people who use cf to make money

ryannie55

New member
<img src="i/expressions/face-icon-small-disgusted.gif" border="0"><b>Okay Seriously People...WAKE UP! This Jason kid is a fake... he has 3 seperate myspace accounts one that doesn't mention ANYTHING about CF...plus it says he works FULL-time at GNC...and that means he is eligable for benefits...He is LYING!!! He doesnt have CF, He isnt asking for meds...WHICH is ODD PLUS who the HELL goes from being one of the HEALTHIEST people alive with CF to having a LIFE threatening disease overnight?!! What virus is this that he got? I've never heard of it...and did you see the doctors notes? What a load of *****... they say that he has CF...not that he has been tested...like it should say...and that he has been treated for it...it sounds like he got some letterhead from a doctors office and typed the load of crap up himself...no SELF RESPECTING REAL DOCTOR would write soemthing like that...especially if they havent tested or treated him, they wouldnt put thier careers on the line just because this ass says he has CF... WAKE UP! I can't believe you people believe this guy! AS far as I am concerned Im a personal trainer I workout everyday im not cured. I haveproblems just like everyone else, many people tell me I dont look like I have it, but there are certian things about me that you can tell I have it. I am embarrassed for anyone here to stand up and defend him, have you no respect. How pathetic are you to believe this jerk, he is taking money from people for his own personal benefit. Open your eyes and look again at his profiles, He is FAKE. Something should be done about this because it's fraud and it gives people who REALLY have CF a bad name. I'm personally embarrassed about what he is doing. And god for bid if I was ever in the situation to where I REALLY needed money to pay for medical expenses I dont want some jack ass like this ruining it for everyone else.</b>
 

ryannie55

New member
<img src="i/expressions/face-icon-small-disgusted.gif" border="0"><b>Okay Seriously People...WAKE UP! This Jason kid is a fake... he has 3 seperate myspace accounts one that doesn't mention ANYTHING about CF...plus it says he works FULL-time at GNC...and that means he is eligable for benefits...He is LYING!!! He doesnt have CF, He isnt asking for meds...WHICH is ODD PLUS who the HELL goes from being one of the HEALTHIEST people alive with CF to having a LIFE threatening disease overnight?!! What virus is this that he got? I've never heard of it...and did you see the doctors notes? What a load of *****... they say that he has CF...not that he has been tested...like it should say...and that he has been treated for it...it sounds like he got some letterhead from a doctors office and typed the load of crap up himself...no SELF RESPECTING REAL DOCTOR would write soemthing like that...especially if they havent tested or treated him, they wouldnt put thier careers on the line just because this ass says he has CF... WAKE UP! I can't believe you people believe this guy! AS far as I am concerned Im a personal trainer I workout everyday im not cured. I haveproblems just like everyone else, many people tell me I dont look like I have it, but there are certian things about me that you can tell I have it. I am embarrassed for anyone here to stand up and defend him, have you no respect. How pathetic are you to believe this jerk, he is taking money from people for his own personal benefit. Open your eyes and look again at his profiles, He is FAKE. Something should be done about this because it's fraud and it gives people who REALLY have CF a bad name. I'm personally embarrassed about what he is doing. And god for bid if I was ever in the situation to where I REALLY needed money to pay for medical expenses I dont want some jack ass like this ruining it for everyone else.</b>
 

ryannie55

New member
<img src="i/expressions/face-icon-small-disgusted.gif" border="0"><b>Okay Seriously People...WAKE UP! This Jason kid is a fake... he has 3 seperate myspace accounts one that doesn't mention ANYTHING about CF...plus it says he works FULL-time at GNC...and that means he is eligable for benefits...He is LYING!!! He doesnt have CF, He isnt asking for meds...WHICH is ODD PLUS who the HELL goes from being one of the HEALTHIEST people alive with CF to having a LIFE threatening disease overnight?!! What virus is this that he got? I've never heard of it...and did you see the doctors notes? What a load of *****... they say that he has CF...not that he has been tested...like it should say...and that he has been treated for it...it sounds like he got some letterhead from a doctors office and typed the load of crap up himself...no SELF RESPECTING REAL DOCTOR would write soemthing like that...especially if they havent tested or treated him, they wouldnt put thier careers on the line just because this ass says he has CF... WAKE UP! I can't believe you people believe this guy! AS far as I am concerned Im a personal trainer I workout everyday im not cured. I haveproblems just like everyone else, many people tell me I dont look like I have it, but there are certian things about me that you can tell I have it. I am embarrassed for anyone here to stand up and defend him, have you no respect. How pathetic are you to believe this jerk, he is taking money from people for his own personal benefit. Open your eyes and look again at his profiles, He is FAKE. Something should be done about this because it's fraud and it gives people who REALLY have CF a bad name. I'm personally embarrassed about what he is doing. And god for bid if I was ever in the situation to where I REALLY needed money to pay for medical expenses I dont want some jack ass like this ruining it for everyone else.</b>
 

sue35

New member
God if i were ever to make a site asking for anything regarding CF apparently I should come here and make sure the CF police find everything in perfect order. It is completely possible that he could go from great shape to really sick. And maybe he doesn't know what he is talking about. I agree with Emily, he should know if he is asking for money, but just because he doesn't doesn't mean that he doesn't have CF. And people make up their ages all the time on myspace. He could just be a guy with CF who doesn't know much and doesn't use the right terminology.

What about giving him a break until we know for sure, or are we guilty until proven innocent now?

And I feel really sorry for people like Mike and Ryannie55 who feel the need to insult others for believing someone. Bitter much?
 

sue35

New member
God if i were ever to make a site asking for anything regarding CF apparently I should come here and make sure the CF police find everything in perfect order. It is completely possible that he could go from great shape to really sick. And maybe he doesn't know what he is talking about. I agree with Emily, he should know if he is asking for money, but just because he doesn't doesn't mean that he doesn't have CF. And people make up their ages all the time on myspace. He could just be a guy with CF who doesn't know much and doesn't use the right terminology.

What about giving him a break until we know for sure, or are we guilty until proven innocent now?

And I feel really sorry for people like Mike and Ryannie55 who feel the need to insult others for believing someone. Bitter much?
 

sue35

New member
God if i were ever to make a site asking for anything regarding CF apparently I should come here and make sure the CF police find everything in perfect order. It is completely possible that he could go from great shape to really sick. And maybe he doesn't know what he is talking about. I agree with Emily, he should know if he is asking for money, but just because he doesn't doesn't mean that he doesn't have CF. And people make up their ages all the time on myspace. He could just be a guy with CF who doesn't know much and doesn't use the right terminology.

What about giving him a break until we know for sure, or are we guilty until proven innocent now?

And I feel really sorry for people like Mike and Ryannie55 who feel the need to insult others for believing someone. Bitter much?
 

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>2perfectboys</b></i>

What? eliminate adult programs, come on.

</end quote></div>

Don't scoff at the idea.

The CFF is much more involved in funding research than it is in keeping clinics going. I have been told by medical personnel that what the clinic receives in terms of financial support from the CFF is only enough to keep a secretary on staff. The adult clinic I go to is floundering. Two doctors have already left for greener pastures, and a lot CFers are now being seen by internal medicine docs when we're hospitalized.


<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithCF.blogspot.com">Breathing Deeply: My Life With CF</a>
 

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>2perfectboys</b></i>

What? eliminate adult programs, come on.

</end quote></div>

Don't scoff at the idea.

The CFF is much more involved in funding research than it is in keeping clinics going. I have been told by medical personnel that what the clinic receives in terms of financial support from the CFF is only enough to keep a secretary on staff. The adult clinic I go to is floundering. Two doctors have already left for greener pastures, and a lot CFers are now being seen by internal medicine docs when we're hospitalized.


<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithCF.blogspot.com">Breathing Deeply: My Life With CF</a>
 

lightNlife

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>2perfectboys</b></i>

What? eliminate adult programs, come on.

</end quote></div>

Don't scoff at the idea.

The CFF is much more involved in funding research than it is in keeping clinics going. I have been told by medical personnel that what the clinic receives in terms of financial support from the CFF is only enough to keep a secretary on staff. The adult clinic I go to is floundering. Two doctors have already left for greener pastures, and a lot CFers are now being seen by internal medicine docs when we're hospitalized.


<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithCF.blogspot.com">Breathing Deeply: My Life With CF</a>
 

EnergyGal

New member
It is very interesting that this conversation brought in FIVE new members. Mandi, Michiel, John, mike and ryannie Welcome.


Edited to add: If someone with CF really wants to raise money they need to go to the media and let others know that route. Usually in a case with a health story, they do call the doctors offices.
 

EnergyGal

New member
It is very interesting that this conversation brought in FIVE new members. Mandi, Michiel, John, mike and ryannie Welcome.


Edited to add: If someone with CF really wants to raise money they need to go to the media and let others know that route. Usually in a case with a health story, they do call the doctors offices.
 

EnergyGal

New member
It is very interesting that this conversation brought in FIVE new members. Mandi, Michiel, John, mike and ryannie Welcome.


Edited to add: If someone with CF really wants to raise money they need to go to the media and let others know that route. Usually in a case with a health story, they do call the doctors offices.
 

Scarlett81

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Risa</b></i>

It is very interesting that this conversation brought in three new members. Mandi, mike and ryannie Welcome.</end quote></div>

Yes Welcome to all,
But Mike if you keep using this language you won't be here long. I'm annoyed at it, and others were too. Just giving you an fyi. This isn't MySpace.
 

Scarlett81

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Risa</b></i>

It is very interesting that this conversation brought in three new members. Mandi, mike and ryannie Welcome.</end quote></div>

Yes Welcome to all,
But Mike if you keep using this language you won't be here long. I'm annoyed at it, and others were too. Just giving you an fyi. This isn't MySpace.
 

Scarlett81

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Risa</b></i>

It is very interesting that this conversation brought in three new members. Mandi, mike and ryannie Welcome.</end quote></div>

Yes Welcome to all,
But Mike if you keep using this language you won't be here long. I'm annoyed at it, and others were too. Just giving you an fyi. This isn't MySpace.
 
2

2perfectboys

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>


</end quote></div>

The CFF is much more involved in funding research than it is in keeping clinics going. [/L]</end quote></div>

I would agree the CF fundation doesn more with reserch, but it is not in the business of running CF Centers, that is what hosps do, and r paid with insurance. I think he is refering to states cutting outing assistance to adult CF people. HE is in Claifornia there is a program there that will cover all his CF expenses, so now I think he is a fake for the most part
 
2

2perfectboys

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>


</end quote></div>

The CFF is much more involved in funding research than it is in keeping clinics going. [/L]</end quote></div>

I would agree the CF fundation doesn more with reserch, but it is not in the business of running CF Centers, that is what hosps do, and r paid with insurance. I think he is refering to states cutting outing assistance to adult CF people. HE is in Claifornia there is a program there that will cover all his CF expenses, so now I think he is a fake for the most part
 
2

2perfectboys

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>


</end quote></div>

The CFF is much more involved in funding research than it is in keeping clinics going. [/L]</end quote></div>

I would agree the CF fundation doesn more with reserch, but it is not in the business of running CF Centers, that is what hosps do, and r paid with insurance. I think he is refering to states cutting outing assistance to adult CF people. HE is in Claifornia there is a program there that will cover all his CF expenses, so now I think he is a fake for the most part
 
2

2perfectboys

Guest
ryannie55
can u tell us what his other myspaces r



Found them, your right. What a scam, he's lgged into his friend account but not into his CF one.
 
2

2perfectboys

Guest
ryannie55
can u tell us what his other myspaces r



Found them, your right. What a scam, he's lgged into his friend account but not into his CF one.
 
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