mamaScarlett
Active member
Its been a while.
I've been reading some of your stories of new babies, babies soon to come-and a huge huge congratulations to all of you. I'll be reading more details and catching up more soon.
To hopeful moms that are waiting and hoping-I've been there and my heart goes out to you and warm thoughts.
The age old battle continues...what should I do???
God, how do you all cope with it?! This disease is exhausting to manage day in and day out, the constant worry and work, and worry for the future. I want to do the right thing for my daughter, and the right thing for me too. But I just don't know what it is yet.
My LO is almost 2 1/2 now. I never thought I'd even get to have her. If you don't have a child yet, of course i know youre thinking-god, you have one, just be grateful! I know, but believe me, its not that easy. And its not about me.
I want my LO to have a sibling, to go through life with, cry with and be strong with.
For me, the decision to have a 2nd child is 10 times harder than the first decision.
For me, at this point I am as healthy as I was before I had my baby. So thats a huge accomplishment. My pfts are back up to baseline and I haven't been sick in a while.
If my lungs were bad it would be an obvious decision-no option. But now, I just don't know. Am I 'able' to have another baby?-Yes. Do I want to go through the work again, the worry-I don't know. I know its worth it, but its the worry.
I guess its the long term damage I worry about. Basically there is just no information out there on long term affects of pregnancy. There's case by case info, but each cf pregnancy and situation is sooooo different.
And there is this emotional side too-and for moms out there that are in the same debate I'm in, or have more than one child, see if you can relate to this at all: its the 'I don't deserve it' thing. I mean, I have CF!! Cf!! Wasn't I supposed to be dead by 12? And I was never supposed to have a child. OMG, I should just be grateful and shut up. Don't jinx what you've got, right? But should we sell ourselves short for the rest of our lives bc our parents were told we wouldn't live to 12? No, we shouldn't, but the downside is that I have to live with the worry and fear for the rest of my life.
All I can say, if you haven't yet been on the side I'm on you don't know. Once you have that baby you want to do everything in your being and soul to be the best parent. Thats why I sit on this Vest for 3 hours a day. Thats also why I want my daughter to have a sibling.
I appreciate anyone that took the time to read this. Of course I know no one can read this and say, you should do this, or that... But the thing is, NO ONE in my life (besides my hubby) can understand what it is to live day in and out with cf, and no one gets the uncertainty we deal with. People look at me and say-you look healthy, sure you can have another baby. But its not that simple.
Maybe I do worry too much-ok, I know I do.
If anyone can relate to any of this please yell out so I know I'm not alone!
thanks!!
xoxox
I've been reading some of your stories of new babies, babies soon to come-and a huge huge congratulations to all of you. I'll be reading more details and catching up more soon.
To hopeful moms that are waiting and hoping-I've been there and my heart goes out to you and warm thoughts.
The age old battle continues...what should I do???
God, how do you all cope with it?! This disease is exhausting to manage day in and day out, the constant worry and work, and worry for the future. I want to do the right thing for my daughter, and the right thing for me too. But I just don't know what it is yet.
My LO is almost 2 1/2 now. I never thought I'd even get to have her. If you don't have a child yet, of course i know youre thinking-god, you have one, just be grateful! I know, but believe me, its not that easy. And its not about me.
I want my LO to have a sibling, to go through life with, cry with and be strong with.
For me, the decision to have a 2nd child is 10 times harder than the first decision.
For me, at this point I am as healthy as I was before I had my baby. So thats a huge accomplishment. My pfts are back up to baseline and I haven't been sick in a while.
If my lungs were bad it would be an obvious decision-no option. But now, I just don't know. Am I 'able' to have another baby?-Yes. Do I want to go through the work again, the worry-I don't know. I know its worth it, but its the worry.
I guess its the long term damage I worry about. Basically there is just no information out there on long term affects of pregnancy. There's case by case info, but each cf pregnancy and situation is sooooo different.
And there is this emotional side too-and for moms out there that are in the same debate I'm in, or have more than one child, see if you can relate to this at all: its the 'I don't deserve it' thing. I mean, I have CF!! Cf!! Wasn't I supposed to be dead by 12? And I was never supposed to have a child. OMG, I should just be grateful and shut up. Don't jinx what you've got, right? But should we sell ourselves short for the rest of our lives bc our parents were told we wouldn't live to 12? No, we shouldn't, but the downside is that I have to live with the worry and fear for the rest of my life.
All I can say, if you haven't yet been on the side I'm on you don't know. Once you have that baby you want to do everything in your being and soul to be the best parent. Thats why I sit on this Vest for 3 hours a day. Thats also why I want my daughter to have a sibling.
I appreciate anyone that took the time to read this. Of course I know no one can read this and say, you should do this, or that... But the thing is, NO ONE in my life (besides my hubby) can understand what it is to live day in and out with cf, and no one gets the uncertainty we deal with. People look at me and say-you look healthy, sure you can have another baby. But its not that simple.
Maybe I do worry too much-ok, I know I do.
If anyone can relate to any of this please yell out so I know I'm not alone!
thanks!!
xoxox