<blockquote>Quote<br><hr><i>Originally posted by: <b>JBUCCA</b></i><br>i asked my dr. in jersery and she always says not just about this but any other type of stuff i ask her and her reply is'' if its not fda app. i dont know the affects''' so im like ok well then im taking my life in my own hands.. and i dont know what to do... is it good or bad will i die or live... every day ??? for a cf'er!!!<hr></blockquote>
What is your question? Be a tad more specific.
There are TONS of substances out there that people take that aren't "FDA approved" that don't harm people, and then there are other substances out there that do harm people. Look into it yourself, do your own research, and come to your own conclusion. At a certain point in adult CF you have to be your own advocate and be proactive, and realize your doctors are only there to help, and not there to lead the way.