Oxygen questions

L

LeneSouthAfrica

New member
I can only comment on the sleep thing...After battling with chronic unexplained tiredness for a long time, I have been on night 02 for 4 months now and it has made a huge difference. I feel positive about it because I now sleep much better, previously I slept really restless and had tons of nightmares and I felt terrible when I woke up. After a few nights of good 02 rest I started feeling refreshed: now I am emotionally stable, my mind is clear and my body feels much stronger all around, and my exercise stamina has improved so much. It feels like the 02 is adding to my life, like a new 'breakthrough' therapy for me that is allowing me to live a more normal life, instead of the thought that the disease is progressing. Yes it is a hassle, but so is testing sugars, taking pills, nebulizing and doing IV's - but if it helps, it's worth it! I don't use it during the day, because my awake sats are good so I can't comment on that aspect. But I sleep with it, without fail, and I do get anxious at the thought of not having it at night. My fev is around 70%, so no one thought that I could be desatting at night but I had a sleep study which proved my sleep quality was really bad. And my sats dropped enough to possibly cause the bad sleep, we did the 02 as a trial and it worked...so perhaps a thought: have you had a sleep study done? It would help determine what the right amount of 02 is to sleep with for where you are at the moment (I use 2l) - and perhaps if you know you are getting adequate oxygen for the 8-10 hours you sleep each day it will alleviate some of you day time anxiety.
Good luck
 
L

LeneSouthAfrica

New member
I can only comment on the sleep thing...After battling with chronic unexplained tiredness for a long time, I have been on night 02 for 4 months now and it has made a huge difference. I feel positive about it because I now sleep much better, previously I slept really restless and had tons of nightmares and I felt terrible when I woke up. After a few nights of good 02 rest I started feeling refreshed: now I am emotionally stable, my mind is clear and my body feels much stronger all around, and my exercise stamina has improved so much. It feels like the 02 is adding to my life, like a new 'breakthrough' therapy for me that is allowing me to live a more normal life, instead of the thought that the disease is progressing. Yes it is a hassle, but so is testing sugars, taking pills, nebulizing and doing IV's - but if it helps, it's worth it! I don't use it during the day, because my awake sats are good so I can't comment on that aspect. But I sleep with it, without fail, and I do get anxious at the thought of not having it at night. My fev is around 70%, so no one thought that I could be desatting at night but I had a sleep study which proved my sleep quality was really bad. And my sats dropped enough to possibly cause the bad sleep, we did the 02 as a trial and it worked...so perhaps a thought: have you had a sleep study done? It would help determine what the right amount of 02 is to sleep with for where you are at the moment (I use 2l) - and perhaps if you know you are getting adequate oxygen for the 8-10 hours you sleep each day it will alleviate some of you day time anxiety.
Good luck
 
L

LeneSouthAfrica

New member
I can only comment on the sleep thing...After battling with chronic unexplained tiredness for a long time, I have been on night 02 for 4 months now and it has made a huge difference. I feel positive about it because I now sleep much better, previously I slept really restless and had tons of nightmares and I felt terrible when I woke up. After a few nights of good 02 rest I started feeling refreshed: now I am emotionally stable, my mind is clear and my body feels much stronger all around, and my exercise stamina has improved so much. It feels like the 02 is adding to my life, like a new 'breakthrough' therapy for me that is allowing me to live a more normal life, instead of the thought that the disease is progressing. Yes it is a hassle, but so is testing sugars, taking pills, nebulizing and doing IV's - but if it helps, it's worth it! I don't use it during the day, because my awake sats are good so I can't comment on that aspect. But I sleep with it, without fail, and I do get anxious at the thought of not having it at night. My fev is around 70%, so no one thought that I could be desatting at night but I had a sleep study which proved my sleep quality was really bad. And my sats dropped enough to possibly cause the bad sleep, we did the 02 as a trial and it worked...so perhaps a thought: have you had a sleep study done? It would help determine what the right amount of 02 is to sleep with for where you are at the moment (I use 2l) - and perhaps if you know you are getting adequate oxygen for the 8-10 hours you sleep each day it will alleviate some of you day time anxiety.
Good luck
 
L

LeneSouthAfrica

New member
I can only comment on the sleep thing...After battling with chronic unexplained tiredness for a long time, I have been on night 02 for 4 months now and it has made a huge difference. I feel positive about it because I now sleep much better, previously I slept really restless and had tons of nightmares and I felt terrible when I woke up. After a few nights of good 02 rest I started feeling refreshed: now I am emotionally stable, my mind is clear and my body feels much stronger all around, and my exercise stamina has improved so much. It feels like the 02 is adding to my life, like a new 'breakthrough' therapy for me that is allowing me to live a more normal life, instead of the thought that the disease is progressing. Yes it is a hassle, but so is testing sugars, taking pills, nebulizing and doing IV's - but if it helps, it's worth it! I don't use it during the day, because my awake sats are good so I can't comment on that aspect. But I sleep with it, without fail, and I do get anxious at the thought of not having it at night. My fev is around 70%, so no one thought that I could be desatting at night but I had a sleep study which proved my sleep quality was really bad. And my sats dropped enough to possibly cause the bad sleep, we did the 02 as a trial and it worked...so perhaps a thought: have you had a sleep study done? It would help determine what the right amount of 02 is to sleep with for where you are at the moment (I use 2l) - and perhaps if you know you are getting adequate oxygen for the 8-10 hours you sleep each day it will alleviate some of you day time anxiety.
Good luck
 
L

LeneSouthAfrica

New member
I can only comment on the sleep thing...After battling with chronic unexplained tiredness for a long time, I have been on night 02 for 4 months now and it has made a huge difference. I feel positive about it because I now sleep much better, previously I slept really restless and had tons of nightmares and I felt terrible when I woke up. After a few nights of good 02 rest I started feeling refreshed: now I am emotionally stable, my mind is clear and my body feels much stronger all around, and my exercise stamina has improved so much. It feels like the 02 is adding to my life, like a new 'breakthrough' therapy for me that is allowing me to live a more normal life, instead of the thought that the disease is progressing. Yes it is a hassle, but so is testing sugars, taking pills, nebulizing and doing IV's - but if it helps, it's worth it! I don't use it during the day, because my awake sats are good so I can't comment on that aspect. But I sleep with it, without fail, and I do get anxious at the thought of not having it at night. My fev is around 70%, so no one thought that I could be desatting at night but I had a sleep study which proved my sleep quality was really bad. And my sats dropped enough to possibly cause the bad sleep, we did the 02 as a trial and it worked...so perhaps a thought: have you had a sleep study done? It would help determine what the right amount of 02 is to sleep with for where you are at the moment (I use 2l) - and perhaps if you know you are getting adequate oxygen for the 8-10 hours you sleep each day it will alleviate some of you day time anxiety.
<br />Good luck
 
L

ladybug

New member
Thank you everyone for your responses. I guess I feel less alone.

Lene: I've actually had a sleep study and I didn't desat at that time. I still have O2 though cause at one point when I was in the hospital I desatted sleeping and always desat with vigorous exercise. Its near my bed so docs said I could always use it anytime if I'm desatting. I've just never really needed it until now and don't know why.

I've actually been wearing O2 with exercise for over a year. I honestly can't say its helped in any way. I thought I'd be able to jog further and feel better, but I feel exactly the same when I wear it to exercise as I do when I don't. Weird. My sats DO go up with it though, so I continue to wear it with exercise. I also thought with the O2 and jogging, my HR would go down (it usually spikes to around 178), but its exactly the same whether I wear the O2 or not. Same with walking and brisk walk. O2 does nothing to my HR. Its weird cause the ONLY indication I have that it helps for exercise is that my pulse ox shows my sats going up. Hmmm...

Anyway, I digress.... Would love to hear more thoughts and experiences on my questions. Thanks, everyone!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

ladybug

New member
Thank you everyone for your responses. I guess I feel less alone.

Lene: I've actually had a sleep study and I didn't desat at that time. I still have O2 though cause at one point when I was in the hospital I desatted sleeping and always desat with vigorous exercise. Its near my bed so docs said I could always use it anytime if I'm desatting. I've just never really needed it until now and don't know why.

I've actually been wearing O2 with exercise for over a year. I honestly can't say its helped in any way. I thought I'd be able to jog further and feel better, but I feel exactly the same when I wear it to exercise as I do when I don't. Weird. My sats DO go up with it though, so I continue to wear it with exercise. I also thought with the O2 and jogging, my HR would go down (it usually spikes to around 178), but its exactly the same whether I wear the O2 or not. Same with walking and brisk walk. O2 does nothing to my HR. Its weird cause the ONLY indication I have that it helps for exercise is that my pulse ox shows my sats going up. Hmmm...

Anyway, I digress.... Would love to hear more thoughts and experiences on my questions. Thanks, everyone!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

ladybug

New member
Thank you everyone for your responses. I guess I feel less alone.

Lene: I've actually had a sleep study and I didn't desat at that time. I still have O2 though cause at one point when I was in the hospital I desatted sleeping and always desat with vigorous exercise. Its near my bed so docs said I could always use it anytime if I'm desatting. I've just never really needed it until now and don't know why.

I've actually been wearing O2 with exercise for over a year. I honestly can't say its helped in any way. I thought I'd be able to jog further and feel better, but I feel exactly the same when I wear it to exercise as I do when I don't. Weird. My sats DO go up with it though, so I continue to wear it with exercise. I also thought with the O2 and jogging, my HR would go down (it usually spikes to around 178), but its exactly the same whether I wear the O2 or not. Same with walking and brisk walk. O2 does nothing to my HR. Its weird cause the ONLY indication I have that it helps for exercise is that my pulse ox shows my sats going up. Hmmm...

Anyway, I digress.... Would love to hear more thoughts and experiences on my questions. Thanks, everyone!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

ladybug

New member
Thank you everyone for your responses. I guess I feel less alone.

Lene: I've actually had a sleep study and I didn't desat at that time. I still have O2 though cause at one point when I was in the hospital I desatted sleeping and always desat with vigorous exercise. Its near my bed so docs said I could always use it anytime if I'm desatting. I've just never really needed it until now and don't know why.

I've actually been wearing O2 with exercise for over a year. I honestly can't say its helped in any way. I thought I'd be able to jog further and feel better, but I feel exactly the same when I wear it to exercise as I do when I don't. Weird. My sats DO go up with it though, so I continue to wear it with exercise. I also thought with the O2 and jogging, my HR would go down (it usually spikes to around 178), but its exactly the same whether I wear the O2 or not. Same with walking and brisk walk. O2 does nothing to my HR. Its weird cause the ONLY indication I have that it helps for exercise is that my pulse ox shows my sats going up. Hmmm...

Anyway, I digress.... Would love to hear more thoughts and experiences on my questions. Thanks, everyone!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

ladybug

New member
Thank you everyone for your responses. I guess I feel less alone.
<br />
<br />Lene: I've actually had a sleep study and I didn't desat at that time. I still have O2 though cause at one point when I was in the hospital I desatted sleeping and always desat with vigorous exercise. Its near my bed so docs said I could always use it anytime if I'm desatting. I've just never really needed it until now and don't know why.
<br />
<br />I've actually been wearing O2 with exercise for over a year. I honestly can't say its helped in any way. I thought I'd be able to jog further and feel better, but I feel exactly the same when I wear it to exercise as I do when I don't. Weird. My sats DO go up with it though, so I continue to wear it with exercise. I also thought with the O2 and jogging, my HR would go down (it usually spikes to around 178), but its exactly the same whether I wear the O2 or not. Same with walking and brisk walk. O2 does nothing to my HR. Its weird cause the ONLY indication I have that it helps for exercise is that my pulse ox shows my sats going up. Hmmm...
<br />
<br />Anyway, I digress.... Would love to hear more thoughts and experiences on my questions. Thanks, everyone!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />
 
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