opiates

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entropy

Guest
just wondering if anyone here is prescribed opiates for pain. it seems like the CF doctors I've met are very hesitant about prescribing any narcotics whatsoever, even for extreme pain.

because of this, when i broke my back and suffered a pulmonary embolism in july i opted to stay at the local hospital under the care of doctors who were lenient with pain meds but not very knowledgeable about CF. my doctor wanted me to go to the university hospital where he practices, but i knew that if i went they would not adequately treat my pain, and i didn't want to suffer, so i refused to go.

are most CF doctors like this?
 
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entropy

Guest
just wondering if anyone here is prescribed opiates for pain. it seems like the CF doctors I've met are very hesitant about prescribing any narcotics whatsoever, even for extreme pain.

because of this, when i broke my back and suffered a pulmonary embolism in july i opted to stay at the local hospital under the care of doctors who were lenient with pain meds but not very knowledgeable about CF. my doctor wanted me to go to the university hospital where he practices, but i knew that if i went they would not adequately treat my pain, and i didn't want to suffer, so i refused to go.

are most CF doctors like this?
 
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entropy

Guest
just wondering if anyone here is prescribed opiates for pain. it seems like the CF doctors I've met are very hesitant about prescribing any narcotics whatsoever, even for extreme pain.
<br />
<br />because of this, when i broke my back and suffered a pulmonary embolism in july i opted to stay at the local hospital under the care of doctors who were lenient with pain meds but not very knowledgeable about CF. my doctor wanted me to go to the university hospital where he practices, but i knew that if i went they would not adequately treat my pain, and i didn't want to suffer, so i refused to go.
<br />
<br />are most CF doctors like this?
 
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ej0820

New member
My CF doc only prescribes these kinds of drugs in extreme cases. He let me have some when I got my mediport put in and also let me take some as needed for pain associated with pleurisy a few years back. Otherwise, it's 600mg ibuprofen.

I don't know if this is the case with your CF doc, but the CF docs at my clinic are very hesitant to prescribe opiates/narcotics because these drugs can really depress your breathing and completely dry you out. They tend to have the same effect, or stronger, that benadryl does on the lungs in that breathing comfortably and getting junk out will be nearly impossible. I remember a post a while back about benadryl that I posted and someone mentioned that it makes them feel like they're coughing up tar-these drugs can do the same.

I, personally, have noticed it more with some than others. For example, percocet doesn't seem to dry me out as much as dalaudid (sp?) does, etc.

Hope this helps, I don't think it's just your clinic, I think it's more of a precautionary thing CF docs like to take. Why make the gunk stickier when there are other pain meds (even though they don't always cut it) to use?
 
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ej0820

New member
My CF doc only prescribes these kinds of drugs in extreme cases. He let me have some when I got my mediport put in and also let me take some as needed for pain associated with pleurisy a few years back. Otherwise, it's 600mg ibuprofen.

I don't know if this is the case with your CF doc, but the CF docs at my clinic are very hesitant to prescribe opiates/narcotics because these drugs can really depress your breathing and completely dry you out. They tend to have the same effect, or stronger, that benadryl does on the lungs in that breathing comfortably and getting junk out will be nearly impossible. I remember a post a while back about benadryl that I posted and someone mentioned that it makes them feel like they're coughing up tar-these drugs can do the same.

I, personally, have noticed it more with some than others. For example, percocet doesn't seem to dry me out as much as dalaudid (sp?) does, etc.

Hope this helps, I don't think it's just your clinic, I think it's more of a precautionary thing CF docs like to take. Why make the gunk stickier when there are other pain meds (even though they don't always cut it) to use?
 
E

ej0820

New member
My CF doc only prescribes these kinds of drugs in extreme cases. He let me have some when I got my mediport put in and also let me take some as needed for pain associated with pleurisy a few years back. Otherwise, it's 600mg ibuprofen.
<br />
<br />I don't know if this is the case with your CF doc, but the CF docs at my clinic are very hesitant to prescribe opiates/narcotics because these drugs can really depress your breathing and completely dry you out. They tend to have the same effect, or stronger, that benadryl does on the lungs in that breathing comfortably and getting junk out will be nearly impossible. I remember a post a while back about benadryl that I posted and someone mentioned that it makes them feel like they're coughing up tar-these drugs can do the same.
<br />
<br />I, personally, have noticed it more with some than others. For example, percocet doesn't seem to dry me out as much as dalaudid (sp?) does, etc.
<br />
<br />Hope this helps, I don't think it's just your clinic, I think it's more of a precautionary thing CF docs like to take. Why make the gunk stickier when there are other pain meds (even though they don't always cut it) to use?
 
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theLostMiler

New member
I think w/ the risk of dependency/addiction to narcotic pain meds that might be one reason that cf docs and/or regular docs try to not give pain meds... although at the er once I was almost given something starting w/ a "d" that was the eqivalent of 10 times the strength of morphine.... w/o hesitation.

Another reason I believe, that narcotic pain meds slow down all the systems in the body (I guess a narcotic is a downer right? is that right? obviously D.A.R.E stuck w/ me <img src="i/expressions/face-icon-small-wink.gif" border="0"> lol) so that means slower digestive/bowels (dont really need that for cf'ers) and slower respiratory (dont want that either).

When I have had morphine I can feel it take over my whole body from like my neck down to my feet and can really feel it when it hits my lungs... I try to take torodol for any pain (or if I am at home I have an old script for tramadol... but since I rarely need/want pain meds I dont have to worry about the tramadol loosing effect or the 5 day limit for torodol.

Anyways, that might be why cf docs lean against narcotics for pain relievers. ??
 
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theLostMiler

New member
I think w/ the risk of dependency/addiction to narcotic pain meds that might be one reason that cf docs and/or regular docs try to not give pain meds... although at the er once I was almost given something starting w/ a "d" that was the eqivalent of 10 times the strength of morphine.... w/o hesitation.

Another reason I believe, that narcotic pain meds slow down all the systems in the body (I guess a narcotic is a downer right? is that right? obviously D.A.R.E stuck w/ me <img src="i/expressions/face-icon-small-wink.gif" border="0"> lol) so that means slower digestive/bowels (dont really need that for cf'ers) and slower respiratory (dont want that either).

When I have had morphine I can feel it take over my whole body from like my neck down to my feet and can really feel it when it hits my lungs... I try to take torodol for any pain (or if I am at home I have an old script for tramadol... but since I rarely need/want pain meds I dont have to worry about the tramadol loosing effect or the 5 day limit for torodol.

Anyways, that might be why cf docs lean against narcotics for pain relievers. ??
 
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theLostMiler

New member
I think w/ the risk of dependency/addiction to narcotic pain meds that might be one reason that cf docs and/or regular docs try to not give pain meds... although at the er once I was almost given something starting w/ a "d" that was the eqivalent of 10 times the strength of morphine.... w/o hesitation.
<br />
<br />Another reason I believe, that narcotic pain meds slow down all the systems in the body (I guess a narcotic is a downer right? is that right? obviously D.A.R.E stuck w/ me <img src="i/expressions/face-icon-small-wink.gif" border="0"> lol) so that means slower digestive/bowels (dont really need that for cf'ers) and slower respiratory (dont want that either).
<br />
<br />When I have had morphine I can feel it take over my whole body from like my neck down to my feet and can really feel it when it hits my lungs... I try to take torodol for any pain (or if I am at home I have an old script for tramadol... but since I rarely need/want pain meds I dont have to worry about the tramadol loosing effect or the 5 day limit for torodol.
<br />
<br />Anyways, that might be why cf docs lean against narcotics for pain relievers. ??
 
E

entropy

Guest
i've never noticed my lungs getting dried out while using opiates. when i took them, my lungs felt good and i was able to do a lot more without getting short of breath. when i take tylenol i do notice that my secretions are thicker, and i noticed it as well with things like vicodin and percocet which have so much tylenol in them. however, i've been prescribed oxycodone (which is the opiate in percocet) that contained no tylenol and had no noticeable lung side effects.

opiates do suppress breathing at high doses but at average theraputic doses the suppression of breathing is negligible. when i was in the hospital with a collapsed lung and chest tube, i wasn't given adequate pain medication and i ended up getting pneumonia because i was intentionally breathing very shallowly because it hurt so bad when i took in a breath. had i been given proper pain relief i doubt i would have got pneumonia.

and i've had the exact same experience with benadryl. it really is like "coughing up tar", i actually used that exact description when explaining to someone what benadryl does to my lungs. nassssty stuff, benadryl. if you want tar pits for lungs, take benadryl!
 
E

entropy

Guest
i've never noticed my lungs getting dried out while using opiates. when i took them, my lungs felt good and i was able to do a lot more without getting short of breath. when i take tylenol i do notice that my secretions are thicker, and i noticed it as well with things like vicodin and percocet which have so much tylenol in them. however, i've been prescribed oxycodone (which is the opiate in percocet) that contained no tylenol and had no noticeable lung side effects.

opiates do suppress breathing at high doses but at average theraputic doses the suppression of breathing is negligible. when i was in the hospital with a collapsed lung and chest tube, i wasn't given adequate pain medication and i ended up getting pneumonia because i was intentionally breathing very shallowly because it hurt so bad when i took in a breath. had i been given proper pain relief i doubt i would have got pneumonia.

and i've had the exact same experience with benadryl. it really is like "coughing up tar", i actually used that exact description when explaining to someone what benadryl does to my lungs. nassssty stuff, benadryl. if you want tar pits for lungs, take benadryl!
 
E

entropy

Guest
i've never noticed my lungs getting dried out while using opiates. when i took them, my lungs felt good and i was able to do a lot more without getting short of breath. when i take tylenol i do notice that my secretions are thicker, and i noticed it as well with things like vicodin and percocet which have so much tylenol in them. however, i've been prescribed oxycodone (which is the opiate in percocet) that contained no tylenol and had no noticeable lung side effects.
<br />
<br />opiates do suppress breathing at high doses but at average theraputic doses the suppression of breathing is negligible. when i was in the hospital with a collapsed lung and chest tube, i wasn't given adequate pain medication and i ended up getting pneumonia because i was intentionally breathing very shallowly because it hurt so bad when i took in a breath. had i been given proper pain relief i doubt i would have got pneumonia.
<br />
<br />and i've had the exact same experience with benadryl. it really is like "coughing up tar", i actually used that exact description when explaining to someone what benadryl does to my lungs. nassssty stuff, benadryl. if you want tar pits for lungs, take benadryl!
 
K

KrazyKat

New member
My docs prescribe me codeine when i'm exacerbating as usually i'm on ceftazadime which gives me really nasty headaches that nurofen and paracetemol won't touch.

I'm not keen to take anything stronger as i'm getting ever closer to transplant now and want to make sure the pain drugs work really really well when i need them.

But basically, i don't think the breathing is depressed very much on opiates, i've certainly never noticed it and i've taken some fairly high doses of codeine before. They just don't want us getting hooked on the euphoria it gives us, gotta watch that euphoria, nasty stuff, never mind the difficulty breathing, pain in the lungs, massive inflammation and facing the potential of death every day of our lives, these are all fine, just don't be giving us anything that makes us euphoric, we coudln't possibly allow that. Pfft.
 
K

KrazyKat

New member
My docs prescribe me codeine when i'm exacerbating as usually i'm on ceftazadime which gives me really nasty headaches that nurofen and paracetemol won't touch.

I'm not keen to take anything stronger as i'm getting ever closer to transplant now and want to make sure the pain drugs work really really well when i need them.

But basically, i don't think the breathing is depressed very much on opiates, i've certainly never noticed it and i've taken some fairly high doses of codeine before. They just don't want us getting hooked on the euphoria it gives us, gotta watch that euphoria, nasty stuff, never mind the difficulty breathing, pain in the lungs, massive inflammation and facing the potential of death every day of our lives, these are all fine, just don't be giving us anything that makes us euphoric, we coudln't possibly allow that. Pfft.
 
K

KrazyKat

New member
My docs prescribe me codeine when i'm exacerbating as usually i'm on ceftazadime which gives me really nasty headaches that nurofen and paracetemol won't touch.
<br />
<br />I'm not keen to take anything stronger as i'm getting ever closer to transplant now and want to make sure the pain drugs work really really well when i need them.
<br />
<br />But basically, i don't think the breathing is depressed very much on opiates, i've certainly never noticed it and i've taken some fairly high doses of codeine before. They just don't want us getting hooked on the euphoria it gives us, gotta watch that euphoria, nasty stuff, never mind the difficulty breathing, pain in the lungs, massive inflammation and facing the potential of death every day of our lives, these are all fine, just don't be giving us anything that makes us euphoric, we coudln't possibly allow that. Pfft.
 
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entropy

Guest
" They just don't want us getting hooked on the euphoria it gives us, gotta watch that euphoria, nasty stuff, never mind the difficulty breathing, pain in the lungs, massive inflammation and facing the potential of death every day of our lives, these are all fine, just don't be giving us anything that makes us euphoric, we coudln't possibly allow that. Pfft."

I totally relate with your sarcasm here.

+1!

Doctors are so quick to prescribe SSRI antidepressants that are toxic and often make the people who take them even more depressed but have a problem prescribing stuff that actually works. The clinical significance of opiates as potent, relatively benign antidepressants needs to be reopened and properly evaluated in an unbiased way. the UN's, specifically the USA's, war on drugs i think is in many ways responsible for doctors reluctance to prescribe proper pain medications.
 
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entropy

Guest
" They just don't want us getting hooked on the euphoria it gives us, gotta watch that euphoria, nasty stuff, never mind the difficulty breathing, pain in the lungs, massive inflammation and facing the potential of death every day of our lives, these are all fine, just don't be giving us anything that makes us euphoric, we coudln't possibly allow that. Pfft."

I totally relate with your sarcasm here.

+1!

Doctors are so quick to prescribe SSRI antidepressants that are toxic and often make the people who take them even more depressed but have a problem prescribing stuff that actually works. The clinical significance of opiates as potent, relatively benign antidepressants needs to be reopened and properly evaluated in an unbiased way. the UN's, specifically the USA's, war on drugs i think is in many ways responsible for doctors reluctance to prescribe proper pain medications.
 
E

entropy

Guest
" They just don't want us getting hooked on the euphoria it gives us, gotta watch that euphoria, nasty stuff, never mind the difficulty breathing, pain in the lungs, massive inflammation and facing the potential of death every day of our lives, these are all fine, just don't be giving us anything that makes us euphoric, we coudln't possibly allow that. Pfft."
<br />
<br />I totally relate with your sarcasm here.
<br />
<br />+1!
<br />
<br />Doctors are so quick to prescribe SSRI antidepressants that are toxic and often make the people who take them even more depressed but have a problem prescribing stuff that actually works. The clinical significance of opiates as potent, relatively benign antidepressants needs to be reopened and properly evaluated in an unbiased way. the UN's, specifically the USA's, war on drugs i think is in many ways responsible for doctors reluctance to prescribe proper pain medications.
 
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regina65

New member
I have noticed that some family practice dr's will prescribe me narcotics 'but the one I use wont even give me anything for anxiety . He wants to give me Lexapro and Cymbalta . I'm not depressed just am too wound up. Need something like what they gave me when I had a colonoscopy done I have never been so relaxed. And I actually slept without meds for 2 nights. Didn't notice that it affected my lungs at all. But neither of my dr's cf or PCP will give me anything like that. I mean who cares if it is addictive I have Cf and 2 different kinds of Cepacia and Mrsa. Let me have some sort of peace while I'm here.. I dont have that much pain . Cant take hydrocodone or oxycodone either b/c they make me really sick (throwing up)for days.
 
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regina65

New member
I have noticed that some family practice dr's will prescribe me narcotics 'but the one I use wont even give me anything for anxiety . He wants to give me Lexapro and Cymbalta . I'm not depressed just am too wound up. Need something like what they gave me when I had a colonoscopy done I have never been so relaxed. And I actually slept without meds for 2 nights. Didn't notice that it affected my lungs at all. But neither of my dr's cf or PCP will give me anything like that. I mean who cares if it is addictive I have Cf and 2 different kinds of Cepacia and Mrsa. Let me have some sort of peace while I'm here.. I dont have that much pain . Cant take hydrocodone or oxycodone either b/c they make me really sick (throwing up)for days.
 
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