Peers

anonymous

New member
Hi,
I was wondering if anyone else ever felt like they have trouble relating to peers. Sometimes, I just feel like I live in a different world than everyone else my age or something. Not to mention, I rarely come across people my age ever give a s--- that I have CF and the problems that go along with that.
 

anonymous

New member
Hi,
I was wondering if anyone else ever felt like they have trouble relating to peers. Sometimes, I just feel like I live in a different world than everyone else my age or something. Not to mention, I rarely come across people my age ever give a s--- that I have CF and the problems that go along with that.
 

Emily65Roses

New member
I have troubles with this. Other students on campus tend to look at me like I'm spreading the plague, and if I tell them I'm not contagious and quickly explain the CF, they give you that "pity look." I hate that. I really don't get along with most people my age based on whatever reasons, but I'm sure the CF is part of it. I'm quite introverted up here at school (whereas at home I'm pretty open). Most of the people I tell about the CF take into consideration how serious it is, and do care. However, I run across the occasional person who really just doesn't understand it. "Hey do you mind if I smoke around you?" when I'm at their house... what do I say? "Yeah I mind, don't do it." I just wish these people knew that I can't handle it without asking me. It's not a matter of whether or not I "mind" if you smoke... it's a matter of hey, this is going to suck for me if you smoke right there. Usually I speak up whenever smoke bothers me, but if I'm at someone else's house and they want to smoke, I feel rude telling them not to. That's a little off on a tangent, I think... but I do feel this way... I remember last year sometime when writing in my online journal I was talking about the CF and how I feel very different from the rest of the kids on campus. I wrote "I don't really belong here. But in order to get my degree, I must be surrounded by young adults, like myself. Only I'm a young adult, with perhaps.. an old soul? So I go to class feeling like life is a black and white movie... and I'm the only person wearing bright red."
 

Emily65Roses

New member
I have troubles with this. Other students on campus tend to look at me like I'm spreading the plague, and if I tell them I'm not contagious and quickly explain the CF, they give you that "pity look." I hate that. I really don't get along with most people my age based on whatever reasons, but I'm sure the CF is part of it. I'm quite introverted up here at school (whereas at home I'm pretty open). Most of the people I tell about the CF take into consideration how serious it is, and do care. However, I run across the occasional person who really just doesn't understand it. "Hey do you mind if I smoke around you?" when I'm at their house... what do I say? "Yeah I mind, don't do it." I just wish these people knew that I can't handle it without asking me. It's not a matter of whether or not I "mind" if you smoke... it's a matter of hey, this is going to suck for me if you smoke right there. Usually I speak up whenever smoke bothers me, but if I'm at someone else's house and they want to smoke, I feel rude telling them not to. That's a little off on a tangent, I think... but I do feel this way... I remember last year sometime when writing in my online journal I was talking about the CF and how I feel very different from the rest of the kids on campus. I wrote "I don't really belong here. But in order to get my degree, I must be surrounded by young adults, like myself. Only I'm a young adult, with perhaps.. an old soul? So I go to class feeling like life is a black and white movie... and I'm the only person wearing bright red."
 

ej0820

New member
Hey there,

I have the same problem. Not many of my friends really care that I have CF, they are all pretty accepting about it, but they just don't get it. Not many people understand that just because you may look good, doesn't mean you actually are in the greatest shape. Like emily said, I also feel kind of left out, like I don't always belong. Sometimes my friends will ask me to go to a frat party, and I'd love to go and hang out with our other friends, but I don't like the smoke I'm surrounded by, and I hate getting back so late being tired and still having to do treatments and stuff. Walking around campus and being class, I always get the, "Wow, that cough sounds pretty bad, better stop smoking!" or "Hey, you know you should get that checked out." One day, in my speech class, I started coughing and my teacher stopped her lecture and said, "Oh erin, that sounds awful! That sounds like bronchitis, you should rest over this weekend and feel better." Um...yeah...thanks for the advice, I'll get right on that. Anywho though, yeah, I tend to have some problems relating to peers, and I do feel like I'm in a different world sometimes. People just don't understand.

~erin <img src="i/expressions/musicnote.gif" border="0">
19/f/cf <img src="i/expressions/rose.gif" border="0">
 

ej0820

New member
Hey there,

I have the same problem. Not many of my friends really care that I have CF, they are all pretty accepting about it, but they just don't get it. Not many people understand that just because you may look good, doesn't mean you actually are in the greatest shape. Like emily said, I also feel kind of left out, like I don't always belong. Sometimes my friends will ask me to go to a frat party, and I'd love to go and hang out with our other friends, but I don't like the smoke I'm surrounded by, and I hate getting back so late being tired and still having to do treatments and stuff. Walking around campus and being class, I always get the, "Wow, that cough sounds pretty bad, better stop smoking!" or "Hey, you know you should get that checked out." One day, in my speech class, I started coughing and my teacher stopped her lecture and said, "Oh erin, that sounds awful! That sounds like bronchitis, you should rest over this weekend and feel better." Um...yeah...thanks for the advice, I'll get right on that. Anywho though, yeah, I tend to have some problems relating to peers, and I do feel like I'm in a different world sometimes. People just don't understand.

~erin <img src="i/expressions/musicnote.gif" border="0">
19/f/cf <img src="i/expressions/rose.gif" border="0">
 

HollyCatheryn

New member
I concur! I hated that part of college and working and single life. The trying to be like everybody else, or being myself and finding no one who could really relate to me in any significant way. I must say though, it has gotten so much better since I got married and started teaching and then became a mom. Now, I relate to people more as a wife, teacher, mother than as a person with CF. It's not that CF is gone, but as far as my identity is concerned, it is dwarfed in comparison to being a wife and mom. I think it also helps that I'm married to someone who is 13 years older because we then tend to hang around with people who are older than me and more mature than people my age tend to be. I can relate better with them and they with me - for the most part. Some people just never grow up or mature. They stay just as petty as ever and those people who are rather "small" emotionally and intelectually I just avoid. I remember feeling much of the time that I just had to put CF on the back-burner of my identity and be a student, musician, worker...that way I could function with the people around me. It is hard though. Most people especially teens and early 20's just cannot relate.
 

HollyCatheryn

New member
I concur! I hated that part of college and working and single life. The trying to be like everybody else, or being myself and finding no one who could really relate to me in any significant way. I must say though, it has gotten so much better since I got married and started teaching and then became a mom. Now, I relate to people more as a wife, teacher, mother than as a person with CF. It's not that CF is gone, but as far as my identity is concerned, it is dwarfed in comparison to being a wife and mom. I think it also helps that I'm married to someone who is 13 years older because we then tend to hang around with people who are older than me and more mature than people my age tend to be. I can relate better with them and they with me - for the most part. Some people just never grow up or mature. They stay just as petty as ever and those people who are rather "small" emotionally and intelectually I just avoid. I remember feeling much of the time that I just had to put CF on the back-burner of my identity and be a student, musician, worker...that way I could function with the people around me. It is hard though. Most people especially teens and early 20's just cannot relate.
 

ej0820

New member
I hate to change the subject here, but a musician and a teacher...do you play an instrument? I'm a music ed major in college right now and just wondering how your career is going with your cf and all <img src="i/expressions/face-icon-small-smile.gif" border="0">

erin <img src="i/expressions/musicnote.gif" border="0">
19/f/cf <img src="i/expressions/rose.gif" border="0">
IM: plainjane192
 

ej0820

New member
I hate to change the subject here, but a musician and a teacher...do you play an instrument? I'm a music ed major in college right now and just wondering how your career is going with your cf and all <img src="i/expressions/face-icon-small-smile.gif" border="0">

erin <img src="i/expressions/musicnote.gif" border="0">
19/f/cf <img src="i/expressions/rose.gif" border="0">
IM: plainjane192
 

anonymous

New member
I have had the same problems with some friends, the bottom line is they just don't understand. I have had this one friend of mine who on a few occassions wanted to start a ball hockey team and he asked me to play and I am at the point where I just can't do that sort thing anymore. And he figures that because I ride an exercise bike and exercise regularly that I should be able to everything that I used to do. I was diagnosed at age 22 and played many sports growing up, but he just doesn't understand that where I am now physically I just can't do it anymore.

There is really only one word to describe people like this, "ignorant" and unfortunately we have to deal with these type of people more often than we should.

Dave 29 w/cf
 

anonymous

New member
I have had the same problems with some friends, the bottom line is they just don't understand. I have had this one friend of mine who on a few occassions wanted to start a ball hockey team and he asked me to play and I am at the point where I just can't do that sort thing anymore. And he figures that because I ride an exercise bike and exercise regularly that I should be able to everything that I used to do. I was diagnosed at age 22 and played many sports growing up, but he just doesn't understand that where I am now physically I just can't do it anymore.

There is really only one word to describe people like this, "ignorant" and unfortunately we have to deal with these type of people more often than we should.

Dave 29 w/cf
 

anonymous

New member
Yep, Most of my friends are a good 10 years older than I. I'm ok with that, and they know what is going on in my life. But being single now, and trying to meet women sucks. I dont want to bring it up in the first few dates, but they know I'm hloding somethign back. They aske why I'm coughting so much, things like that. So I tell them, what else can I do. I dont want to hide it, CF makes me who I am.

My first love understood, she would do anything for me. But that didnt work out which is ok. But finding another that is about the same age is hard. I recently went out on a date with a girl who is 29 and we started talking about helth care, and she asked what I had. I told her and she seemed ok with it. later on in the date she found out how old I was (I'm 22) and she just about fell off her chair. The date was over then. Odd, it was the age not the CF.

I think people with CF eather become well adjusted to their lives and can cope with this s h i t t y deaese. Or cant, and dont know how to cumunicate with others. not just people their same age, but everybody. We all have a hard time with people our age, but a few people understand us, and most of them tend to be older.

I do hate that "have another smoke" line. I usualy tell them I just hit the Crack pipe. It throws them off. But the worst is when you tell people that you have CF and they keep telling you to drink some tea, or have some Robitussin. The Robitussin line realy gets to me.

Just be a good person, and good people will come to you.

Colin Maydahl 22 with cf
 

anonymous

New member
Yep, Most of my friends are a good 10 years older than I. I'm ok with that, and they know what is going on in my life. But being single now, and trying to meet women sucks. I dont want to bring it up in the first few dates, but they know I'm hloding somethign back. They aske why I'm coughting so much, things like that. So I tell them, what else can I do. I dont want to hide it, CF makes me who I am.

My first love understood, she would do anything for me. But that didnt work out which is ok. But finding another that is about the same age is hard. I recently went out on a date with a girl who is 29 and we started talking about helth care, and she asked what I had. I told her and she seemed ok with it. later on in the date she found out how old I was (I'm 22) and she just about fell off her chair. The date was over then. Odd, it was the age not the CF.

I think people with CF eather become well adjusted to their lives and can cope with this s h i t t y deaese. Or cant, and dont know how to cumunicate with others. not just people their same age, but everybody. We all have a hard time with people our age, but a few people understand us, and most of them tend to be older.

I do hate that "have another smoke" line. I usualy tell them I just hit the Crack pipe. It throws them off. But the worst is when you tell people that you have CF and they keep telling you to drink some tea, or have some Robitussin. The Robitussin line realy gets to me.

Just be a good person, and good people will come to you.

Colin Maydahl 22 with cf
 

Emeraldmirror

New member
I absolutly LOVE when people tell me "you must have a bad cold" and crap like that. I just agree with them now. But I find that it's usually the older people who say that to me. They just can't help themselves but to throw their opinions out there. I don't think I've really had a problem with relating to people. I usually act normal. I try not to make a big deal about it, so others don't make a big deal about it either. It's annoying to have to explain what CF is to people, that's why I just agree, "yeah I have a cold." They leave you well enough alone after that I find.

Ashley 20 w/cf
 

Emeraldmirror

New member
I absolutly LOVE when people tell me "you must have a bad cold" and crap like that. I just agree with them now. But I find that it's usually the older people who say that to me. They just can't help themselves but to throw their opinions out there. I don't think I've really had a problem with relating to people. I usually act normal. I try not to make a big deal about it, so others don't make a big deal about it either. It's annoying to have to explain what CF is to people, that's why I just agree, "yeah I have a cold." They leave you well enough alone after that I find.

Ashley 20 w/cf
 
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