the past year and a half i have needed oxygen more in hospital and at home. i rely on it alot more around the house, and need it to do day to day chores around the home. does this mean i am now a candidate for a lung transplant?my lung function readings have also dropped. i have spoke about it with my doctor but i am still confused and scared. is it time, before its to late..............?
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oxegen
- Thread starter nicolaj
- Start date
the past year and a half i have needed oxygen more in hospital and at home. i rely on it alot more around the house, and need it to do day to day chores around the home. does this mean i am now a candidate for a lung transplant?my lung function readings have also dropped. i have spoke about it with my doctor but i am still confused and scared. is it time, before its to late..............?
the past year and a half i have needed oxygen more in hospital and at home. i rely on it alot more around the house, and need it to do day to day chores around the home. does this mean i am now a candidate for a lung transplant?my lung function readings have also dropped. i have spoke about it with my doctor but i am still confused and scared. is it time, before its to late..............?
N.K,
The least you can do is look into transplant. See if it is something you want to do. And also a good time to do research.
Not sure where you live, but there are about 90 lung tx centers in the U.S. They have different stats and surgeons, you may want to meet some to find the one "for you".
Ask your CF doctor for some referrrals to people who may of had a tx at your CF center.
I had a lung tx 9 years ago, I have chronic rejection, but I am doing very well. LIfe is good and the tx is so worth it.
I wrote a book, where 265 people gave me their story on their experience with lung tx. If you are interested in that, let me know.
Please feel free to ask questions, happy to help. I also have a web site for lung tx support and lots of people to connect with.
Joanne Schum
luckylungsforjo@aol.com
The least you can do is look into transplant. See if it is something you want to do. And also a good time to do research.
Not sure where you live, but there are about 90 lung tx centers in the U.S. They have different stats and surgeons, you may want to meet some to find the one "for you".
Ask your CF doctor for some referrrals to people who may of had a tx at your CF center.
I had a lung tx 9 years ago, I have chronic rejection, but I am doing very well. LIfe is good and the tx is so worth it.
I wrote a book, where 265 people gave me their story on their experience with lung tx. If you are interested in that, let me know.
Please feel free to ask questions, happy to help. I also have a web site for lung tx support and lots of people to connect with.
Joanne Schum
luckylungsforjo@aol.com
N.K,
The least you can do is look into transplant. See if it is something you want to do. And also a good time to do research.
Not sure where you live, but there are about 90 lung tx centers in the U.S. They have different stats and surgeons, you may want to meet some to find the one "for you".
Ask your CF doctor for some referrrals to people who may of had a tx at your CF center.
I had a lung tx 9 years ago, I have chronic rejection, but I am doing very well. LIfe is good and the tx is so worth it.
I wrote a book, where 265 people gave me their story on their experience with lung tx. If you are interested in that, let me know.
Please feel free to ask questions, happy to help. I also have a web site for lung tx support and lots of people to connect with.
Joanne Schum
luckylungsforjo@aol.com
The least you can do is look into transplant. See if it is something you want to do. And also a good time to do research.
Not sure where you live, but there are about 90 lung tx centers in the U.S. They have different stats and surgeons, you may want to meet some to find the one "for you".
Ask your CF doctor for some referrrals to people who may of had a tx at your CF center.
I had a lung tx 9 years ago, I have chronic rejection, but I am doing very well. LIfe is good and the tx is so worth it.
I wrote a book, where 265 people gave me their story on their experience with lung tx. If you are interested in that, let me know.
Please feel free to ask questions, happy to help. I also have a web site for lung tx support and lots of people to connect with.
Joanne Schum
luckylungsforjo@aol.com
N.K,
The least you can do is look into transplant. See if it is something you want to do. And also a good time to do research.
Not sure where you live, but there are about 90 lung tx centers in the U.S. They have different stats and surgeons, you may want to meet some to find the one "for you".
Ask your CF doctor for some referrrals to people who may of had a tx at your CF center.
I had a lung tx 9 years ago, I have chronic rejection, but I am doing very well. LIfe is good and the tx is so worth it.
I wrote a book, where 265 people gave me their story on their experience with lung tx. If you are interested in that, let me know.
Please feel free to ask questions, happy to help. I also have a web site for lung tx support and lots of people to connect with.
Joanne Schum
luckylungsforjo@aol.com
The least you can do is look into transplant. See if it is something you want to do. And also a good time to do research.
Not sure where you live, but there are about 90 lung tx centers in the U.S. They have different stats and surgeons, you may want to meet some to find the one "for you".
Ask your CF doctor for some referrrals to people who may of had a tx at your CF center.
I had a lung tx 9 years ago, I have chronic rejection, but I am doing very well. LIfe is good and the tx is so worth it.
I wrote a book, where 265 people gave me their story on their experience with lung tx. If you are interested in that, let me know.
Please feel free to ask questions, happy to help. I also have a web site for lung tx support and lots of people to connect with.
Joanne Schum
luckylungsforjo@aol.com