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Nedda - even though they may have not mentioned the mutation specifically, remember that they are categorized by the way they function/malfunction. Therefore Class III mutations should be similar in their malfunction. If the medication helps one it should help the others in that class to at least a reasonable degree. Do not get discouraged!<br>
Nedda - even though they may have not mentioned the mutation specifically, remember that they are categorized by the way they function/malfunction. Therefore Class III mutations should be similar in their malfunction. If the medication helps one it should help the others in that class to at least a reasonable degree. Do not get discouraged!<br>
Nedda - even though they may have not mentioned the mutation specifically, remember that they are categorized by the way they function/malfunction. Therefore Class III mutations should be similar in their malfunction. If the medication helps one it should help the others in that class to at least a reasonable degree. Do not get discouraged!<br>
K
Kaethe108
Guest
On our First visit in the CF Centre the Prof told us about the 5 different Effects the various mutations cause. And that the New medicaments Target These different effects. So my guess would also Be that a Drug is Designed for a Class of mutations and Not One specific Mutation alone.
K
Kaethe108
Guest
On our First visit in the CF Centre the Prof told us about the 5 different Effects the various mutations cause. And that the New medicaments Target These different effects. So my guess would also Be that a Drug is Designed for a Class of mutations and Not One specific Mutation alone.
K
Kaethe108
Guest
On our First visit in the CF Centre the Prof told us about the 5 different Effects the various mutations cause. And that the New medicaments Target These different effects. So my guess would also Be that a Drug is Designed for a Class of mutations and Not One specific Mutation alone.
D
DrRoe
Guest
Joanna, Thanks very much for the detailed response!
D
DrRoe
Guest
Joanna, Thanks very much for the detailed response!
D
DrRoe
Guest
Joanna, Thanks very much for the detailed response!
Im currently in the Atluren study and ive had the real drug for a couple of months. I was super discouraged last time I went. Apparently a lot of people have started showing kidney problems, and pfts aren't going as high as they thought they would. I guess its unclear wether they'll actually get FDA approval in the end. Im super frustraited, this study has been the biggest pain in the ass i have ever had to put up with, and it turns out it might not have been worth it. Im more than likely going to drop out. Its not worth risking my kidneys and I can't take the repeated blood draws and retesting they are CONSTANTLY making me do.
Im currently in the Atluren study and ive had the real drug for a couple of months. I was super discouraged last time I went. Apparently a lot of people have started showing kidney problems, and pfts aren't going as high as they thought they would. I guess its unclear wether they'll actually get FDA approval in the end. Im super frustraited, this study has been the biggest pain in the ass i have ever had to put up with, and it turns out it might not have been worth it. Im more than likely going to drop out. Its not worth risking my kidneys and I can't take the repeated blood draws and retesting they are CONSTANTLY making me do.
Im currently in the Atluren study and ive had the real drug for a couple of months. I was super discouraged last time I went. Apparently a lot of people have started showing kidney problems, and pfts aren't going as high as they thought they would. I guess its unclear wether they'll actually get FDA approval in the end. Im super frustraited, this study has been the biggest pain in the ass i have ever had to put up with, and it turns out it might not have been worth it. Im more than likely going to drop out. Its not worth risking my kidneys and I can't take the repeated blood draws and retesting they are CONSTANTLY making me do.
K
Kaethe108
Guest
I am sorry to hear that the trial gave you such a hard time!
We will have to wait for the complete data. Until then we should not get discouraged.
Can you tell whar kidney problems you have?
And did you notice any health improvement since taking the drug?
We will have to wait for the complete data. Until then we should not get discouraged.
Can you tell whar kidney problems you have?
And did you notice any health improvement since taking the drug?
K
Kaethe108
Guest
I am sorry to hear that the trial gave you such a hard time!
We will have to wait for the complete data. Until then we should not get discouraged.
Can you tell whar kidney problems you have?
And did you notice any health improvement since taking the drug?
We will have to wait for the complete data. Until then we should not get discouraged.
Can you tell whar kidney problems you have?
And did you notice any health improvement since taking the drug?
K
Kaethe108
Guest
I am sorry to hear that the trial gave you such a hard time!
<br />We will have to wait for the complete data. Until then we should not get discouraged.
<br />Can you tell whar kidney problems you have?
<br />And did you notice any health improvement since taking the drug?
<br />We will have to wait for the complete data. Until then we should not get discouraged.
<br />Can you tell whar kidney problems you have?
<br />And did you notice any health improvement since taking the drug?