Parents of Infants with CF

S

sdavis227

New member
<b>What is your child's name?</b>
Parker

<b>Boy or Girl?</b>
Boy

<b>How old is your child?</b>
13months

<b>How is your child doing?</b>
Parker is doing great as far as his lungs go. He's only been on antibiotics twice, once for an ear infection and another for a cough that didn't want to go away. Last culture he was culturing Staph and Klebciela(sp?)

His weight, on the other hand, has been difficult pretty much since birth. He has a mic-key button and we constantly are trying to up the fat in his food. He is always on the max dose of enzymes and we still struggle with the weight.

<b>What medications is your child on?</b>
Parker is on Creon-10(max 10per day)
Was on Prevacid but currently on Zantac
SourceCF ABDEK vitamins 1mL*2 per day
Albuterol as needed (when he has a cough)

<b>What therapies is your child doing?</b>
The Vest 20min*2per day

<b>Has your child hit any baby milestones? </b>
Parker was walking right before a year and has been a very busy body since. He isn't talking too much (as I thought he would since he has an older brother). He's starting to crawl on top of things and get into trouble quite a bit.
 
S

sdavis227

New member
<b>What is your child's name?</b>
Parker

<b>Boy or Girl?</b>
Boy

<b>How old is your child?</b>
13months

<b>How is your child doing?</b>
Parker is doing great as far as his lungs go. He's only been on antibiotics twice, once for an ear infection and another for a cough that didn't want to go away. Last culture he was culturing Staph and Klebciela(sp?)

His weight, on the other hand, has been difficult pretty much since birth. He has a mic-key button and we constantly are trying to up the fat in his food. He is always on the max dose of enzymes and we still struggle with the weight.

<b>What medications is your child on?</b>
Parker is on Creon-10(max 10per day)
Was on Prevacid but currently on Zantac
SourceCF ABDEK vitamins 1mL*2 per day
Albuterol as needed (when he has a cough)

<b>What therapies is your child doing?</b>
The Vest 20min*2per day

<b>Has your child hit any baby milestones? </b>
Parker was walking right before a year and has been a very busy body since. He isn't talking too much (as I thought he would since he has an older brother). He's starting to crawl on top of things and get into trouble quite a bit.
 
S

sdavis227

New member
<b>What is your child's name?</b>
Parker

<b>Boy or Girl?</b>
Boy

<b>How old is your child?</b>
13months

<b>How is your child doing?</b>
Parker is doing great as far as his lungs go. He's only been on antibiotics twice, once for an ear infection and another for a cough that didn't want to go away. Last culture he was culturing Staph and Klebciela(sp?)

His weight, on the other hand, has been difficult pretty much since birth. He has a mic-key button and we constantly are trying to up the fat in his food. He is always on the max dose of enzymes and we still struggle with the weight.

<b>What medications is your child on?</b>
Parker is on Creon-10(max 10per day)
Was on Prevacid but currently on Zantac
SourceCF ABDEK vitamins 1mL*2 per day
Albuterol as needed (when he has a cough)

<b>What therapies is your child doing?</b>
The Vest 20min*2per day

<b>Has your child hit any baby milestones? </b>
Parker was walking right before a year and has been a very busy body since. He isn't talking too much (as I thought he would since he has an older brother). He's starting to crawl on top of things and get into trouble quite a bit.
 
S

sdavis227

New member
<b>What is your child's name?</b>
Parker

<b>Boy or Girl?</b>
Boy

<b>How old is your child?</b>
13months

<b>How is your child doing?</b>
Parker is doing great as far as his lungs go. He's only been on antibiotics twice, once for an ear infection and another for a cough that didn't want to go away. Last culture he was culturing Staph and Klebciela(sp?)

His weight, on the other hand, has been difficult pretty much since birth. He has a mic-key button and we constantly are trying to up the fat in his food. He is always on the max dose of enzymes and we still struggle with the weight.

<b>What medications is your child on?</b>
Parker is on Creon-10(max 10per day)
Was on Prevacid but currently on Zantac
SourceCF ABDEK vitamins 1mL*2 per day
Albuterol as needed (when he has a cough)

<b>What therapies is your child doing?</b>
The Vest 20min*2per day

<b>Has your child hit any baby milestones? </b>
Parker was walking right before a year and has been a very busy body since. He isn't talking too much (as I thought he would since he has an older brother). He's starting to crawl on top of things and get into trouble quite a bit.
 
S

sdavis227

New member
<b>What is your child's name?</b>
<br />Parker
<br />
<br /><b>Boy or Girl?</b>
<br />Boy
<br />
<br /><b>How old is your child?</b>
<br />13months
<br />
<br /><b>How is your child doing?</b>
<br />Parker is doing great as far as his lungs go. He's only been on antibiotics twice, once for an ear infection and another for a cough that didn't want to go away. Last culture he was culturing Staph and Klebciela(sp?)
<br />
<br />His weight, on the other hand, has been difficult pretty much since birth. He has a mic-key button and we constantly are trying to up the fat in his food. He is always on the max dose of enzymes and we still struggle with the weight.
<br />
<br /><b>What medications is your child on?</b>
<br />Parker is on Creon-10(max 10per day)
<br />Was on Prevacid but currently on Zantac
<br />SourceCF ABDEK vitamins 1mL*2 per day
<br />Albuterol as needed (when he has a cough)
<br />
<br /><b>What therapies is your child doing?</b>
<br />The Vest 20min*2per day
<br />
<br /><b>Has your child hit any baby milestones? </b>
<br />Parker was walking right before a year and has been a very busy body since. He isn't talking too much (as I thought he would since he has an older brother). He's starting to crawl on top of things and get into trouble quite a bit.
 
J

juls

Guest
What is your child's name?
Isabella

Boy or Girl?
Girl

How old is your child?
14 months (not an infant anymore!)
How is your child doing?
She is doing very well. She cultured pseudomonas when she was first diagnosed last May and has been culturing it on and off since then. Her last positive culture was in Sept. so we hope it is now gone for good!

What medications is your child on?
Creon 5 - 3 with each meal
Aquadeks vitamins
Xopenex twice a day
TOBI twic a day (every other month)
She has been on Cipro twice because of the pseudo...I hated having to give her that!

What therapies is your child doing?
Vest - 30 minutes twice a day

Has your child hit any baby milestones?
She crawls and scoots right now. If she is on the carpet, she will crawl,and if she is on the tile she will scoot on her bottom. She has figured out which is the most efficient based on the surface! She says a few words with her favorite being 'go' and 'uh oh'!
 
J

juls

Guest
What is your child's name?
Isabella

Boy or Girl?
Girl

How old is your child?
14 months (not an infant anymore!)
How is your child doing?
She is doing very well. She cultured pseudomonas when she was first diagnosed last May and has been culturing it on and off since then. Her last positive culture was in Sept. so we hope it is now gone for good!

What medications is your child on?
Creon 5 - 3 with each meal
Aquadeks vitamins
Xopenex twice a day
TOBI twic a day (every other month)
She has been on Cipro twice because of the pseudo...I hated having to give her that!

What therapies is your child doing?
Vest - 30 minutes twice a day

Has your child hit any baby milestones?
She crawls and scoots right now. If she is on the carpet, she will crawl,and if she is on the tile she will scoot on her bottom. She has figured out which is the most efficient based on the surface! She says a few words with her favorite being 'go' and 'uh oh'!
 
J

juls

Guest
What is your child's name?
Isabella

Boy or Girl?
Girl

How old is your child?
14 months (not an infant anymore!)
How is your child doing?
She is doing very well. She cultured pseudomonas when she was first diagnosed last May and has been culturing it on and off since then. Her last positive culture was in Sept. so we hope it is now gone for good!

What medications is your child on?
Creon 5 - 3 with each meal
Aquadeks vitamins
Xopenex twice a day
TOBI twic a day (every other month)
She has been on Cipro twice because of the pseudo...I hated having to give her that!

What therapies is your child doing?
Vest - 30 minutes twice a day

Has your child hit any baby milestones?
She crawls and scoots right now. If she is on the carpet, she will crawl,and if she is on the tile she will scoot on her bottom. She has figured out which is the most efficient based on the surface! She says a few words with her favorite being 'go' and 'uh oh'!
 
J

juls

Guest
What is your child's name?
Isabella

Boy or Girl?
Girl

How old is your child?
14 months (not an infant anymore!)
How is your child doing?
She is doing very well. She cultured pseudomonas when she was first diagnosed last May and has been culturing it on and off since then. Her last positive culture was in Sept. so we hope it is now gone for good!

What medications is your child on?
Creon 5 - 3 with each meal
Aquadeks vitamins
Xopenex twice a day
TOBI twic a day (every other month)
She has been on Cipro twice because of the pseudo...I hated having to give her that!

What therapies is your child doing?
Vest - 30 minutes twice a day

Has your child hit any baby milestones?
She crawls and scoots right now. If she is on the carpet, she will crawl,and if she is on the tile she will scoot on her bottom. She has figured out which is the most efficient based on the surface! She says a few words with her favorite being 'go' and 'uh oh'!
 
J

juls

Guest
What is your child's name?
<br />Isabella
<br />
<br />Boy or Girl?
<br />Girl
<br />
<br />How old is your child?
<br />14 months (not an infant anymore!)
<br />How is your child doing?
<br />She is doing very well. She cultured pseudomonas when she was first diagnosed last May and has been culturing it on and off since then. Her last positive culture was in Sept. so we hope it is now gone for good!
<br />
<br />What medications is your child on?
<br />Creon 5 - 3 with each meal
<br />Aquadeks vitamins
<br />Xopenex twice a day
<br />TOBI twic a day (every other month)
<br />She has been on Cipro twice because of the pseudo...I hated having to give her that!
<br />
<br />What therapies is your child doing?
<br />Vest - 30 minutes twice a day
<br />
<br />Has your child hit any baby milestones?
<br />She crawls and scoots right now. If she is on the carpet, she will crawl,and if she is on the tile she will scoot on her bottom. She has figured out which is the most efficient based on the surface! She says a few words with her favorite being 'go' and 'uh oh'!
 
S

SARAHSARAH253

New member
What is your child's name?
Johnny
Boy or Girl?
Boy

How old is your child?
8 months today...8/17/07 Birthday
How is your child doing?
Johnny is doing great no colds all winter, and every throat culture has came back negative.

His weight, on the other hand, has been difficult because his legth is so long. We had a CF clinic visit on MOnday, and we don't have to go back for whole 8 weeks. I can't remember the last time I went over a month with no doctors appointment...This is very exciting<img src="i/expressions/face-icon-small-smile.gif" border="0">

What medications is your child on?
Vitamax 1 ml
.24 Iron sulfate 2 xs a day
1/4 tsp. of salt daily
1 puff of abuteral with spacer befor bed, follwed with pulmozyme.

What therapies is your child doing?
CPT...once in the morning..once in the evening before nebulizer and bed time.

Has your child hit any baby milestones?
Johnny is rolling over holding up his head. Reaching for everything. He hasn't crawled yet...He was born at 34 weeks so he may be slower<img src="i/expressions/face-icon-small-smile.gif" border="0">

-------------------------
Sarah mother to Johnny 8/month old w/cf..he is are our only child....
 
S

SARAHSARAH253

New member
What is your child's name?
Johnny
Boy or Girl?
Boy

How old is your child?
8 months today...8/17/07 Birthday
How is your child doing?
Johnny is doing great no colds all winter, and every throat culture has came back negative.

His weight, on the other hand, has been difficult because his legth is so long. We had a CF clinic visit on MOnday, and we don't have to go back for whole 8 weeks. I can't remember the last time I went over a month with no doctors appointment...This is very exciting<img src="i/expressions/face-icon-small-smile.gif" border="0">

What medications is your child on?
Vitamax 1 ml
.24 Iron sulfate 2 xs a day
1/4 tsp. of salt daily
1 puff of abuteral with spacer befor bed, follwed with pulmozyme.

What therapies is your child doing?
CPT...once in the morning..once in the evening before nebulizer and bed time.

Has your child hit any baby milestones?
Johnny is rolling over holding up his head. Reaching for everything. He hasn't crawled yet...He was born at 34 weeks so he may be slower<img src="i/expressions/face-icon-small-smile.gif" border="0">

-------------------------
Sarah mother to Johnny 8/month old w/cf..he is are our only child....
 
S

SARAHSARAH253

New member
What is your child's name?
Johnny
Boy or Girl?
Boy

How old is your child?
8 months today...8/17/07 Birthday
How is your child doing?
Johnny is doing great no colds all winter, and every throat culture has came back negative.

His weight, on the other hand, has been difficult because his legth is so long. We had a CF clinic visit on MOnday, and we don't have to go back for whole 8 weeks. I can't remember the last time I went over a month with no doctors appointment...This is very exciting<img src="i/expressions/face-icon-small-smile.gif" border="0">

What medications is your child on?
Vitamax 1 ml
.24 Iron sulfate 2 xs a day
1/4 tsp. of salt daily
1 puff of abuteral with spacer befor bed, follwed with pulmozyme.

What therapies is your child doing?
CPT...once in the morning..once in the evening before nebulizer and bed time.

Has your child hit any baby milestones?
Johnny is rolling over holding up his head. Reaching for everything. He hasn't crawled yet...He was born at 34 weeks so he may be slower<img src="i/expressions/face-icon-small-smile.gif" border="0">

-------------------------
Sarah mother to Johnny 8/month old w/cf..he is are our only child....
 
S

SARAHSARAH253

New member
What is your child's name?
Johnny
Boy or Girl?
Boy

How old is your child?
8 months today...8/17/07 Birthday
How is your child doing?
Johnny is doing great no colds all winter, and every throat culture has came back negative.

His weight, on the other hand, has been difficult because his legth is so long. We had a CF clinic visit on MOnday, and we don't have to go back for whole 8 weeks. I can't remember the last time I went over a month with no doctors appointment...This is very exciting<img src="i/expressions/face-icon-small-smile.gif" border="0">

What medications is your child on?
Vitamax 1 ml
.24 Iron sulfate 2 xs a day
1/4 tsp. of salt daily
1 puff of abuteral with spacer befor bed, follwed with pulmozyme.

What therapies is your child doing?
CPT...once in the morning..once in the evening before nebulizer and bed time.

Has your child hit any baby milestones?
Johnny is rolling over holding up his head. Reaching for everything. He hasn't crawled yet...He was born at 34 weeks so he may be slower<img src="i/expressions/face-icon-small-smile.gif" border="0">

-------------------------
Sarah mother to Johnny 8/month old w/cf..he is are our only child....
 
S

SARAHSARAH253

New member
What is your child's name?
<br />Johnny
<br />Boy or Girl?
<br />Boy
<br />
<br />How old is your child?
<br />8 months today...8/17/07 Birthday
<br />How is your child doing?
<br />Johnny is doing great no colds all winter, and every throat culture has came back negative.
<br />
<br />His weight, on the other hand, has been difficult because his legth is so long. We had a CF clinic visit on MOnday, and we don't have to go back for whole 8 weeks. I can't remember the last time I went over a month with no doctors appointment...This is very exciting<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />What medications is your child on?
<br />Vitamax 1 ml
<br />.24 Iron sulfate 2 xs a day
<br />1/4 tsp. of salt daily
<br />1 puff of abuteral with spacer befor bed, follwed with pulmozyme.
<br />
<br />What therapies is your child doing?
<br />CPT...once in the morning..once in the evening before nebulizer and bed time.
<br />
<br />Has your child hit any baby milestones?
<br />Johnny is rolling over holding up his head. Reaching for everything. He hasn't crawled yet...He was born at 34 weeks so he may be slower<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />-------------------------
<br />Sarah mother to Johnny 8/month old w/cf..he is are our only child....
 
S

SARAHSARAH253

New member
What is your child's name?
Johnny
Boy or Girl?
Boy

How old is your child?
8 months today...8/17/07 Birthday
How is your child doing?
Johnny is doing great no colds all winter, and every throat culture has came back negative.

His weight, on the other hand, has been difficult because his legth is so long. We had a CF clinic visit on MOnday, and we don't have to go back for whole 8 weeks. I can't remember the last time I went over a month with no doctors appointment...This is very exciting<img src="i/expressions/face-icon-small-smile.gif" border="0">

What medications is your child on?
Vitamax 1 ml
.24 Iron sulfate 2 xs a day
1/4 tsp. of salt daily
1 puff of abuteral with spacer befor bed, follwed with pulmozyme.

What therapies is your child doing?
CPT...once in the morning..once in the evening before nebulizer and bed time.

Has your child hit any baby milestones?
Johnny is rolling over holding up his head. Reaching for everything. He hasn't crawled yet...He was born at 34 weeks so he may be slower<img src="i/expressions/face-icon-small-smile.gif" border="0">

-------------------------
Sarah mother to Johnny 8/month old w/cf..he is are our only child....
 
S

SARAHSARAH253

New member
What is your child's name?
Johnny
Boy or Girl?
Boy

How old is your child?
8 months today...8/17/07 Birthday
How is your child doing?
Johnny is doing great no colds all winter, and every throat culture has came back negative.

His weight, on the other hand, has been difficult because his legth is so long. We had a CF clinic visit on MOnday, and we don't have to go back for whole 8 weeks. I can't remember the last time I went over a month with no doctors appointment...This is very exciting<img src="i/expressions/face-icon-small-smile.gif" border="0">

What medications is your child on?
Vitamax 1 ml
.24 Iron sulfate 2 xs a day
1/4 tsp. of salt daily
1 puff of abuteral with spacer befor bed, follwed with pulmozyme.

What therapies is your child doing?
CPT...once in the morning..once in the evening before nebulizer and bed time.

Has your child hit any baby milestones?
Johnny is rolling over holding up his head. Reaching for everything. He hasn't crawled yet...He was born at 34 weeks so he may be slower<img src="i/expressions/face-icon-small-smile.gif" border="0">

-------------------------
Sarah mother to Johnny 8/month old w/cf..he is are our only child....
 
S

SARAHSARAH253

New member
What is your child's name?
Johnny
Boy or Girl?
Boy

How old is your child?
8 months today...8/17/07 Birthday
How is your child doing?
Johnny is doing great no colds all winter, and every throat culture has came back negative.

His weight, on the other hand, has been difficult because his legth is so long. We had a CF clinic visit on MOnday, and we don't have to go back for whole 8 weeks. I can't remember the last time I went over a month with no doctors appointment...This is very exciting<img src="i/expressions/face-icon-small-smile.gif" border="0">

What medications is your child on?
Vitamax 1 ml
.24 Iron sulfate 2 xs a day
1/4 tsp. of salt daily
1 puff of abuteral with spacer befor bed, follwed with pulmozyme.

What therapies is your child doing?
CPT...once in the morning..once in the evening before nebulizer and bed time.

Has your child hit any baby milestones?
Johnny is rolling over holding up his head. Reaching for everything. He hasn't crawled yet...He was born at 34 weeks so he may be slower<img src="i/expressions/face-icon-small-smile.gif" border="0">

-------------------------
Sarah mother to Johnny 8/month old w/cf..he is are our only child....
 
S

SARAHSARAH253

New member
What is your child's name?
Johnny
Boy or Girl?
Boy

How old is your child?
8 months today...8/17/07 Birthday
How is your child doing?
Johnny is doing great no colds all winter, and every throat culture has came back negative.

His weight, on the other hand, has been difficult because his legth is so long. We had a CF clinic visit on MOnday, and we don't have to go back for whole 8 weeks. I can't remember the last time I went over a month with no doctors appointment...This is very exciting<img src="i/expressions/face-icon-small-smile.gif" border="0">

What medications is your child on?
Vitamax 1 ml
.24 Iron sulfate 2 xs a day
1/4 tsp. of salt daily
1 puff of abuteral with spacer befor bed, follwed with pulmozyme.

What therapies is your child doing?
CPT...once in the morning..once in the evening before nebulizer and bed time.

Has your child hit any baby milestones?
Johnny is rolling over holding up his head. Reaching for everything. He hasn't crawled yet...He was born at 34 weeks so he may be slower<img src="i/expressions/face-icon-small-smile.gif" border="0">

-------------------------
Sarah mother to Johnny 8/month old w/cf..he is are our only child....
 
S

SARAHSARAH253

New member
What is your child's name?
<br />Johnny
<br />Boy or Girl?
<br />Boy
<br />
<br />How old is your child?
<br />8 months today...8/17/07 Birthday
<br />How is your child doing?
<br />Johnny is doing great no colds all winter, and every throat culture has came back negative.
<br />
<br />His weight, on the other hand, has been difficult because his legth is so long. We had a CF clinic visit on MOnday, and we don't have to go back for whole 8 weeks. I can't remember the last time I went over a month with no doctors appointment...This is very exciting<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />What medications is your child on?
<br />Vitamax 1 ml
<br />.24 Iron sulfate 2 xs a day
<br />1/4 tsp. of salt daily
<br />1 puff of abuteral with spacer befor bed, follwed with pulmozyme.
<br />
<br />What therapies is your child doing?
<br />CPT...once in the morning..once in the evening before nebulizer and bed time.
<br />
<br />Has your child hit any baby milestones?
<br />Johnny is rolling over holding up his head. Reaching for everything. He hasn't crawled yet...He was born at 34 weeks so he may be slower<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />-------------------------
<br />Sarah mother to Johnny 8/month old w/cf..he is are our only child....
 
You must log in or register to reply here.
Top