pancreatic sufficiency in 1 kid not other

[Alyssa]

I don't really understand a clinic telling you not to test, unless they have done a very recent <b>full test </b>on your son and figure your daughter will come back with the same Delta F508 and not find the second gene in her as well (assuming too, that both kids have the same parents) I guess the important thing is she is getting the correct treatment from them for now.

If in fact their logic is (as stated above), I'd say wait a few more years until they get some more genes discovered then test the both, hopefully then you will find the 2nd gene in them both. When they first started genetic testing for CF, they only had 400 genes identified, they now have nearly 1600.

I agree with others, it's not really that strange to have two kids, with CF, with the same genes and have them present symptoms differently.

 

[Alyssa]

I don't really understand a clinic telling you not to test, unless they have done a very recent <b>full test </b>on your son and figure your daughter will come back with the same Delta F508 and not find the second gene in her as well (assuming too, that both kids have the same parents) I guess the important thing is she is getting the correct treatment from them for now.

If in fact their logic is (as stated above), I'd say wait a few more years until they get some more genes discovered then test the both, hopefully then you will find the 2nd gene in them both. When they first started genetic testing for CF, they only had 400 genes identified, they now have nearly 1600.

I agree with others, it's not really that strange to have two kids, with CF, with the same genes and have them present symptoms differently.

 

[Alyssa]

I don't really understand a clinic telling you not to test, unless they have done a very recent <b>full test </b>on your son and figure your daughter will come back with the same Delta F508 and not find the second gene in her as well (assuming too, that both kids have the same parents) I guess the important thing is she is getting the correct treatment from them for now.

If in fact their logic is (as stated above), I'd say wait a few more years until they get some more genes discovered then test the both, hopefully then you will find the 2nd gene in them both. When they first started genetic testing for CF, they only had 400 genes identified, they now have nearly 1600.

I agree with others, it's not really that strange to have two kids, with CF, with the same genes and have them present symptoms differently.

 

[Alyssa]

I don't really understand a clinic telling you not to test, unless they have done a very recent <b>full test </b>on your son and figure your daughter will come back with the same Delta F508 and not find the second gene in her as well (assuming too, that both kids have the same parents) I guess the important thing is she is getting the correct treatment from them for now.

If in fact their logic is (as stated above), I'd say wait a few more years until they get some more genes discovered then test the both, hopefully then you will find the 2nd gene in them both. When they first started genetic testing for CF, they only had 400 genes identified, they now have nearly 1600.

I agree with others, it's not really that strange to have two kids, with CF, with the same genes and have them present symptoms differently.

 

[Alyssa]

I don't really understand a clinic telling you not to test, unless they have done a very recent <b>full test </b>on your son and figure your daughter will come back with the same Delta F508 and not find the second gene in her as well (assuming too, that both kids have the same parents) I guess the important thing is she is getting the correct treatment from them for now.

If in fact their logic is (as stated above), I'd say wait a few more years until they get some more genes discovered then test the both, hopefully then you will find the 2nd gene in them both. When they first started genetic testing for CF, they only had 400 genes identified, they now have nearly 1600.

I agree with others, it's not really that strange to have two kids, with CF, with the same genes and have them present symptoms differently.

 

[3gr8kids]

same w/ my two....we know thru genetic that our daughtor has cf...her sweat test was 16....no enzymes for her...........our son however is very diff...he takes enzymes...sweat test 60 and both same mutations...d508 and t1162L.....

 

[3gr8kids]

same w/ my two....we know thru genetic that our daughtor has cf...her sweat test was 16....no enzymes for her...........our son however is very diff...he takes enzymes...sweat test 60 and both same mutations...d508 and t1162L.....

 

[3gr8kids]

same w/ my two....we know thru genetic that our daughtor has cf...her sweat test was 16....no enzymes for her...........our son however is very diff...he takes enzymes...sweat test 60 and both same mutations...d508 and t1162L.....

 

[3gr8kids]

same w/ my two....we know thru genetic that our daughtor has cf...her sweat test was 16....no enzymes for her...........our son however is very diff...he takes enzymes...sweat test 60 and both same mutations...d508 and t1162L.....

 

[3gr8kids]

same w/ my two....we know thru genetic that our daughtor has cf...her sweat test was 16....no enzymes for her...........our son however is very diff...he takes enzymes...sweat test 60 and both same mutations...d508 and t1162L.....

 

[Keepercjr]

I am pancreatic sufficient and have decent health. My brother was born 3.5 years after I was. He was pancreatic insufficient and died when he was only 13 years old. So yes it is possible. My first hospitalization was when I was 16. I don't remember when my brother's was but it was probably when he was around 6-8 years. Can't be certain though.

 

[Keepercjr]

I am pancreatic sufficient and have decent health. My brother was born 3.5 years after I was. He was pancreatic insufficient and died when he was only 13 years old. So yes it is possible. My first hospitalization was when I was 16. I don't remember when my brother's was but it was probably when he was around 6-8 years. Can't be certain though.

 

[Keepercjr]

I am pancreatic sufficient and have decent health. My brother was born 3.5 years after I was. He was pancreatic insufficient and died when he was only 13 years old. So yes it is possible. My first hospitalization was when I was 16. I don't remember when my brother's was but it was probably when he was around 6-8 years. Can't be certain though.

 

[Keepercjr]

I am pancreatic sufficient and have decent health. My brother was born 3.5 years after I was. He was pancreatic insufficient and died when he was only 13 years old. So yes it is possible. My first hospitalization was when I was 16. I don't remember when my brother's was but it was probably when he was around 6-8 years. Can't be certain though.

 

[Keepercjr]

I am pancreatic sufficient and have decent health. My brother was born 3.5 years after I was. He was pancreatic insufficient and died when he was only 13 years old. So yes it is possible. My first hospitalization was when I was 16. I don't remember when my brother's was but it was probably when he was around 6-8 years. Can't be certain though.