Pancreatitis or something????

[baldelocks]

My daughter is two and has been in Hopkins since Jan 3rd. She first started vomiting so we thought she just had a stomach bug. We took her to the er or fluids and they said that she needed to stay. Her amalyase and lypase were elevated along with her liver enzymes. Now three weeks later it is still the same thing. They are even higher now for some reason. The Docs are wanting to do a special mri to look further into things. They have seen some sludging in her gallbladder which makes them think that there could be a stone hiding in there somewhere. She has a ng tube. They are wanting to take it out and put a feeding tube in so they can take her off of the tpn. Anyone been througe this. We were told that her CF was mild. This does not seem mild to me. She is also pancreatic sufficent.

 

[baldelocks]

My daughter is two and has been in Hopkins since Jan 3rd. She first started vomiting so we thought she just had a stomach bug. We took her to the er or fluids and they said that she needed to stay. Her amalyase and lypase were elevated along with her liver enzymes. Now three weeks later it is still the same thing. They are even higher now for some reason. The Docs are wanting to do a special mri to look further into things. They have seen some sludging in her gallbladder which makes them think that there could be a stone hiding in there somewhere. She has a ng tube. They are wanting to take it out and put a feeding tube in so they can take her off of the tpn. Anyone been througe this. We were told that her CF was mild. This does not seem mild to me. She is also pancreatic sufficent.

 

[baldelocks]

My daughter is two and has been in Hopkins since Jan 3rd. She first started vomiting so we thought she just had a stomach bug. We took her to the er or fluids and they said that she needed to stay. Her amalyase and lypase were elevated along with her liver enzymes. Now three weeks later it is still the same thing. They are even higher now for some reason. The Docs are wanting to do a special mri to look further into things. They have seen some sludging in her gallbladder which makes them think that there could be a stone hiding in there somewhere. She has a ng tube. They are wanting to take it out and put a feeding tube in so they can take her off of the tpn. Anyone been througe this. We were told that her CF was mild. This does not seem mild to me. She is also pancreatic sufficent.

 

[baldelocks]

My daughter is two and has been in Hopkins since Jan 3rd. She first started vomiting so we thought she just had a stomach bug. We took her to the er or fluids and they said that she needed to stay. Her amalyase and lypase were elevated along with her liver enzymes. Now three weeks later it is still the same thing. They are even higher now for some reason. The Docs are wanting to do a special mri to look further into things. They have seen some sludging in her gallbladder which makes them think that there could be a stone hiding in there somewhere. She has a ng tube. They are wanting to take it out and put a feeding tube in so they can take her off of the tpn. Anyone been througe this. We were told that her CF was mild. This does not seem mild to me. She is also pancreatic sufficent.

 

[baldelocks]

My daughter is two and has been in Hopkins since Jan 3rd. She first started vomiting so we thought she just had a stomach bug. We took her to the er or fluids and they said that she needed to stay. Her amalyase and lypase were elevated along with her liver enzymes. Now three weeks later it is still the same thing. They are even higher now for some reason. The Docs are wanting to do a special mri to look further into things. They have seen some sludging in her gallbladder which makes them think that there could be a stone hiding in there somewhere. She has a ng tube. They are wanting to take it out and put a feeding tube in so they can take her off of the tpn. Anyone been througe this. We were told that her CF was mild. This does not seem mild to me. She is also pancreatic sufficent.

 

[AnD]

I would say yes to the MRI- I am mostly pancreatic sufficent, but I have had issues with my common bile duct being blocked by a stone/sludge and even infection plus the others issues one time. I'm sorry she's having such a hard time- have they put her on ursidoil (bile thinner for the liver)? Sorry I don't have any more info for you- hopefully, someone else will soon!

 

[AnD]

I would say yes to the MRI- I am mostly pancreatic sufficent, but I have had issues with my common bile duct being blocked by a stone/sludge and even infection plus the others issues one time. I'm sorry she's having such a hard time- have they put her on ursidoil (bile thinner for the liver)? Sorry I don't have any more info for you- hopefully, someone else will soon!

 

[AnD]

I would say yes to the MRI- I am mostly pancreatic sufficent, but I have had issues with my common bile duct being blocked by a stone/sludge and even infection plus the others issues one time. I'm sorry she's having such a hard time- have they put her on ursidoil (bile thinner for the liver)? Sorry I don't have any more info for you- hopefully, someone else will soon!

 

[AnD]

I would say yes to the MRI- I am mostly pancreatic sufficent, but I have had issues with my common bile duct being blocked by a stone/sludge and even infection plus the others issues one time. I'm sorry she's having such a hard time- have they put her on ursidoil (bile thinner for the liver)? Sorry I don't have any more info for you- hopefully, someone else will soon!

 

[AnD]

I would say yes to the MRI- I am mostly pancreatic sufficent, but I have had issues with my common bile duct being blocked by a stone/sludge and even infection plus the others issues one time. I'm sorry she's having such a hard time- have they put her on ursidoil (bile thinner for the liver)? Sorry I don't have any more info for you- hopefully, someone else will soon!

 

[JD]

My son is 4 and he is also pancreatic sufficient. He had pancreatitis twice. His amylase went from <50 normal to 2,000. They also did a special MRI to see more which showed nothing. Pancreatic sufficient patients (in general the milder CF cases) are obviously much more prone to pancreatitis. My son's symptoms disappeared after 2-5 days, but I definitely fear most that this could develop into a chronic problem and the potential loss of all pancreatic fuctions. We now regularly check elastase (pancreatic function) and amylase values. Hope your daughter will be well soon.

 

[JD]

My son is 4 and he is also pancreatic sufficient. He had pancreatitis twice. His amylase went from <50 normal to 2,000. They also did a special MRI to see more which showed nothing. Pancreatic sufficient patients (in general the milder CF cases) are obviously much more prone to pancreatitis. My son's symptoms disappeared after 2-5 days, but I definitely fear most that this could develop into a chronic problem and the potential loss of all pancreatic fuctions. We now regularly check elastase (pancreatic function) and amylase values. Hope your daughter will be well soon.

 

[JD]

My son is 4 and he is also pancreatic sufficient. He had pancreatitis twice. His amylase went from <50 normal to 2,000. They also did a special MRI to see more which showed nothing. Pancreatic sufficient patients (in general the milder CF cases) are obviously much more prone to pancreatitis. My son's symptoms disappeared after 2-5 days, but I definitely fear most that this could develop into a chronic problem and the potential loss of all pancreatic fuctions. We now regularly check elastase (pancreatic function) and amylase values. Hope your daughter will be well soon.

 

[JD]

My son is 4 and he is also pancreatic sufficient. He had pancreatitis twice. His amylase went from <50 normal to 2,000. They also did a special MRI to see more which showed nothing. Pancreatic sufficient patients (in general the milder CF cases) are obviously much more prone to pancreatitis. My son's symptoms disappeared after 2-5 days, but I definitely fear most that this could develop into a chronic problem and the potential loss of all pancreatic fuctions. We now regularly check elastase (pancreatic function) and amylase values. Hope your daughter will be well soon.

 

[JD]

My son is 4 and he is also pancreatic sufficient. He had pancreatitis twice. His amylase went from <50 normal to 2,000. They also did a special MRI to see more which showed nothing. Pancreatic sufficient patients (in general the milder CF cases) are obviously much more prone to pancreatitis. My son's symptoms disappeared after 2-5 days, but I definitely fear most that this could develop into a chronic problem and the potential loss of all pancreatic fuctions. We now regularly check elastase (pancreatic function) and amylase values. Hope your daughter will be well soon.

 

[mattsmom]

My son is 10 yrs now, he is also pacreatic insufficent. 2 years ago his lipase was up to 10,000, he was not allowed to drink or eat for 10 days, then he was fine, they did an MRI thinking there was a gall stone logged in his pancreas - nothing found. This past Dec. 17th he went back into the hospital for cramping and blockage, they found a incapasitated stool next to apprendix and on the 28th he had his apprendix removed, came home on feeling good on the 29th. On Jan 2nd he was back in the hospital for cramping, plugged again, flushed him out he was then released 6 days later, home for another 2 weeks, he was then readmitted for the same thing, however, he would not take the neg tube kept throwing it up so they then put the feeding tube in. He was released last Friday, then we spend all day yesterday in emergency - same thing. I wish we would have gotten the feeding tube when he was younger. He is very depressed, so I suggest getting the feeding tube now, while your daughter is younger. I do not know if this helped, but I just had to get it out.

 

[mattsmom]

My son is 10 yrs now, he is also pacreatic insufficent. 2 years ago his lipase was up to 10,000, he was not allowed to drink or eat for 10 days, then he was fine, they did an MRI thinking there was a gall stone logged in his pancreas - nothing found. This past Dec. 17th he went back into the hospital for cramping and blockage, they found a incapasitated stool next to apprendix and on the 28th he had his apprendix removed, came home on feeling good on the 29th. On Jan 2nd he was back in the hospital for cramping, plugged again, flushed him out he was then released 6 days later, home for another 2 weeks, he was then readmitted for the same thing, however, he would not take the neg tube kept throwing it up so they then put the feeding tube in. He was released last Friday, then we spend all day yesterday in emergency - same thing. I wish we would have gotten the feeding tube when he was younger. He is very depressed, so I suggest getting the feeding tube now, while your daughter is younger. I do not know if this helped, but I just had to get it out.

 

[mattsmom]

My son is 10 yrs now, he is also pacreatic insufficent. 2 years ago his lipase was up to 10,000, he was not allowed to drink or eat for 10 days, then he was fine, they did an MRI thinking there was a gall stone logged in his pancreas - nothing found. This past Dec. 17th he went back into the hospital for cramping and blockage, they found a incapasitated stool next to apprendix and on the 28th he had his apprendix removed, came home on feeling good on the 29th. On Jan 2nd he was back in the hospital for cramping, plugged again, flushed him out he was then released 6 days later, home for another 2 weeks, he was then readmitted for the same thing, however, he would not take the neg tube kept throwing it up so they then put the feeding tube in. He was released last Friday, then we spend all day yesterday in emergency - same thing. I wish we would have gotten the feeding tube when he was younger. He is very depressed, so I suggest getting the feeding tube now, while your daughter is younger. I do not know if this helped, but I just had to get it out.

 

[mattsmom]

My son is 10 yrs now, he is also pacreatic insufficent. 2 years ago his lipase was up to 10,000, he was not allowed to drink or eat for 10 days, then he was fine, they did an MRI thinking there was a gall stone logged in his pancreas - nothing found. This past Dec. 17th he went back into the hospital for cramping and blockage, they found a incapasitated stool next to apprendix and on the 28th he had his apprendix removed, came home on feeling good on the 29th. On Jan 2nd he was back in the hospital for cramping, plugged again, flushed him out he was then released 6 days later, home for another 2 weeks, he was then readmitted for the same thing, however, he would not take the neg tube kept throwing it up so they then put the feeding tube in. He was released last Friday, then we spend all day yesterday in emergency - same thing. I wish we would have gotten the feeding tube when he was younger. He is very depressed, so I suggest getting the feeding tube now, while your daughter is younger. I do not know if this helped, but I just had to get it out.

 

[mattsmom]

My son is 10 yrs now, he is also pacreatic insufficent. 2 years ago his lipase was up to 10,000, he was not allowed to drink or eat for 10 days, then he was fine, they did an MRI thinking there was a gall stone logged in his pancreas - nothing found. This past Dec. 17th he went back into the hospital for cramping and blockage, they found a incapasitated stool next to apprendix and on the 28th he had his apprendix removed, came home on feeling good on the 29th. On Jan 2nd he was back in the hospital for cramping, plugged again, flushed him out he was then released 6 days later, home for another 2 weeks, he was then readmitted for the same thing, however, he would not take the neg tube kept throwing it up so they then put the feeding tube in. He was released last Friday, then we spend all day yesterday in emergency - same thing. I wish we would have gotten the feeding tube when he was younger. He is very depressed, so I suggest getting the feeding tube now, while your daughter is younger. I do not know if this helped, but I just had to get it out.