Parents of Infants with CF

M

MargaritaChic

New member
Just wondering how many of us there are on here. It would be nice to 'talk' with eat of you and sort of compare notes.

What is your child's name?
Boy or Girl?
How old is your child?
How is your child doing?
What medications is your child on?
What therapies is your child doing?
Has your child hit any baby milestones?
 
M

MargaritaChic

New member
Just wondering how many of us there are on here. It would be nice to 'talk' with eat of you and sort of compare notes.

What is your child's name?
Boy or Girl?
How old is your child?
How is your child doing?
What medications is your child on?
What therapies is your child doing?
Has your child hit any baby milestones?
 
M

MargaritaChic

New member
Just wondering how many of us there are on here. It would be nice to 'talk' with eat of you and sort of compare notes.

What is your child's name?
Boy or Girl?
How old is your child?
How is your child doing?
What medications is your child on?
What therapies is your child doing?
Has your child hit any baby milestones?
 
M

MargaritaChic

New member
Just wondering how many of us there are on here. It would be nice to 'talk' with eat of you and sort of compare notes.

What is your child's name?
Boy or Girl?
How old is your child?
How is your child doing?
What medications is your child on?
What therapies is your child doing?
Has your child hit any baby milestones?
 
M

MargaritaChic

New member
Just wondering how many of us there are on here. It would be nice to 'talk' with eat of you and sort of compare notes.
<br />
<br />What is your child's name?
<br />Boy or Girl?
<br />How old is your child?
<br />How is your child doing?
<br />What medications is your child on?
<br />What therapies is your child doing?
<br />Has your child hit any baby milestones?
 
M

MargaritaChic

New member
<b>What is your child's name? </b>
Emma

<b>Boy or Girl? </b>
Girl

<b>How old is your child? </b>
About 4 1/2 months

<b>How is your child doing? </b>
She is doing well. She had a cold recently but it is cleared up now.

<b>What medications is your child on? </b>
Creon 5 (2 1/2 per feeding), prevacid, liquid vitamins

<b>What therapies is your child doing? </b>
Neb with a mixture of mucomyst & albuterol - 2 times a day.
CPT 2 times a day.

<b>Has your child hit any baby milestones? </b>
She is lifting her head, sitting up with help, babbling, and teething.
 
M

MargaritaChic

New member
<b>What is your child's name? </b>
Emma

<b>Boy or Girl? </b>
Girl

<b>How old is your child? </b>
About 4 1/2 months

<b>How is your child doing? </b>
She is doing well. She had a cold recently but it is cleared up now.

<b>What medications is your child on? </b>
Creon 5 (2 1/2 per feeding), prevacid, liquid vitamins

<b>What therapies is your child doing? </b>
Neb with a mixture of mucomyst & albuterol - 2 times a day.
CPT 2 times a day.

<b>Has your child hit any baby milestones? </b>
She is lifting her head, sitting up with help, babbling, and teething.
 
M

MargaritaChic

New member
<b>What is your child's name? </b>
Emma

<b>Boy or Girl? </b>
Girl

<b>How old is your child? </b>
About 4 1/2 months

<b>How is your child doing? </b>
She is doing well. She had a cold recently but it is cleared up now.

<b>What medications is your child on? </b>
Creon 5 (2 1/2 per feeding), prevacid, liquid vitamins

<b>What therapies is your child doing? </b>
Neb with a mixture of mucomyst & albuterol - 2 times a day.
CPT 2 times a day.

<b>Has your child hit any baby milestones? </b>
She is lifting her head, sitting up with help, babbling, and teething.
 
M

MargaritaChic

New member
<b>What is your child's name? </b>
Emma

<b>Boy or Girl? </b>
Girl

<b>How old is your child? </b>
About 4 1/2 months

<b>How is your child doing? </b>
She is doing well. She had a cold recently but it is cleared up now.

<b>What medications is your child on? </b>
Creon 5 (2 1/2 per feeding), prevacid, liquid vitamins

<b>What therapies is your child doing? </b>
Neb with a mixture of mucomyst & albuterol - 2 times a day.
CPT 2 times a day.

<b>Has your child hit any baby milestones? </b>
She is lifting her head, sitting up with help, babbling, and teething.
 
M

MargaritaChic

New member
<b>What is your child's name? </b>
<br />Emma
<br />
<br /><b>Boy or Girl? </b>
<br />Girl
<br />
<br /><b>How old is your child? </b>
<br />About 4 1/2 months
<br />
<br /><b>How is your child doing? </b>
<br />She is doing well. She had a cold recently but it is cleared up now.
<br />
<br /><b>What medications is your child on? </b>
<br />Creon 5 (2 1/2 per feeding), prevacid, liquid vitamins
<br />
<br /><b>What therapies is your child doing? </b>
<br />Neb with a mixture of mucomyst & albuterol - 2 times a day.
<br />CPT 2 times a day.
<br />
<br /><b>Has your child hit any baby milestones? </b>
<br />She is lifting her head, sitting up with help, babbling, and teething.
 
N

nicole781

New member
What is your child's name?
Alexa

Boy or Girl?
Girl

How old is your child?
10 months

How is your child doing?
She is doing great! She cultured PA during the winter, but has come up totally clear for the past 4 months!

What medications is your child on?
Creon 5 (3 per meal), Vitamins, Zantac, Duocal if you want to count that

What therapies is your child doing?
Nebs of albuterol and Pulmozyme once a day. PT once a day too, as long as she's healthy.

Has your child hit any baby milestones?
She started crawling!! There's no stopping her now!!
 
N

nicole781

New member
What is your child's name?
Alexa

Boy or Girl?
Girl

How old is your child?
10 months

How is your child doing?
She is doing great! She cultured PA during the winter, but has come up totally clear for the past 4 months!

What medications is your child on?
Creon 5 (3 per meal), Vitamins, Zantac, Duocal if you want to count that

What therapies is your child doing?
Nebs of albuterol and Pulmozyme once a day. PT once a day too, as long as she's healthy.

Has your child hit any baby milestones?
She started crawling!! There's no stopping her now!!
 
N

nicole781

New member
What is your child's name?
Alexa

Boy or Girl?
Girl

How old is your child?
10 months

How is your child doing?
She is doing great! She cultured PA during the winter, but has come up totally clear for the past 4 months!

What medications is your child on?
Creon 5 (3 per meal), Vitamins, Zantac, Duocal if you want to count that

What therapies is your child doing?
Nebs of albuterol and Pulmozyme once a day. PT once a day too, as long as she's healthy.

Has your child hit any baby milestones?
She started crawling!! There's no stopping her now!!
 
N

nicole781

New member
What is your child's name?
Alexa

Boy or Girl?
Girl

How old is your child?
10 months

How is your child doing?
She is doing great! She cultured PA during the winter, but has come up totally clear for the past 4 months!

What medications is your child on?
Creon 5 (3 per meal), Vitamins, Zantac, Duocal if you want to count that

What therapies is your child doing?
Nebs of albuterol and Pulmozyme once a day. PT once a day too, as long as she's healthy.

Has your child hit any baby milestones?
She started crawling!! There's no stopping her now!!
 
N

nicole781

New member
What is your child's name?
<br />Alexa
<br />
<br />Boy or Girl?
<br />Girl
<br />
<br />How old is your child?
<br />10 months
<br />
<br />How is your child doing?
<br />She is doing great! She cultured PA during the winter, but has come up totally clear for the past 4 months!
<br />
<br />What medications is your child on?
<br />Creon 5 (3 per meal), Vitamins, Zantac, Duocal if you want to count that
<br />
<br />What therapies is your child doing?
<br />Nebs of albuterol and Pulmozyme once a day. PT once a day too, as long as she's healthy.
<br />
<br />Has your child hit any baby milestones?
<br />She started crawling!! There's no stopping her now!!
<br />
<br />
 
S

shimmereestar

New member
Hi Marla<img src="i/expressions/face-icon-small-smile.gif" border="0">

What is your child's name? Ellie (short for Bethellen but we call her Ell Bell too)
Boy or Girl? Girl
How old is your child? She will be 5 months on the 20th. I can't believe it
How is your child doing? Right now she's doing great. She still has her broviac just in case she needs it, but we've been off antibiotics for a month. Maybe still breathing a bit fast but we go back to the doc tomorrow.
What medications is your child on? She is on creon5 (2 per feeding), regalan (4 times a day), prevacid, robitussin, and vitamaxx (it tastes a little better than Adeks). We just got off of orapred.
What therapies is your child doing? She does Xopenex 4 times a day, pulmozyne 2 times a day, flovent 2 times a day and cpt 3-4 times a day for approximately 10 minutes each.
Has your child hit any baby milestones? Ellie is putting everything in her mouth. She is beginning solids, and really close to rolling from her back to stomach. She already rolls from her stomach to back.
 
S

shimmereestar

New member
Hi Marla<img src="i/expressions/face-icon-small-smile.gif" border="0">

What is your child's name? Ellie (short for Bethellen but we call her Ell Bell too)
Boy or Girl? Girl
How old is your child? She will be 5 months on the 20th. I can't believe it
How is your child doing? Right now she's doing great. She still has her broviac just in case she needs it, but we've been off antibiotics for a month. Maybe still breathing a bit fast but we go back to the doc tomorrow.
What medications is your child on? She is on creon5 (2 per feeding), regalan (4 times a day), prevacid, robitussin, and vitamaxx (it tastes a little better than Adeks). We just got off of orapred.
What therapies is your child doing? She does Xopenex 4 times a day, pulmozyne 2 times a day, flovent 2 times a day and cpt 3-4 times a day for approximately 10 minutes each.
Has your child hit any baby milestones? Ellie is putting everything in her mouth. She is beginning solids, and really close to rolling from her back to stomach. She already rolls from her stomach to back.
 
S

shimmereestar

New member
Hi Marla<img src="i/expressions/face-icon-small-smile.gif" border="0">

What is your child's name? Ellie (short for Bethellen but we call her Ell Bell too)
Boy or Girl? Girl
How old is your child? She will be 5 months on the 20th. I can't believe it
How is your child doing? Right now she's doing great. She still has her broviac just in case she needs it, but we've been off antibiotics for a month. Maybe still breathing a bit fast but we go back to the doc tomorrow.
What medications is your child on? She is on creon5 (2 per feeding), regalan (4 times a day), prevacid, robitussin, and vitamaxx (it tastes a little better than Adeks). We just got off of orapred.
What therapies is your child doing? She does Xopenex 4 times a day, pulmozyne 2 times a day, flovent 2 times a day and cpt 3-4 times a day for approximately 10 minutes each.
Has your child hit any baby milestones? Ellie is putting everything in her mouth. She is beginning solids, and really close to rolling from her back to stomach. She already rolls from her stomach to back.
 
S

shimmereestar

New member
Hi Marla<img src="i/expressions/face-icon-small-smile.gif" border="0">

What is your child's name? Ellie (short for Bethellen but we call her Ell Bell too)
Boy or Girl? Girl
How old is your child? She will be 5 months on the 20th. I can't believe it
How is your child doing? Right now she's doing great. She still has her broviac just in case she needs it, but we've been off antibiotics for a month. Maybe still breathing a bit fast but we go back to the doc tomorrow.
What medications is your child on? She is on creon5 (2 per feeding), regalan (4 times a day), prevacid, robitussin, and vitamaxx (it tastes a little better than Adeks). We just got off of orapred.
What therapies is your child doing? She does Xopenex 4 times a day, pulmozyne 2 times a day, flovent 2 times a day and cpt 3-4 times a day for approximately 10 minutes each.
Has your child hit any baby milestones? Ellie is putting everything in her mouth. She is beginning solids, and really close to rolling from her back to stomach. She already rolls from her stomach to back.
 
S

shimmereestar

New member
Hi Marla<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />What is your child's name? Ellie (short for Bethellen but we call her Ell Bell too)
<br />Boy or Girl? Girl
<br />How old is your child? She will be 5 months on the 20th. I can't believe it
<br />How is your child doing? Right now she's doing great. She still has her broviac just in case she needs it, but we've been off antibiotics for a month. Maybe still breathing a bit fast but we go back to the doc tomorrow.
<br />What medications is your child on? She is on creon5 (2 per feeding), regalan (4 times a day), prevacid, robitussin, and vitamaxx (it tastes a little better than Adeks). We just got off of orapred.
<br />What therapies is your child doing? She does Xopenex 4 times a day, pulmozyne 2 times a day, flovent 2 times a day and cpt 3-4 times a day for approximately 10 minutes each.
<br />Has your child hit any baby milestones? Ellie is putting everything in her mouth. She is beginning solids, and really close to rolling from her back to stomach. She already rolls from her stomach to back.
<br />
 
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