Osteoporosis

blindhearted

New member
I was just diagnosised today with Osteoporosis and Osteopenia. Has many people here been diagnosis with either one of these? How does it effect you? Is it reversable?
 

anonymous

New member
This is common in CF. It can be treated with medication (Fosamax or Actonel) and calcium. I have it and I take meds for it. I'm not sure if it can be reversed but it can be slowed down with meds.

a guy with cf
 

nobody

New member
Blindhearted,
I am a 38 yr old CF patient (male). I had osteoporosis. It is reversable. Take Calcium/Vitamin D and Magnesium as your Dr tells you.
They may prescribe Fosamax too. There is a one-pill-a-month med too (I don't remember the name)
Also, I bought some ankle weights to provide some resistance "lifting". It took 2-3 years to upgrade to osteopenia - but I did.
You may want to cut down or eliminate carbonated drinks too. They work against this process.
I am still working on it. Keep your chin up!
-steve
 

JazzysMom

New member
2 years ago I had my first bone density test. It showed a slight thinning of the bones. Not a major problem for those without CF, but because of my CF my doctor wanted me to started a Calcium/Vitamin D supplement immediately. It can be reversed, but the sooner the better!
 

anonymous

New member
What are the symptoms of osteoporosis and osteopenia? I have had hip pain for years now and I am finally going to the orthopedic, but I was wondering if I might have joint pain due to the inability of absorbing clacium and vitamin D. Any thought etc. are welcome. PS I also have lower back pain!

Jennifer 33yrs old with CF and CFRD
 

nobody

New member
Jennifer,
The symptoms are different for each person.. I had teeth breaking - despite 2-3 brushings a day. I had no pain or other symptoms.
A very astute dr had me do a bone density scan. I am taking prednisone and that also depletes calcium.
Fosamax helps with the absorbtion problem.
My hip pain is due to piched nerves in certain positions.
-steve
 

anonymous

New member
They started doing annual bone density scans on my daughter as soon as she started her periods (age 13). They hope to catch any bone problems before they start - they also started her on calcium supplements at the same time.
 
I was diagnosed with Osteoporosis probably around a month ago and also posted for information about it. For me I had a lot of back pain because of it before I was diagnosed, it was nice to finally know why I was having back pain, sadly I still get it, but I haven't been on treatment for that long. I take calcium pills and vitamin D supplements everyday and one pill that I take once a week. It's really only affected me in that I have the back pain every now and then.
 
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