She had mentioned starting up a private Facebook group for pre-teens with CF but I'm not sure if she was able to. Maybe you could send her a private message. She may not see it because it's been awhile since she's been on the site, but I'd give it a try.
It´s not the same, but I have recently made a site on facebook where people can "ad" for free to get funny and chearing postcards, letters or something else they evetually collect. People around the World can then send a postcard when they read your ad. They have to mail me to get your postaddress. Please have a check on the site. Best wishes from Carola in Sweden http://www.facebook.com/vykortshjalpen http://vykortshjalpen.wordpress.com