I help manage an online support group for caregivers, those with heart/lung disease or for just those who want to learn. I have been doing this for 4 years now..what works for our group (started off at 20 members, now has over 300) is a mix of things...articles and info, group games, daily sign in, chat etc....If you want any specifics, please PM me. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
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pain and illness support group
- Thread starter Mockingbird
- Start date
I help manage an online support group for caregivers, those with heart/lung disease or for just those who want to learn. I have been doing this for 4 years now..what works for our group (started off at 20 members, now has over 300) is a mix of things...articles and info, group games, daily sign in, chat etc....If you want any specifics, please PM me. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
I help manage an online support group for caregivers, those with heart/lung disease or for just those who want to learn. I have been doing this for 4 years now..what works for our group (started off at 20 members, now has over 300) is a mix of things...articles and info, group games, daily sign in, chat etc....If you want any specifics, please PM me. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
I help manage an online support group for caregivers, those with heart/lung disease or for just those who want to learn. I have been doing this for 4 years now..what works for our group (started off at 20 members, now has over 300) is a mix of things...articles and info, group games, daily sign in, chat etc....If you want any specifics, please PM me. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
I help manage an online support group for caregivers, those with heart/lung disease or for just those who want to learn. I have been doing this for 4 years now..what works for our group (started off at 20 members, now has over 300) is a mix of things...articles and info, group games, daily sign in, chat etc....If you want any specifics, please PM me. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
coltsfan715
New member
I went to a support group for a while post transplant and quite honestly found it VERY helpful.
The things that I and the people I met found most useful was just getting to talk about the things that we experienced. Yeah we would have special speakers and stuff on occasion but the best group meetings happened when we just talked about different situations we had been in ... like have you ever had "blank" happen or have you felt like "blank" in this situation? what did you do to feel better or how did you feel about it type stuff.
In alot of areas of our lives things are sometimes scary and confusing and it often is just helpful to know that someone else DOES understand. Our friends and family try to relate but they can't in most instances - but in most instances at least 1 person within the group will "get it" even if they do NOT have the same exact issue as you they may have similar feelings about it or experiences nonetheless.
I would not necessarily give assignment type things weekly or monthly (however often the meeting is). I just know for me unless I was paying to go to a class I wouldn't do an assignment and I wouldn't find it helpful but more than likely stressful - especially if you are dealing with people that may have a hard enough time convincing themselves to go to the meeting even though they are hurting or in pain or suffering from whatever they are dealing with.
I know the social worker that runs the transplant support group tries to come up with activities that bring about interaction and sometimes she does things that allow people to ask questions in an anonymous way - like questions in a hat - where she reads the question and no one else (so no decyphering handwriting).
Just trying to get interaction while allowing people to be open and honest about how they feel without fear of judgement for not feeling, acting, or doing certain things in certain ways.
Good Luck with the Support Group I hope you find it very rewarding and am happy that you are starting something like that for all the people it will ultimately help.
Take Care,
Lindsey
The things that I and the people I met found most useful was just getting to talk about the things that we experienced. Yeah we would have special speakers and stuff on occasion but the best group meetings happened when we just talked about different situations we had been in ... like have you ever had "blank" happen or have you felt like "blank" in this situation? what did you do to feel better or how did you feel about it type stuff.
In alot of areas of our lives things are sometimes scary and confusing and it often is just helpful to know that someone else DOES understand. Our friends and family try to relate but they can't in most instances - but in most instances at least 1 person within the group will "get it" even if they do NOT have the same exact issue as you they may have similar feelings about it or experiences nonetheless.
I would not necessarily give assignment type things weekly or monthly (however often the meeting is). I just know for me unless I was paying to go to a class I wouldn't do an assignment and I wouldn't find it helpful but more than likely stressful - especially if you are dealing with people that may have a hard enough time convincing themselves to go to the meeting even though they are hurting or in pain or suffering from whatever they are dealing with.
I know the social worker that runs the transplant support group tries to come up with activities that bring about interaction and sometimes she does things that allow people to ask questions in an anonymous way - like questions in a hat - where she reads the question and no one else (so no decyphering handwriting).
Just trying to get interaction while allowing people to be open and honest about how they feel without fear of judgement for not feeling, acting, or doing certain things in certain ways.
Good Luck with the Support Group I hope you find it very rewarding and am happy that you are starting something like that for all the people it will ultimately help.
Take Care,
Lindsey
coltsfan715
New member
I went to a support group for a while post transplant and quite honestly found it VERY helpful.
The things that I and the people I met found most useful was just getting to talk about the things that we experienced. Yeah we would have special speakers and stuff on occasion but the best group meetings happened when we just talked about different situations we had been in ... like have you ever had "blank" happen or have you felt like "blank" in this situation? what did you do to feel better or how did you feel about it type stuff.
In alot of areas of our lives things are sometimes scary and confusing and it often is just helpful to know that someone else DOES understand. Our friends and family try to relate but they can't in most instances - but in most instances at least 1 person within the group will "get it" even if they do NOT have the same exact issue as you they may have similar feelings about it or experiences nonetheless.
I would not necessarily give assignment type things weekly or monthly (however often the meeting is). I just know for me unless I was paying to go to a class I wouldn't do an assignment and I wouldn't find it helpful but more than likely stressful - especially if you are dealing with people that may have a hard enough time convincing themselves to go to the meeting even though they are hurting or in pain or suffering from whatever they are dealing with.
I know the social worker that runs the transplant support group tries to come up with activities that bring about interaction and sometimes she does things that allow people to ask questions in an anonymous way - like questions in a hat - where she reads the question and no one else (so no decyphering handwriting).
Just trying to get interaction while allowing people to be open and honest about how they feel without fear of judgement for not feeling, acting, or doing certain things in certain ways.
Good Luck with the Support Group I hope you find it very rewarding and am happy that you are starting something like that for all the people it will ultimately help.
Take Care,
Lindsey
The things that I and the people I met found most useful was just getting to talk about the things that we experienced. Yeah we would have special speakers and stuff on occasion but the best group meetings happened when we just talked about different situations we had been in ... like have you ever had "blank" happen or have you felt like "blank" in this situation? what did you do to feel better or how did you feel about it type stuff.
In alot of areas of our lives things are sometimes scary and confusing and it often is just helpful to know that someone else DOES understand. Our friends and family try to relate but they can't in most instances - but in most instances at least 1 person within the group will "get it" even if they do NOT have the same exact issue as you they may have similar feelings about it or experiences nonetheless.
I would not necessarily give assignment type things weekly or monthly (however often the meeting is). I just know for me unless I was paying to go to a class I wouldn't do an assignment and I wouldn't find it helpful but more than likely stressful - especially if you are dealing with people that may have a hard enough time convincing themselves to go to the meeting even though they are hurting or in pain or suffering from whatever they are dealing with.
I know the social worker that runs the transplant support group tries to come up with activities that bring about interaction and sometimes she does things that allow people to ask questions in an anonymous way - like questions in a hat - where she reads the question and no one else (so no decyphering handwriting).
Just trying to get interaction while allowing people to be open and honest about how they feel without fear of judgement for not feeling, acting, or doing certain things in certain ways.
Good Luck with the Support Group I hope you find it very rewarding and am happy that you are starting something like that for all the people it will ultimately help.
Take Care,
Lindsey
coltsfan715
New member
I went to a support group for a while post transplant and quite honestly found it VERY helpful.
The things that I and the people I met found most useful was just getting to talk about the things that we experienced. Yeah we would have special speakers and stuff on occasion but the best group meetings happened when we just talked about different situations we had been in ... like have you ever had "blank" happen or have you felt like "blank" in this situation? what did you do to feel better or how did you feel about it type stuff.
In alot of areas of our lives things are sometimes scary and confusing and it often is just helpful to know that someone else DOES understand. Our friends and family try to relate but they can't in most instances - but in most instances at least 1 person within the group will "get it" even if they do NOT have the same exact issue as you they may have similar feelings about it or experiences nonetheless.
I would not necessarily give assignment type things weekly or monthly (however often the meeting is). I just know for me unless I was paying to go to a class I wouldn't do an assignment and I wouldn't find it helpful but more than likely stressful - especially if you are dealing with people that may have a hard enough time convincing themselves to go to the meeting even though they are hurting or in pain or suffering from whatever they are dealing with.
I know the social worker that runs the transplant support group tries to come up with activities that bring about interaction and sometimes she does things that allow people to ask questions in an anonymous way - like questions in a hat - where she reads the question and no one else (so no decyphering handwriting).
Just trying to get interaction while allowing people to be open and honest about how they feel without fear of judgement for not feeling, acting, or doing certain things in certain ways.
Good Luck with the Support Group I hope you find it very rewarding and am happy that you are starting something like that for all the people it will ultimately help.
Take Care,
Lindsey
The things that I and the people I met found most useful was just getting to talk about the things that we experienced. Yeah we would have special speakers and stuff on occasion but the best group meetings happened when we just talked about different situations we had been in ... like have you ever had "blank" happen or have you felt like "blank" in this situation? what did you do to feel better or how did you feel about it type stuff.
In alot of areas of our lives things are sometimes scary and confusing and it often is just helpful to know that someone else DOES understand. Our friends and family try to relate but they can't in most instances - but in most instances at least 1 person within the group will "get it" even if they do NOT have the same exact issue as you they may have similar feelings about it or experiences nonetheless.
I would not necessarily give assignment type things weekly or monthly (however often the meeting is). I just know for me unless I was paying to go to a class I wouldn't do an assignment and I wouldn't find it helpful but more than likely stressful - especially if you are dealing with people that may have a hard enough time convincing themselves to go to the meeting even though they are hurting or in pain or suffering from whatever they are dealing with.
I know the social worker that runs the transplant support group tries to come up with activities that bring about interaction and sometimes she does things that allow people to ask questions in an anonymous way - like questions in a hat - where she reads the question and no one else (so no decyphering handwriting).
Just trying to get interaction while allowing people to be open and honest about how they feel without fear of judgement for not feeling, acting, or doing certain things in certain ways.
Good Luck with the Support Group I hope you find it very rewarding and am happy that you are starting something like that for all the people it will ultimately help.
Take Care,
Lindsey
coltsfan715
New member
I went to a support group for a while post transplant and quite honestly found it VERY helpful.
The things that I and the people I met found most useful was just getting to talk about the things that we experienced. Yeah we would have special speakers and stuff on occasion but the best group meetings happened when we just talked about different situations we had been in ... like have you ever had "blank" happen or have you felt like "blank" in this situation? what did you do to feel better or how did you feel about it type stuff.
In alot of areas of our lives things are sometimes scary and confusing and it often is just helpful to know that someone else DOES understand. Our friends and family try to relate but they can't in most instances - but in most instances at least 1 person within the group will "get it" even if they do NOT have the same exact issue as you they may have similar feelings about it or experiences nonetheless.
I would not necessarily give assignment type things weekly or monthly (however often the meeting is). I just know for me unless I was paying to go to a class I wouldn't do an assignment and I wouldn't find it helpful but more than likely stressful - especially if you are dealing with people that may have a hard enough time convincing themselves to go to the meeting even though they are hurting or in pain or suffering from whatever they are dealing with.
I know the social worker that runs the transplant support group tries to come up with activities that bring about interaction and sometimes she does things that allow people to ask questions in an anonymous way - like questions in a hat - where she reads the question and no one else (so no decyphering handwriting).
Just trying to get interaction while allowing people to be open and honest about how they feel without fear of judgement for not feeling, acting, or doing certain things in certain ways.
Good Luck with the Support Group I hope you find it very rewarding and am happy that you are starting something like that for all the people it will ultimately help.
Take Care,
Lindsey
The things that I and the people I met found most useful was just getting to talk about the things that we experienced. Yeah we would have special speakers and stuff on occasion but the best group meetings happened when we just talked about different situations we had been in ... like have you ever had "blank" happen or have you felt like "blank" in this situation? what did you do to feel better or how did you feel about it type stuff.
In alot of areas of our lives things are sometimes scary and confusing and it often is just helpful to know that someone else DOES understand. Our friends and family try to relate but they can't in most instances - but in most instances at least 1 person within the group will "get it" even if they do NOT have the same exact issue as you they may have similar feelings about it or experiences nonetheless.
I would not necessarily give assignment type things weekly or monthly (however often the meeting is). I just know for me unless I was paying to go to a class I wouldn't do an assignment and I wouldn't find it helpful but more than likely stressful - especially if you are dealing with people that may have a hard enough time convincing themselves to go to the meeting even though they are hurting or in pain or suffering from whatever they are dealing with.
I know the social worker that runs the transplant support group tries to come up with activities that bring about interaction and sometimes she does things that allow people to ask questions in an anonymous way - like questions in a hat - where she reads the question and no one else (so no decyphering handwriting).
Just trying to get interaction while allowing people to be open and honest about how they feel without fear of judgement for not feeling, acting, or doing certain things in certain ways.
Good Luck with the Support Group I hope you find it very rewarding and am happy that you are starting something like that for all the people it will ultimately help.
Take Care,
Lindsey
coltsfan715
New member
I went to a support group for a while post transplant and quite honestly found it VERY helpful.
<br />
<br />The things that I and the people I met found most useful was just getting to talk about the things that we experienced. Yeah we would have special speakers and stuff on occasion but the best group meetings happened when we just talked about different situations we had been in ... like have you ever had "blank" happen or have you felt like "blank" in this situation? what did you do to feel better or how did you feel about it type stuff.
<br />
<br />In alot of areas of our lives things are sometimes scary and confusing and it often is just helpful to know that someone else DOES understand. Our friends and family try to relate but they can't in most instances - but in most instances at least 1 person within the group will "get it" even if they do NOT have the same exact issue as you they may have similar feelings about it or experiences nonetheless.
<br />
<br />I would not necessarily give assignment type things weekly or monthly (however often the meeting is). I just know for me unless I was paying to go to a class I wouldn't do an assignment and I wouldn't find it helpful but more than likely stressful - especially if you are dealing with people that may have a hard enough time convincing themselves to go to the meeting even though they are hurting or in pain or suffering from whatever they are dealing with.
<br />
<br />I know the social worker that runs the transplant support group tries to come up with activities that bring about interaction and sometimes she does things that allow people to ask questions in an anonymous way - like questions in a hat - where she reads the question and no one else (so no decyphering handwriting).
<br />
<br />Just trying to get interaction while allowing people to be open and honest about how they feel without fear of judgement for not feeling, acting, or doing certain things in certain ways.
<br />
<br />Good Luck with the Support Group I hope you find it very rewarding and am happy that you are starting something like that for all the people it will ultimately help.
<br />
<br />Take Care,
<br />Lindsey
<br />
<br />The things that I and the people I met found most useful was just getting to talk about the things that we experienced. Yeah we would have special speakers and stuff on occasion but the best group meetings happened when we just talked about different situations we had been in ... like have you ever had "blank" happen or have you felt like "blank" in this situation? what did you do to feel better or how did you feel about it type stuff.
<br />
<br />In alot of areas of our lives things are sometimes scary and confusing and it often is just helpful to know that someone else DOES understand. Our friends and family try to relate but they can't in most instances - but in most instances at least 1 person within the group will "get it" even if they do NOT have the same exact issue as you they may have similar feelings about it or experiences nonetheless.
<br />
<br />I would not necessarily give assignment type things weekly or monthly (however often the meeting is). I just know for me unless I was paying to go to a class I wouldn't do an assignment and I wouldn't find it helpful but more than likely stressful - especially if you are dealing with people that may have a hard enough time convincing themselves to go to the meeting even though they are hurting or in pain or suffering from whatever they are dealing with.
<br />
<br />I know the social worker that runs the transplant support group tries to come up with activities that bring about interaction and sometimes she does things that allow people to ask questions in an anonymous way - like questions in a hat - where she reads the question and no one else (so no decyphering handwriting).
<br />
<br />Just trying to get interaction while allowing people to be open and honest about how they feel without fear of judgement for not feeling, acting, or doing certain things in certain ways.
<br />
<br />Good Luck with the Support Group I hope you find it very rewarding and am happy that you are starting something like that for all the people it will ultimately help.
<br />
<br />Take Care,
<br />Lindsey
Mockingbird
New member
I'm planning on having some masks here for anyone who wants to use them. Do you think that is enough?
Mockingbird
New member
I'm planning on having some masks here for anyone who wants to use them. Do you think that is enough?
Mockingbird
New member
I'm planning on having some masks here for anyone who wants to use them. Do you think that is enough?
Mockingbird
New member
I'm planning on having some masks here for anyone who wants to use them. Do you think that is enough?
Mockingbird
New member
I'm planning on having some masks here for anyone who wants to use them. Do you think that is enough?