Oral antibiotics with an infection

[Markus]

Hi all I am just wondering what is your normal protocal for when you get a lung infection with oral antibiotics. I am trying to stay out of going into the ER and being admitted again so I was wondering what everyones doc usually puts them on...

thanks in advance!

 

[Markus]

Hi all I am just wondering what is your normal protocal for when you get a lung infection with oral antibiotics. I am trying to stay out of going into the ER and being admitted again so I was wondering what everyones doc usually puts them on...

thanks in advance!

 

[Markus]

Hi all I am just wondering what is your normal protocal for when you get a lung infection with oral antibiotics. I am trying to stay out of going into the ER and being admitted again so I was wondering what everyones doc usually puts them on...
<br />
<br />thanks in advance!

 

[ryry11]

Hi,
I'm pretty much ALWAYS on antibiotics for something or other. Right now I'm on septra and prednisone, but also popular is cipro (I can't take it becuase of horrible side effects), septra and doxycyclene, augmentin, that kind of thing.

 

[ryry11]

Hi,
I'm pretty much ALWAYS on antibiotics for something or other. Right now I'm on septra and prednisone, but also popular is cipro (I can't take it becuase of horrible side effects), septra and doxycyclene, augmentin, that kind of thing.

 

[ryry11]

Hi,
<br />I'm pretty much ALWAYS on antibiotics for something or other. Right now I'm on septra and prednisone, but also popular is cipro (I can't take it becuase of horrible side effects), septra and doxycyclene, augmentin, that kind of thing.

 

[LouLou]

For me there's two protocols as you called it...
A well plan and a sick plan.

My well plan requires a prophylactic antibiotic. I've been doing Tobi since before there was Tobi and we used to have to inhale the IV Tobra stuff. When that stopped working for me (25 years later!) I started inhaling Colistin. Then recently I tried Cayston but I am back on Colistin. This is my routine for 28 days on and 28 days off.

Then when I am sick back in the day I used to take a med called Septra. Next it was cipro and now I don't have an oral antibiotic to treat my pseudomonas. But surprise! I got another bug around this time that did have oral options. I culture staph which is methycillin resistant so it's MRSA. I can take minocycline, doxycycline or linezolid. Since I have to go on IVS since there's no PA oral drug for me I usually do Vancomycin with the PA drug.

So as you can tell this is all very confusing and not one size fits all. You and your doc need to review your latest sputum culture results and see what a good treatment plan would be for you. Why wouldn't you see the doctor WAY before an ER visit is a necessity? ER's should be avoided unless really necessary. They aren't skilled to handle our level of care and they are full of germs.

There's my 2 cents.

 

[LouLou]

For me there's two protocols as you called it...
A well plan and a sick plan.

My well plan requires a prophylactic antibiotic. I've been doing Tobi since before there was Tobi and we used to have to inhale the IV Tobra stuff. When that stopped working for me (25 years later!) I started inhaling Colistin. Then recently I tried Cayston but I am back on Colistin. This is my routine for 28 days on and 28 days off.

Then when I am sick back in the day I used to take a med called Septra. Next it was cipro and now I don't have an oral antibiotic to treat my pseudomonas. But surprise! I got another bug around this time that did have oral options. I culture staph which is methycillin resistant so it's MRSA. I can take minocycline, doxycycline or linezolid. Since I have to go on IVS since there's no PA oral drug for me I usually do Vancomycin with the PA drug.

So as you can tell this is all very confusing and not one size fits all. You and your doc need to review your latest sputum culture results and see what a good treatment plan would be for you. Why wouldn't you see the doctor WAY before an ER visit is a necessity? ER's should be avoided unless really necessary. They aren't skilled to handle our level of care and they are full of germs.

There's my 2 cents.

 

[LouLou]

For me there's two protocols as you called it...
<br />A well plan and a sick plan.
<br />
<br />My well plan requires a prophylactic antibiotic. I've been doing Tobi since before there was Tobi and we used to have to inhale the IV Tobra stuff. When that stopped working for me (25 years later!) I started inhaling Colistin. Then recently I tried Cayston but I am back on Colistin. This is my routine for 28 days on and 28 days off.
<br />
<br />Then when I am sick back in the day I used to take a med called Septra. Next it was cipro and now I don't have an oral antibiotic to treat my pseudomonas. But surprise! I got another bug around this time that did have oral options. I culture staph which is methycillin resistant so it's MRSA. I can take minocycline, doxycycline or linezolid. Since I have to go on IVS since there's no PA oral drug for me I usually do Vancomycin with the PA drug.
<br />
<br />So as you can tell this is all very confusing and not one size fits all. You and your doc need to review your latest sputum culture results and see what a good treatment plan would be for you. Why wouldn't you see the doctor WAY before an ER visit is a necessity? ER's should be avoided unless really necessary. They aren't skilled to handle our level of care and they are full of germs.
<br />
<br />There's my 2 cents.

 

[Ratatosk]

DS is on prophalactic abx -- septra because he cultured steno maltophilia, he's on zithromax, tobi; however, in the past when he's developed a cough his doctor has put him on cipro.

 

[Ratatosk]

DS is on prophalactic abx -- septra because he cultured steno maltophilia, he's on zithromax, tobi; however, in the past when he's developed a cough his doctor has put him on cipro.

 

[Ratatosk]

DS is on prophalactic abx -- septra because he cultured steno maltophilia, he's on zithromax, tobi; however, in the past when he's developed a cough his doctor has put him on cipro.

 

[cf4life]

I second everything LouLou said. You need to know your sensitivities. You also don't want to abuse the orals either or you will lose them to resistance. Inhaled antibiotics are great in between exacerbations, but you usually don't use them exclusively for an exacerbation.

Honestly, I sense that you don't have a good relationship with your doctor. It is important to have a good relationship where you can work together as a team on your cf care. It is very important to have this relationship and trust, so you are comfortable enough going to your doctor early, before you are depreciate and scared of IVs. This is where orals are most effective anyway, when used early. You also have to be honest with yourself and know when you need help, in the form of IV antibiotics.

It sucks, but we all have to take time outs from our life to treat these infections. It sounds like you have 3 kids, so think of them too. You will miss each other during this time, but you will have more quality time after. Keep up with your inhaled antibiotics and exercise, etc to prolong the time until your next exacerbation, and be honest with yourself again, and know that it will happen again. Make sure you learn as much as possible from your previous exacerbation, review what happened and the treatments with your doctor after, and have a plan for next time.

 

[cf4life]

I second everything LouLou said. You need to know your sensitivities. You also don't want to abuse the orals either or you will lose them to resistance. Inhaled antibiotics are great in between exacerbations, but you usually don't use them exclusively for an exacerbation.

Honestly, I sense that you don't have a good relationship with your doctor. It is important to have a good relationship where you can work together as a team on your cf care. It is very important to have this relationship and trust, so you are comfortable enough going to your doctor early, before you are depreciate and scared of IVs. This is where orals are most effective anyway, when used early. You also have to be honest with yourself and know when you need help, in the form of IV antibiotics.

It sucks, but we all have to take time outs from our life to treat these infections. It sounds like you have 3 kids, so think of them too. You will miss each other during this time, but you will have more quality time after. Keep up with your inhaled antibiotics and exercise, etc to prolong the time until your next exacerbation, and be honest with yourself again, and know that it will happen again. Make sure you learn as much as possible from your previous exacerbation, review what happened and the treatments with your doctor after, and have a plan for next time.

 

[cf4life]

I second everything LouLou said. You need to know your sensitivities. You also don't want to abuse the orals either or you will lose them to resistance. Inhaled antibiotics are great in between exacerbations, but you usually don't use them exclusively for an exacerbation.
<br />
<br />Honestly, I sense that you don't have a good relationship with your doctor. It is important to have a good relationship where you can work together as a team on your cf care. It is very important to have this relationship and trust, so you are comfortable enough going to your doctor early, before you are depreciate and scared of IVs. This is where orals are most effective anyway, when used early. You also have to be honest with yourself and know when you need help, in the form of IV antibiotics.
<br />
<br />It sucks, but we all have to take time outs from our life to treat these infections. It sounds like you have 3 kids, so think of them too. You will miss each other during this time, but you will have more quality time after. Keep up with your inhaled antibiotics and exercise, etc to prolong the time until your next exacerbation, and be honest with yourself again, and know that it will happen again. Make sure you learn as much as possible from your previous exacerbation, review what happened and the treatments with your doctor after, and have a plan for next time.