Oxygen Question

[JennifersHope]

I was wondering why I had to keep getting my tanks filled from my home O2 company because I know others have at home fill tanks. They told me I cant use that because my order is for 4-6 liters continually.

Does anyone know if they have an at home fill system that has a continuous flow to it?

Has anyone used the pulse one that only releases o2 when you take a breath in? IS it a big difference?

 

[JennifersHope]

I was wondering why I had to keep getting my tanks filled from my home O2 company because I know others have at home fill tanks. They told me I cant use that because my order is for 4-6 liters continually.

Does anyone know if they have an at home fill system that has a continuous flow to it?

Has anyone used the pulse one that only releases o2 when you take a breath in? IS it a big difference?

 

[JennifersHope]

I was wondering why I had to keep getting my tanks filled from my home O2 company because I know others have at home fill tanks. They told me I cant use that because my order is for 4-6 liters continually.
<br />
<br />Does anyone know if they have an at home fill system that has a continuous flow to it?
<br />
<br />Has anyone used the pulse one that only releases o2 when you take a breath in? IS it a big difference?

 

[CountryGirl]

I'm on 4 liters and use a liquid O2 tank that I carry with me places and at home I have a larger tank that fills the smaller carrying tanks that I take with me places. I have two of them cause they only last 4 1/2 hrs each, on 4 liters. The O2 company still has to come fill the bigger tank with liquid O2 atleast once a week though. But it's pretty easy to use and they are pretty flexible at coming while we're home and when they say they will. The only thing I dont like about the liquid O2 is that its super cold, I say it makes it's own snow. Haha. And I'm in CA, so I had no idea how it would react in a cold environment, like back in a NE winter.

 

[CountryGirl]

I'm on 4 liters and use a liquid O2 tank that I carry with me places and at home I have a larger tank that fills the smaller carrying tanks that I take with me places. I have two of them cause they only last 4 1/2 hrs each, on 4 liters. The O2 company still has to come fill the bigger tank with liquid O2 atleast once a week though. But it's pretty easy to use and they are pretty flexible at coming while we're home and when they say they will. The only thing I dont like about the liquid O2 is that its super cold, I say it makes it's own snow. Haha. And I'm in CA, so I had no idea how it would react in a cold environment, like back in a NE winter.

 

[CountryGirl]

I'm on 4 liters and use a liquid O2 tank that I carry with me places and at home I have a larger tank that fills the smaller carrying tanks that I take with me places. I have two of them cause they only last 4 1/2 hrs each, on 4 liters. The O2 company still has to come fill the bigger tank with liquid O2 atleast once a week though. But it's pretty easy to use and they are pretty flexible at coming while we're home and when they say they will. The only thing I dont like about the liquid O2 is that its super cold, I say it makes it's own snow. Haha. And I'm in CA, so I had no idea how it would react in a cold environment, like back in a NE winter.

 

[musclemania70]

We purchased a portable machine that weighs about 10 pounds.
It is pulse oxygen and never needs to be filled. I only use Oxygen at night though. I am positive it works as well as continuous flow but get a letter from your insurance before you buy one to make sure you will be reimbursed for the cost...

 

[musclemania70]

We purchased a portable machine that weighs about 10 pounds.
It is pulse oxygen and never needs to be filled. I only use Oxygen at night though. I am positive it works as well as continuous flow but get a letter from your insurance before you buy one to make sure you will be reimbursed for the cost...

 

[musclemania70]

We purchased a portable machine that weighs about 10 pounds.
<br />It is pulse oxygen and never needs to be filled. I only use Oxygen at night though. I am positive it works as well as continuous flow but get a letter from your insurance before you buy one to make sure you will be reimbursed for the cost...

 

[JennifersHope]

Thanks, I don't plan on being on O2 for long, just enough to get me through this hurdle. I just was wondering about the breath inspired ones, if anyone noticed a difference like more shortness of breath with it as opposed to the continuous flow ones?

 

[JennifersHope]

Thanks, I don't plan on being on O2 for long, just enough to get me through this hurdle. I just was wondering about the breath inspired ones, if anyone noticed a difference like more shortness of breath with it as opposed to the continuous flow ones?

 

[JennifersHope]

Thanks, I don't plan on being on O2 for long, just enough to get me through this hurdle. I just was wondering about the breath inspired ones, if anyone noticed a difference like more shortness of breath with it as opposed to the continuous flow ones?

 

[cf4life]

The home fill tanks only have continuous flow at 2 liters. The tanks have settings for 1 to 5 liters in breath-actuated. Also note that these tanks are filled off your concentrator so if you are still having issues with the oxygen produced from your concentrator you may have the same issues.

I believe portable oxygen concentrators, as mentioned, only go up to 3 liters continuous flow. Some of the smaller/lighter ones doe not do continuous flow at all, only pulse.

You should ask to do a walk test with a breath actuated regulator and see how your sats behave.

 

[cf4life]

The home fill tanks only have continuous flow at 2 liters. The tanks have settings for 1 to 5 liters in breath-actuated. Also note that these tanks are filled off your concentrator so if you are still having issues with the oxygen produced from your concentrator you may have the same issues.

I believe portable oxygen concentrators, as mentioned, only go up to 3 liters continuous flow. Some of the smaller/lighter ones doe not do continuous flow at all, only pulse.

You should ask to do a walk test with a breath actuated regulator and see how your sats behave.

 

[cf4life]

The home fill tanks only have continuous flow at 2 liters. The tanks have settings for 1 to 5 liters in breath-actuated. Also note that these tanks are filled off your concentrator so if you are still having issues with the oxygen produced from your concentrator you may have the same issues.
<br />
<br />I believe portable oxygen concentrators, as mentioned, only go up to 3 liters continuous flow. Some of the smaller/lighter ones doe not do continuous flow at all, only pulse.
<br />
<br />You should ask to do a walk test with a breath actuated regulator and see how your sats behave.

 

[JennifersHope]

Thanks for the input. I am on more then two liters most of the time right now. Mostly 4. They tried to do the six minute test on me but when they brought me down there to do it, just taking my oxygen off, in less then three minutes, I was still just sitting there, had not even started to walk yet, my sats went into the low 80's, so they obviously were not going to have me walk, if I desatted just sitting.

The bummer is, now one has any idea why I am desatting. My catscan showed edema, and thicking of the walls and an enlarged heart. No one knows anything of what the sudden change.

I guess I am stuck with the tanks for now. I just want to so badly get off this oxygen, I can't stand it
Thanks for your help

 

[JennifersHope]

Thanks for the input. I am on more then two liters most of the time right now. Mostly 4. They tried to do the six minute test on me but when they brought me down there to do it, just taking my oxygen off, in less then three minutes, I was still just sitting there, had not even started to walk yet, my sats went into the low 80's, so they obviously were not going to have me walk, if I desatted just sitting.

The bummer is, now one has any idea why I am desatting. My catscan showed edema, and thicking of the walls and an enlarged heart. No one knows anything of what the sudden change.

I guess I am stuck with the tanks for now. I just want to so badly get off this oxygen, I can't stand it
Thanks for your help

 

[JennifersHope]

Thanks for the input. I am on more then two liters most of the time right now. Mostly 4. They tried to do the six minute test on me but when they brought me down there to do it, just taking my oxygen off, in less then three minutes, I was still just sitting there, had not even started to walk yet, my sats went into the low 80's, so they obviously were not going to have me walk, if I desatted just sitting.
<br />
<br />The bummer is, now one has any idea why I am desatting. My catscan showed edema, and thicking of the walls and an enlarged heart. No one knows anything of what the sudden change.
<br />
<br />I guess I am stuck with the tanks for now. I just want to so badly get off this oxygen, I can't stand it
<br />Thanks for your help

 

[cf4life]

What I was saying was to do the walk test with a portable tank set at 4 or 5 pulse. Then you can find out if you can use a pulse regulator and not desat. If you can then you can use smaller tanks and carry it in a back pack or something.

Honestly, it sounds like you may be on oxygen for a while, so you need to just accept it and move on. If you are just sitting at home feeling sorry for yourself then you are not living. I would find out what your options are so you can be more independent, whether it is a home fill or a liquid setup. Tell your doctor you want to be tested on these systems. Otherwise, I would be looking to other options and definitely look into having a second opinion, etc.

 

[cf4life]

What I was saying was to do the walk test with a portable tank set at 4 or 5 pulse. Then you can find out if you can use a pulse regulator and not desat. If you can then you can use smaller tanks and carry it in a back pack or something.

Honestly, it sounds like you may be on oxygen for a while, so you need to just accept it and move on. If you are just sitting at home feeling sorry for yourself then you are not living. I would find out what your options are so you can be more independent, whether it is a home fill or a liquid setup. Tell your doctor you want to be tested on these systems. Otherwise, I would be looking to other options and definitely look into having a second opinion, etc.