Pancreantitis

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anonymous

New member
Hello,

I just found out not to long ago that I have recurring pancreantitis due to cystic fibrosis. What a shock! I think it is finally sinking in that I have to take better care of myself if I want to live a long life. Just wondering if anyone else out there has this type of CF and how you are coping, the medical treatments that you are receiving, and any great websites that I could do some research. Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">

Michelle
 
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NoDayButToday

New member
Can you clarify-- were you diganosed with CF due to the pancreatitis or was the pancreatitis diagnosed as a complication of your already diagnosed CF?
 
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anonymous

New member
I had recurring bouts of pancreatitis for 4 years. I finally switched doctors and he sent me for genetic testing and they discovered the CF. I hit me like a ton of bricks. I am now trying to hook up with a CF doctor because I feel I can get better answers to my questions. I am just in the beginning stages of my research.

Thanks!
Michelle
 
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anonymous

New member
Just so you know Pancreatitus is a symptom to CF not a type of CF. There is no medical treatment, I beleive, for Pancreatitus. I was told to eat a lowfat diet. When it flairs up. I have to eat as little as possible but PLENTY of liquid so you don't dehydrate. Because that is the worst thing you can do. You can die from it. So you need to keep hydrated and give your Pancrease time to get back to normal. That's why they reccomend not eating. So it doesn't have to work. Also be careful when your reading on the subject of CF that just because someone has a symptom doesn't mean we all get it. There are so many variations to CF because of genetics. I have severe lung issues but some people don't have any or may not have to the extent I do. Some have severe digestive issues where mine are mild and they just started last year as some have had these issues all their life. So its really hard to pinpoint to say you'll feel this or you'll get that. The very best thing is to get to a CF dr. You can go to Cystic Fibroses Foundation website and they have lists of dr in your area. I was diagnosed at age 30. How old are you? Hope this helps a bit. Becky
 
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anonymous

New member
I don't have weight issues. Your pancrease absorbs fat which is why it hurts because its not able to process all the fat. So yea low fat. At the time I was diagnosed with that I didn't know of my CF. So enzymes were not discussed. Also I only had bouts of it once a year. Still is that way. Becky
 
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anonymous

New member
Thanks for the response. I just got in touch with a CF doctor so hopefully I can get more specific information. Did I mention that I hate low fat food - <img src="i/expressions/face-icon-small-happy.gif" border="0"> I am only 34. Do you get yearly checkups to see if there is damage to your pancreas?

Michelle
 
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anonymous

New member
I didnt like it either but you get used to it. I only use it for cooking. Otherwise I just pay attention to how I feel. I eat fat. Trust me. But I when my pancrease is going to act up I get really tired. I feel a dull ache in my pancrease. But mine is very mild. For now. You'll start recognizing symptoms. Then I cut back on my fat intake. Yes I get blood counts every year. I do eat low fat all the time or no fat in cooking. But I still eat cookies and chips. Becky
 
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