One more question....

[lorrielou25]

My son just got the results of his sweat test back a few weeks ago, His number was 20. I am still a little worried, he still tast salty to me sometimes, just on his face, not arms, or trunk. Is some level of salt on the skin normal? His weight gain has picked up, about a pound a month, I just worry about false negetive results.

 

[lorrielou25]

My son just got the results of his sweat test back a few weeks ago, His number was 20. I am still a little worried, he still tast salty to me sometimes, just on his face, not arms, or trunk. Is some level of salt on the skin normal? His weight gain has picked up, about a pound a month, I just worry about false negetive results.

 

[lorrielou25]

My son just got the results of his sweat test back a few weeks ago, His number was 20. I am still a little worried, he still tast salty to me sometimes, just on his face, not arms, or trunk. Is some level of salt on the skin normal? His weight gain has picked up, about a pound a month, I just worry about false negetive results.

 

[NoExcuses]

Sweat tests are pretty old school and don't give accurate results.

Get an amplied Ambry genetic full panel. If you want the best chance of knowing if a kid has CF, this is the way to go....

 

[NoExcuses]

Sweat tests are pretty old school and don't give accurate results.

Get an amplied Ambry genetic full panel. If you want the best chance of knowing if a kid has CF, this is the way to go....

 

[NoExcuses]

Sweat tests are pretty old school and don't give accurate results.

Get an amplied Ambry genetic full panel. If you want the best chance of knowing if a kid has CF, this is the way to go....

 

[amber682]

First thing, I thought even with sweat tests, they do 2 just to be sure? And in my opinion they shouldn't even be used to rule out CF. Push for the full panel. Ambry tests for 99% of known mutations.

My son with CF tastes pretty salty on the face and hands, even the back of the hands, but I don't think his trunk does. But not everyone with CF tastes super salty anyway. And yes, some amount of salt on the skin could be normal. When I work out if my upper lip is sweaty it tastes very salty. I had a boss once at a restaurant who would literally have salt crystals on his shirt halfway through a busy night, and he didn't have CF.

 

[amber682]

First thing, I thought even with sweat tests, they do 2 just to be sure? And in my opinion they shouldn't even be used to rule out CF. Push for the full panel. Ambry tests for 99% of known mutations.

My son with CF tastes pretty salty on the face and hands, even the back of the hands, but I don't think his trunk does. But not everyone with CF tastes super salty anyway. And yes, some amount of salt on the skin could be normal. When I work out if my upper lip is sweaty it tastes very salty. I had a boss once at a restaurant who would literally have salt crystals on his shirt halfway through a busy night, and he didn't have CF.

 

[amber682]

First thing, I thought even with sweat tests, they do 2 just to be sure? And in my opinion they shouldn't even be used to rule out CF. Push for the full panel. Ambry tests for 99% of known mutations.

My son with CF tastes pretty salty on the face and hands, even the back of the hands, but I don't think his trunk does. But not everyone with CF tastes super salty anyway. And yes, some amount of salt on the skin could be normal. When I work out if my upper lip is sweaty it tastes very salty. I had a boss once at a restaurant who would literally have salt crystals on his shirt halfway through a busy night, and he didn't have CF.

 

[sweetwhite30]

I have salt crystals in my hair and scalp during the summer season and yes i taste salty but i dont have c.f but when you are a carrier of the c.f. gene and affected by it in some way you will taste salty and have some bowel issues.get some plant enzymes and it will help the weight.I even sweat salt alot in the summer as well...some carriers are affected but it is not been studied enough to know how many or what issues are main probs in carriers.I sweated a 59 and 60 is positive so sometimes this can and do happen .my 8 yr old is on plant enzymes as well his bowels are effected and he sweated 59 too...so carriers are affected...

 

[sweetwhite30]

I have salt crystals in my hair and scalp during the summer season and yes i taste salty but i dont have c.f but when you are a carrier of the c.f. gene and affected by it in some way you will taste salty and have some bowel issues.get some plant enzymes and it will help the weight.I even sweat salt alot in the summer as well...some carriers are affected but it is not been studied enough to know how many or what issues are main probs in carriers.I sweated a 59 and 60 is positive so sometimes this can and do happen .my 8 yr old is on plant enzymes as well his bowels are effected and he sweated 59 too...so carriers are affected...

 

[sweetwhite30]

I have salt crystals in my hair and scalp during the summer season and yes i taste salty but i dont have c.f but when you are a carrier of the c.f. gene and affected by it in some way you will taste salty and have some bowel issues.get some plant enzymes and it will help the weight.I even sweat salt alot in the summer as well...some carriers are affected but it is not been studied enough to know how many or what issues are main probs in carriers.I sweated a 59 and 60 is positive so sometimes this can and do happen .my 8 yr old is on plant enzymes as well his bowels are effected and he sweated 59 too...so carriers are affected...