Parents of Infants with CF

J

JennyCoulon

New member
<b>What is your child's name?</b>

Mason & Tucker

<b>Boy or Girl?</b>

Both boys

<b>How old is your child?</b>

8 years old & almost 3

<b>How is your child doing?</b>

They are doing great, trying to get their allergies under control.

<b>What medications is your child on?</b>

<b>Mason</b>~Creon 20 (3 w/meal & snack), Vitamax Vitamins, Singular, Prilosec, Albuterol, Pulmozyme, Carnation Instant Breakfast VHC & plus for g button feeds

<b>Tucker</b>~Creon 10 (3 w/meal & snack), Flinstone vitamins, Singular, Prilosec, Albuterol

Both~CPT with Vest

<b>What therapies is your child doing?</b>

CPT & aerosol 1 time daily M-F 2x day S & S.
 
J

JennyCoulon

New member
<b>What is your child's name?</b>

Mason & Tucker

<b>Boy or Girl?</b>

Both boys

<b>How old is your child?</b>

8 years old & almost 3

<b>How is your child doing?</b>

They are doing great, trying to get their allergies under control.

<b>What medications is your child on?</b>

<b>Mason</b>~Creon 20 (3 w/meal & snack), Vitamax Vitamins, Singular, Prilosec, Albuterol, Pulmozyme, Carnation Instant Breakfast VHC & plus for g button feeds

<b>Tucker</b>~Creon 10 (3 w/meal & snack), Flinstone vitamins, Singular, Prilosec, Albuterol

Both~CPT with Vest

<b>What therapies is your child doing?</b>

CPT & aerosol 1 time daily M-F 2x day S & S.
 
J

JennyCoulon

New member
<b>What is your child's name?</b>

Mason & Tucker

<b>Boy or Girl?</b>

Both boys

<b>How old is your child?</b>

8 years old & almost 3

<b>How is your child doing?</b>

They are doing great, trying to get their allergies under control.

<b>What medications is your child on?</b>

<b>Mason</b>~Creon 20 (3 w/meal & snack), Vitamax Vitamins, Singular, Prilosec, Albuterol, Pulmozyme, Carnation Instant Breakfast VHC & plus for g button feeds

<b>Tucker</b>~Creon 10 (3 w/meal & snack), Flinstone vitamins, Singular, Prilosec, Albuterol

Both~CPT with Vest

<b>What therapies is your child doing?</b>

CPT & aerosol 1 time daily M-F 2x day S & S.
 
J

JennyCoulon

New member
<b>What is your child's name?</b>

Mason & Tucker

<b>Boy or Girl?</b>

Both boys

<b>How old is your child?</b>

8 years old & almost 3

<b>How is your child doing?</b>

They are doing great, trying to get their allergies under control.

<b>What medications is your child on?</b>

<b>Mason</b>~Creon 20 (3 w/meal & snack), Vitamax Vitamins, Singular, Prilosec, Albuterol, Pulmozyme, Carnation Instant Breakfast VHC & plus for g button feeds

<b>Tucker</b>~Creon 10 (3 w/meal & snack), Flinstone vitamins, Singular, Prilosec, Albuterol

Both~CPT with Vest

<b>What therapies is your child doing?</b>

CPT & aerosol 1 time daily M-F 2x day S & S.
 
J

JennyCoulon

New member
<b>What is your child's name?</b>
<br />
<br />Mason & Tucker
<br />
<br /><b>Boy or Girl?</b>
<br />
<br />Both boys
<br />
<br /><b>How old is your child?</b>
<br />
<br />8 years old & almost 3
<br />
<br /><b>How is your child doing?</b>
<br />
<br />They are doing great, trying to get their allergies under control.
<br />
<br /><b>What medications is your child on?</b>
<br />
<br /><b>Mason</b>~Creon 20 (3 w/meal & snack), Vitamax Vitamins, Singular, Prilosec, Albuterol, Pulmozyme, Carnation Instant Breakfast VHC & plus for g button feeds
<br />
<br /><b>Tucker</b>~Creon 10 (3 w/meal & snack), Flinstone vitamins, Singular, Prilosec, Albuterol
<br />
<br />Both~CPT with Vest
<br />
<br /><b>What therapies is your child doing?</b>
<br />
<br />CPT & aerosol 1 time daily M-F 2x day S & S.
<br />
<br />
 
M

MeganMartinez

New member
What is your child's name?
Grayson

Boy or Girl?
Girl

How old is your child?
8 1/2 months

How is your child doing?
Well she has been hospitalized 2 weeks in January and 1 week in March. March she was diagnosed with RSV, the Adno virus and she had an intussippsis, which is her bowel telescoping in on itself. She has cultured psuedomonys and stenotrophmonis. She is fat and chunky though,which I am very grateful for.

What medications is your child on?
Creon 5 -3per feeding, zantac, lactulose, omperazole, cf vitamin, vitaK, Tobi, hypertonic saline, albuertol, pulmozine.
She had allergic reactions to bactrum, ceftazadime(in the hospital), and cipro(which we desensitize her to before she goes home from the hospital)

What therapies is your child doing?
We do 2 nuebulizers in morning and night, sometimes 3. We do chest pt at least 3 times if not 4 times a day.

Has your child hit any baby milestones?
Gracie has 2 front teeth, loves table food, rolls over and is scooting, she also just pulled herself up in her crib.

Thanks,
Megan Mom to
Caity 10 yrs with cf
Mike 8 yrs without cf
Grayson 8 months with cf DF508 and R117H
 
M

MeganMartinez

New member
What is your child's name?
Grayson

Boy or Girl?
Girl

How old is your child?
8 1/2 months

How is your child doing?
Well she has been hospitalized 2 weeks in January and 1 week in March. March she was diagnosed with RSV, the Adno virus and she had an intussippsis, which is her bowel telescoping in on itself. She has cultured psuedomonys and stenotrophmonis. She is fat and chunky though,which I am very grateful for.

What medications is your child on?
Creon 5 -3per feeding, zantac, lactulose, omperazole, cf vitamin, vitaK, Tobi, hypertonic saline, albuertol, pulmozine.
She had allergic reactions to bactrum, ceftazadime(in the hospital), and cipro(which we desensitize her to before she goes home from the hospital)

What therapies is your child doing?
We do 2 nuebulizers in morning and night, sometimes 3. We do chest pt at least 3 times if not 4 times a day.

Has your child hit any baby milestones?
Gracie has 2 front teeth, loves table food, rolls over and is scooting, she also just pulled herself up in her crib.

Thanks,
Megan Mom to
Caity 10 yrs with cf
Mike 8 yrs without cf
Grayson 8 months with cf DF508 and R117H
 
M

MeganMartinez

New member
What is your child's name?
Grayson

Boy or Girl?
Girl

How old is your child?
8 1/2 months

How is your child doing?
Well she has been hospitalized 2 weeks in January and 1 week in March. March she was diagnosed with RSV, the Adno virus and she had an intussippsis, which is her bowel telescoping in on itself. She has cultured psuedomonys and stenotrophmonis. She is fat and chunky though,which I am very grateful for.

What medications is your child on?
Creon 5 -3per feeding, zantac, lactulose, omperazole, cf vitamin, vitaK, Tobi, hypertonic saline, albuertol, pulmozine.
She had allergic reactions to bactrum, ceftazadime(in the hospital), and cipro(which we desensitize her to before she goes home from the hospital)

What therapies is your child doing?
We do 2 nuebulizers in morning and night, sometimes 3. We do chest pt at least 3 times if not 4 times a day.

Has your child hit any baby milestones?
Gracie has 2 front teeth, loves table food, rolls over and is scooting, she also just pulled herself up in her crib.

Thanks,
Megan Mom to
Caity 10 yrs with cf
Mike 8 yrs without cf
Grayson 8 months with cf DF508 and R117H
 
M

MeganMartinez

New member
What is your child's name?
Grayson

Boy or Girl?
Girl

How old is your child?
8 1/2 months

How is your child doing?
Well she has been hospitalized 2 weeks in January and 1 week in March. March she was diagnosed with RSV, the Adno virus and she had an intussippsis, which is her bowel telescoping in on itself. She has cultured psuedomonys and stenotrophmonis. She is fat and chunky though,which I am very grateful for.

What medications is your child on?
Creon 5 -3per feeding, zantac, lactulose, omperazole, cf vitamin, vitaK, Tobi, hypertonic saline, albuertol, pulmozine.
She had allergic reactions to bactrum, ceftazadime(in the hospital), and cipro(which we desensitize her to before she goes home from the hospital)

What therapies is your child doing?
We do 2 nuebulizers in morning and night, sometimes 3. We do chest pt at least 3 times if not 4 times a day.

Has your child hit any baby milestones?
Gracie has 2 front teeth, loves table food, rolls over and is scooting, she also just pulled herself up in her crib.

Thanks,
Megan Mom to
Caity 10 yrs with cf
Mike 8 yrs without cf
Grayson 8 months with cf DF508 and R117H
 
M

MeganMartinez

New member
What is your child's name?
<br />Grayson
<br />
<br />Boy or Girl?
<br />Girl
<br />
<br />How old is your child?
<br />8 1/2 months
<br />
<br />How is your child doing?
<br />Well she has been hospitalized 2 weeks in January and 1 week in March. March she was diagnosed with RSV, the Adno virus and she had an intussippsis, which is her bowel telescoping in on itself. She has cultured psuedomonys and stenotrophmonis. She is fat and chunky though,which I am very grateful for.
<br />
<br />What medications is your child on?
<br />Creon 5 -3per feeding, zantac, lactulose, omperazole, cf vitamin, vitaK, Tobi, hypertonic saline, albuertol, pulmozine.
<br />She had allergic reactions to bactrum, ceftazadime(in the hospital), and cipro(which we desensitize her to before she goes home from the hospital)
<br />
<br />What therapies is your child doing?
<br />We do 2 nuebulizers in morning and night, sometimes 3. We do chest pt at least 3 times if not 4 times a day.
<br />
<br />Has your child hit any baby milestones?
<br />Gracie has 2 front teeth, loves table food, rolls over and is scooting, she also just pulled herself up in her crib.
<br />
<br />Thanks,
<br />Megan Mom to
<br />Caity 10 yrs with cf
<br />Mike 8 yrs without cf
<br />Grayson 8 months with cf DF508 and R117H
<br />
<br />
 
H

hopefulmommy

New member
What is your child's name? <b>Nolan</b>


Boy or Girl? <b>Boy</b>


How old is your child? <b>7 1/2 months
</b>

How is your child doing? <b>He's doing well - his weight has never been an issue, thank goodness. He cultured PA back in December, and we've been battling it ever since (though he's remained asymptomatic)</b>


What medications is your child on? <b>Creon 5, 2-3 with each feeding, vitamax vitamins, Pulmozyme, and TOBI every other month</b>


What therapies is your child doing? <b>Vest 30 min, twice a day</b>


Has your child hit any baby milestones? <b>He's sitting up and grabbing at everything! He'll roll over and won't stay on his tummy long enough to even try to crawl, silly boy!</b>
 
H

hopefulmommy

New member
What is your child's name? <b>Nolan</b>


Boy or Girl? <b>Boy</b>


How old is your child? <b>7 1/2 months
</b>

How is your child doing? <b>He's doing well - his weight has never been an issue, thank goodness. He cultured PA back in December, and we've been battling it ever since (though he's remained asymptomatic)</b>


What medications is your child on? <b>Creon 5, 2-3 with each feeding, vitamax vitamins, Pulmozyme, and TOBI every other month</b>


What therapies is your child doing? <b>Vest 30 min, twice a day</b>


Has your child hit any baby milestones? <b>He's sitting up and grabbing at everything! He'll roll over and won't stay on his tummy long enough to even try to crawl, silly boy!</b>
 
H

hopefulmommy

New member
What is your child's name? <b>Nolan</b>


Boy or Girl? <b>Boy</b>


How old is your child? <b>7 1/2 months
</b>

How is your child doing? <b>He's doing well - his weight has never been an issue, thank goodness. He cultured PA back in December, and we've been battling it ever since (though he's remained asymptomatic)</b>


What medications is your child on? <b>Creon 5, 2-3 with each feeding, vitamax vitamins, Pulmozyme, and TOBI every other month</b>


What therapies is your child doing? <b>Vest 30 min, twice a day</b>


Has your child hit any baby milestones? <b>He's sitting up and grabbing at everything! He'll roll over and won't stay on his tummy long enough to even try to crawl, silly boy!</b>
 
H

hopefulmommy

New member
What is your child's name? <b>Nolan</b>


Boy or Girl? <b>Boy</b>


How old is your child? <b>7 1/2 months
</b>

How is your child doing? <b>He's doing well - his weight has never been an issue, thank goodness. He cultured PA back in December, and we've been battling it ever since (though he's remained asymptomatic)</b>


What medications is your child on? <b>Creon 5, 2-3 with each feeding, vitamax vitamins, Pulmozyme, and TOBI every other month</b>


What therapies is your child doing? <b>Vest 30 min, twice a day</b>


Has your child hit any baby milestones? <b>He's sitting up and grabbing at everything! He'll roll over and won't stay on his tummy long enough to even try to crawl, silly boy!</b>
 
H

hopefulmommy

New member
What is your child's name? <b>Nolan</b>
<br />
<br />
<br />Boy or Girl? <b>Boy</b>
<br />
<br />
<br />How old is your child? <b>7 1/2 months
<br /></b>
<br />
<br />How is your child doing? <b>He's doing well - his weight has never been an issue, thank goodness. He cultured PA back in December, and we've been battling it ever since (though he's remained asymptomatic)</b>
<br />
<br />
<br />What medications is your child on? <b>Creon 5, 2-3 with each feeding, vitamax vitamins, Pulmozyme, and TOBI every other month</b>
<br />
<br />
<br />What therapies is your child doing? <b>Vest 30 min, twice a day</b>
<br />
<br />
<br />Has your child hit any baby milestones? <b>He's sitting up and grabbing at everything! He'll roll over and won't stay on his tummy long enough to even try to crawl, silly boy!</b>
 
P

paugh22

New member
What is your child's name?
Max

Boy or Girl?
Boy

How old is your child?
Almost8 months old

How is your child doing?
He is finally doing great! he was born in august pancreatic insufficient, diagnosed thru newborn screening, quickly put on enzymes. Around thanksgiving he started wheezing and it didnt stop until he was hospitalized in february for 8 days(he had a very low oxygen level). And Im happyto say he has been very healthy since. Oh yes,and he's huge lol. over 20 pounds!

What medications is your child on?
Creon 5 (2 with each meal) .5ml of vitimax, prevacid, and 1/2 tsp of augmenton 2x a day.

What therapies is your child doing?
chest pt 3x a day

Has your child hit any baby milestones?
sits up alone, says da da, plays patacake.
 
P

paugh22

New member
What is your child's name?
Max

Boy or Girl?
Boy

How old is your child?
Almost8 months old

How is your child doing?
He is finally doing great! he was born in august pancreatic insufficient, diagnosed thru newborn screening, quickly put on enzymes. Around thanksgiving he started wheezing and it didnt stop until he was hospitalized in february for 8 days(he had a very low oxygen level). And Im happyto say he has been very healthy since. Oh yes,and he's huge lol. over 20 pounds!

What medications is your child on?
Creon 5 (2 with each meal) .5ml of vitimax, prevacid, and 1/2 tsp of augmenton 2x a day.

What therapies is your child doing?
chest pt 3x a day

Has your child hit any baby milestones?
sits up alone, says da da, plays patacake.
 
P

paugh22

New member
What is your child's name?
Max

Boy or Girl?
Boy

How old is your child?
Almost8 months old

How is your child doing?
He is finally doing great! he was born in august pancreatic insufficient, diagnosed thru newborn screening, quickly put on enzymes. Around thanksgiving he started wheezing and it didnt stop until he was hospitalized in february for 8 days(he had a very low oxygen level). And Im happyto say he has been very healthy since. Oh yes,and he's huge lol. over 20 pounds!

What medications is your child on?
Creon 5 (2 with each meal) .5ml of vitimax, prevacid, and 1/2 tsp of augmenton 2x a day.

What therapies is your child doing?
chest pt 3x a day

Has your child hit any baby milestones?
sits up alone, says da da, plays patacake.
 
P

paugh22

New member
What is your child's name?
Max

Boy or Girl?
Boy

How old is your child?
Almost8 months old

How is your child doing?
He is finally doing great! he was born in august pancreatic insufficient, diagnosed thru newborn screening, quickly put on enzymes. Around thanksgiving he started wheezing and it didnt stop until he was hospitalized in february for 8 days(he had a very low oxygen level). And Im happyto say he has been very healthy since. Oh yes,and he's huge lol. over 20 pounds!

What medications is your child on?
Creon 5 (2 with each meal) .5ml of vitimax, prevacid, and 1/2 tsp of augmenton 2x a day.

What therapies is your child doing?
chest pt 3x a day

Has your child hit any baby milestones?
sits up alone, says da da, plays patacake.
 
P

paugh22

New member
What is your child's name?
<br />Max
<br />
<br />Boy or Girl?
<br />Boy
<br />
<br />How old is your child?
<br />Almost8 months old
<br />
<br />How is your child doing?
<br />He is finally doing great! he was born in august pancreatic insufficient, diagnosed thru newborn screening, quickly put on enzymes. Around thanksgiving he started wheezing and it didnt stop until he was hospitalized in february for 8 days(he had a very low oxygen level). And Im happyto say he has been very healthy since. Oh yes,and he's huge lol. over 20 pounds!
<br />
<br />What medications is your child on?
<br />Creon 5 (2 with each meal) .5ml of vitimax, prevacid, and 1/2 tsp of augmenton 2x a day.
<br />
<br />What therapies is your child doing?
<br />chest pt 3x a day
<br />
<br />Has your child hit any baby milestones?
<br />sits up alone, says da da, plays patacake.
<br />
<br />
 
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