people who use cf to make money

amoo74

Member
It's coming up again because he still has this video on youtube and his web site and is still asking for money for some mysterious infection. No disrespect intended. But if he has realized that he was going about this in the wrong way, then he should remove that video or at least repost something up to date regarding all he has found out about his illness and the posted assistance here. I understand that he does have CF and we all feel like he just was uninformed. Well he's been informed. So he should change his video.

There are lots of people who don't have access or information about this blog/site and the discussions we've had. They don't know that he isn't just taking trying to take advantage of people. We need to respect them and ask that he remove his current youtube video.

That's all I'm saying.
 

amoo74

Member
It's coming up again because he still has this video on youtube and his web site and is still asking for money for some mysterious infection. No disrespect intended. But if he has realized that he was going about this in the wrong way, then he should remove that video or at least repost something up to date regarding all he has found out about his illness and the posted assistance here. I understand that he does have CF and we all feel like he just was uninformed. Well he's been informed. So he should change his video.

There are lots of people who don't have access or information about this blog/site and the discussions we've had. They don't know that he isn't just taking trying to take advantage of people. We need to respect them and ask that he remove his current youtube video.

That's all I'm saying.
 

amoo74

Member
It's coming up again because he still has this video on youtube and his web site and is still asking for money for some mysterious infection. No disrespect intended. But if he has realized that he was going about this in the wrong way, then he should remove that video or at least repost something up to date regarding all he has found out about his illness and the posted assistance here. I understand that he does have CF and we all feel like he just was uninformed. Well he's been informed. So he should change his video.

There are lots of people who don't have access or information about this blog/site and the discussions we've had. They don't know that he isn't just taking trying to take advantage of people. We need to respect them and ask that he remove his current youtube video.

That's all I'm saying.
 

julie

New member
Amy, come on now, just because people don't like how he approaches the situation and don't agree with it doesn't mean he should remove it from HIS myspace. It is a free freaking country last time I checked. If he needs help and he's putting it out there, then so be it. It's a lot more gutsy than most of us are.
 

julie

New member
Amy, come on now, just because people don't like how he approaches the situation and don't agree with it doesn't mean he should remove it from HIS myspace. It is a free freaking country last time I checked. If he needs help and he's putting it out there, then so be it. It's a lot more gutsy than most of us are.
 

julie

New member
Amy, come on now, just because people don't like how he approaches the situation and don't agree with it doesn't mean he should remove it from HIS myspace. It is a free freaking country last time I checked. If he needs help and he's putting it out there, then so be it. It's a lot more gutsy than most of us are.
 
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