proper treatment so things will get better. Glad you both found the site, we can answer just about any questions you guys have. I hope your daughter/grandaughter feels better soon.
 
S

Sevenstars

New member
It's a small world, indeed.

Sometimes I worry that my doctor is reading everything I say here. <img src="i/expressions/face-icon-small-smile.gif" border="0">

It seems tough right now, but she's getting the proper treatment so things will get better. Glad you both found the site, we can answer just about any questions you guys have. I hope your daughter/grandaughter feels better soon.
 
S

Sevenstars

New member
It's a small world, indeed.

Sometimes I worry that my doctor is reading everything I say here. <img src="i/expressions/face-icon-small-smile.gif" border="0">

It seems tough right now, but she's getting the proper treatment so things will get better. Glad you both found the site, we can answer just about any questions you guys have. I hope your daughter/grandaughter feels better soon.
 
S

Sevenstars

New member
It's a small world, indeed.
<br />
<br />Sometimes I worry that my doctor is reading everything I say here. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />It seems tough right now, but she's getting the proper treatment so things will get better. Glad you both found the site, we can answer just about any questions you guys have. I hope your daughter/grandaughter feels better soon.
 
Z

zeeannie

Guest
Hang in there, it will get better. My DD also had an obstructed bowel that perforated. Went thru the surgery, had a bag, port, the whole thing. She was still in the NICU (preemie: 4.5 lbs at birth) during all this, so it was actually easier for me than it sounds like it is for you guys. She was three months old before she came home. You're doing all the right things, enzymes, and we started CPT early as well, for the reason mentioned earlier, just to get her used to it.
Keep us posted!
 
Z

zeeannie

Guest
Hang in there, it will get better. My DD also had an obstructed bowel that perforated. Went thru the surgery, had a bag, port, the whole thing. She was still in the NICU (preemie: 4.5 lbs at birth) during all this, so it was actually easier for me than it sounds like it is for you guys. She was three months old before she came home. You're doing all the right things, enzymes, and we started CPT early as well, for the reason mentioned earlier, just to get her used to it.
Keep us posted!
 
Z

zeeannie

Guest
Hang in there, it will get better. My DD also had an obstructed bowel that perforated. Went thru the surgery, had a bag, port, the whole thing. She was still in the NICU (preemie: 4.5 lbs at birth) during all this, so it was actually easier for me than it sounds like it is for you guys. She was three months old before she came home. You're doing all the right things, enzymes, and we started CPT early as well, for the reason mentioned earlier, just to get her used to it.
Keep us posted!
 
Z

zeeannie

Guest
Hang in there, it will get better. My DD also had an obstructed bowel that perforated. Went thru the surgery, had a bag, port, the whole thing. She was still in the NICU (preemie: 4.5 lbs at birth) during all this, so it was actually easier for me than it sounds like it is for you guys. She was three months old before she came home. You're doing all the right things, enzymes, and we started CPT early as well, for the reason mentioned earlier, just to get her used to it.
Keep us posted!
 
Z

zeeannie

Guest
Hang in there, it will get better. My DD also had an obstructed bowel that perforated. Went thru the surgery, had a bag, port, the whole thing. She was still in the NICU (preemie: 4.5 lbs at birth) during all this, so it was actually easier for me than it sounds like it is for you guys. She was three months old before she came home. You're doing all the right things, enzymes, and we started CPT early as well, for the reason mentioned earlier, just to get her used to it.
<br />Keep us posted!
 
H

Hughett

New member
<UL>Our little guy had some of the same thing but we didn't know that he had CF until later. We were lucky though. His bowels cleared out after the surgeon did a couple of looks up there. Let me tell ya, we were never so happy to see some poop. I am on the same page with the people that have already listed. Raising a child with CF is different but not bad. Its just getting thru that first bit thats was the hardest for us. </UL>
<UL>The only thing that I might add is that the section of the small intestine that is nearest the stomach is called the duodenum. It's about 10 inches long and has lots of mucus secreting glands and is where the gall bladder & pancreas dump. The great news is that the Jejunum (which is the part of the small intestine past that first 10 inches) is the part of the body where most of the nutrient abortion occurs. That part is about 8 feet long. So in terms of CF its good that the best absorptive tissue is not being touched. </UL>
I don't have much else that to add that everyone else has already talked a little on. Percussion, Nebs sometimes, and enzymes will become the norm. The most helpful thing that I ever found to help me in understanding CFand answers to my questions was to go to this site. Come here often, post any questions, use the chat function, and take advantage of all the experience here. I don't know how we would have done it without the support we found here. Just so you can see that a child's life with CF is not all crazy and bad, you can look at some videos I made of our little guy. One shows his percussion. I am so glad you found this site.
<UL>http://youtube.com/user/FCSmajor </UL>
 
H

Hughett

New member
<UL>Our little guy had some of the same thing but we didn't know that he had CF until later. We were lucky though. His bowels cleared out after the surgeon did a couple of looks up there. Let me tell ya, we were never so happy to see some poop. I am on the same page with the people that have already listed. Raising a child with CF is different but not bad. Its just getting thru that first bit thats was the hardest for us. </UL>
<UL>The only thing that I might add is that the section of the small intestine that is nearest the stomach is called the duodenum. It's about 10 inches long and has lots of mucus secreting glands and is where the gall bladder & pancreas dump. The great news is that the Jejunum (which is the part of the small intestine past that first 10 inches) is the part of the body where most of the nutrient abortion occurs. That part is about 8 feet long. So in terms of CF its good that the best absorptive tissue is not being touched. </UL>
I don't have much else that to add that everyone else has already talked a little on. Percussion, Nebs sometimes, and enzymes will become the norm. The most helpful thing that I ever found to help me in understanding CFand answers to my questions was to go to this site. Come here often, post any questions, use the chat function, and take advantage of all the experience here. I don't know how we would have done it without the support we found here. Just so you can see that a child's life with CF is not all crazy and bad, you can look at some videos I made of our little guy. One shows his percussion. I am so glad you found this site.
<UL>http://youtube.com/user/FCSmajor </UL>
 
H

Hughett

New member
<UL>Our little guy had some of the same thing but we didn't know that he had CF until later. We were lucky though. His bowels cleared out after the surgeon did a couple of looks up there. Let me tell ya, we were never so happy to see some poop. I am on the same page with the people that have already listed. Raising a child with CF is different but not bad. Its just getting thru that first bit thats was the hardest for us. </UL>
<UL>The only thing that I might add is that the section of the small intestine that is nearest the stomach is called the duodenum. It's about 10 inches long and has lots of mucus secreting glands and is where the gall bladder & pancreas dump. The great news is that the Jejunum (which is the part of the small intestine past that first 10 inches) is the part of the body where most of the nutrient abortion occurs. That part is about 8 feet long. So in terms of CF its good that the best absorptive tissue is not being touched. </UL>
I don't have much else that to add that everyone else has already talked a little on. Percussion, Nebs sometimes, and enzymes will become the norm. The most helpful thing that I ever found to help me in understanding CFand answers to my questions was to go to this site. Come here often, post any questions, use the chat function, and take advantage of all the experience here. I don't know how we would have done it without the support we found here. Just so you can see that a child's life with CF is not all crazy and bad, you can look at some videos I made of our little guy. One shows his percussion. I am so glad you found this site.
<UL>http://youtube.com/user/FCSmajor </UL>
 
H

Hughett

New member
<UL>Our little guy had some of the same thing but we didn't know that he had CF until later. We were lucky though. His bowels cleared out after the surgeon did a couple of looks up there. Let me tell ya, we were never so happy to see some poop. I am on the same page with the people that have already listed. Raising a child with CF is different but not bad. Its just getting thru that first bit thats was the hardest for us. </UL>
<UL>The only thing that I might add is that the section of the small intestine that is nearest the stomach is called the duodenum. It's about 10 inches long and has lots of mucus secreting glands and is where the gall bladder & pancreas dump. The great news is that the Jejunum (which is the part of the small intestine past that first 10 inches) is the part of the body where most of the nutrient abortion occurs. That part is about 8 feet long. So in terms of CF its good that the best absorptive tissue is not being touched. </UL>
I don't have much else that to add that everyone else has already talked a little on. Percussion, Nebs sometimes, and enzymes will become the norm. The most helpful thing that I ever found to help me in understanding CFand answers to my questions was to go to this site. Come here often, post any questions, use the chat function, and take advantage of all the experience here. I don't know how we would have done it without the support we found here. Just so you can see that a child's life with CF is not all crazy and bad, you can look at some videos I made of our little guy. One shows his percussion. I am so glad you found this site.
<UL>http://youtube.com/user/FCSmajor </UL>
 
H

Hughett

New member
<UL>Our little guy had some of the same thing but we didn't know that he had CF until later. We were lucky though. His bowels cleared out after the surgeon did a couple of looks up there. Let me tell ya, we were never so happy to see some poop. I am on the same page with the people that have already listed. Raising a child with CF is different but not bad. Its just getting thru that first bit thats was the hardest for us. </UL>
<UL>The only thing that I might add is that the section of the small intestine that is nearest the stomach is called the duodenum. It's about 10 inches long and has lots of mucus secreting glands and is where the gall bladder & pancreas dump. The great news is that the Jejunum (which is the part of the small intestine past that first 10 inches) is the part of the body where most of the nutrient abortion occurs. That part is about 8 feet long. So in terms of CF its good that the best absorptive tissue is not being touched. </UL>
I don't have much else that to add that everyone else has already talked a little on. Percussion, Nebs sometimes, and enzymes will become the norm. The most helpful thing that I ever found to help me in understanding CFand answers to my questions was to go to this site. Come here often, post any questions, use the chat function, and take advantage of all the experience here. I don't know how we would have done it without the support we found here. Just so you can see that a child's life with CF is not all crazy and bad, you can look at some videos I made of our little guy. One shows his percussion. I am so glad you found this site.
<UL>http://youtube.com/user/FCSmajor </UL>
 
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