coltsfan715
New member
My fiance, Kurt, and I were talking the other day about a little girl we know with CF. He had met her mother and the family (mom, and 3 children 6 yr old girl no CF, 4 yr old girl w/ CF, and 2 yr old boy no CF) through his work and became friends with them before he ever knew they had a connection to CF. He always wears a CF awareness bracelet and one day the mother grabbed his arm and held his bracelet and said what is this? Where did you get that? Then he proceeded to tell her about me and she told him about her daughter. We have gotten together several times and this little girl is the spunkiest thing I have ever seen. She is so smart and witty and full of life, but also has a little bit of an attitude - the kind of attitude CF patients get after years of treatments, hospital stays and taking care of themselves. She has that "years of experience" attitude and was just recently put in the hospital for her first "tune-up".
I mentioned her attitude to Kurt, and how I thought she was just great. How she was something special. Then Kurt looked at me and said you are the same way. I just looked at him and asked what he meant. He then went on to say how I had the same personality traits as this little girl and how every person he had met (since knowing me) that had CF he noticed the same traits. He said it was like we were chosen (in a sense) to have this disease because we were unique and well special (for lack of a better word). We were all strong, brave, happy and enjoying life refusing to let CF "live" us, like CF had made us appreciate everything that much more. He then said he wished he could do something to take CF from me, but that he was glad that I had CF - he hated that I had to be sick - but that if I didn't have this disease that I wouldn't be me and he loves the person I am and have become and my outlook on things - which is in large part due to what I have been through with CF. He continued to say that I and my having CF have made him slow down (since we met) and it has made him enjoy life and live in the moment and he was thankful for that.
I wanted to share that because it made me think alot. I have always been told by my family and friends that I am special or different or there is something about me. I never really thought much about it. I just shrugged it off as people being nice or not knowing what else to say. When Kurt said that to me though I thought about everyone I have and do know with CF, and it is soo true. There is something about everyone of us that makes us stand out to the people we know - and I am not talking CF. I wouldn't be surprised if everyone on here that has CF had not had numerous people say to them that there was just "something about them" (or something to that affect) or for people that know people with CF if you don't just see that "something" everytime you see the person.
I hope that was not too long winded. I just thought of that again today and it made me smile and tear up at the same time. Then I realized if anyone would want to hear it - it would be you guys here. Most likely you could relate <img src="i/expressions/face-icon-small-wink.gif" border="0">
Have a great day,
Lindsey
I mentioned her attitude to Kurt, and how I thought she was just great. How she was something special. Then Kurt looked at me and said you are the same way. I just looked at him and asked what he meant. He then went on to say how I had the same personality traits as this little girl and how every person he had met (since knowing me) that had CF he noticed the same traits. He said it was like we were chosen (in a sense) to have this disease because we were unique and well special (for lack of a better word). We were all strong, brave, happy and enjoying life refusing to let CF "live" us, like CF had made us appreciate everything that much more. He then said he wished he could do something to take CF from me, but that he was glad that I had CF - he hated that I had to be sick - but that if I didn't have this disease that I wouldn't be me and he loves the person I am and have become and my outlook on things - which is in large part due to what I have been through with CF. He continued to say that I and my having CF have made him slow down (since we met) and it has made him enjoy life and live in the moment and he was thankful for that.
I wanted to share that because it made me think alot. I have always been told by my family and friends that I am special or different or there is something about me. I never really thought much about it. I just shrugged it off as people being nice or not knowing what else to say. When Kurt said that to me though I thought about everyone I have and do know with CF, and it is soo true. There is something about everyone of us that makes us stand out to the people we know - and I am not talking CF. I wouldn't be surprised if everyone on here that has CF had not had numerous people say to them that there was just "something about them" (or something to that affect) or for people that know people with CF if you don't just see that "something" everytime you see the person.
I hope that was not too long winded. I just thought of that again today and it made me smile and tear up at the same time. Then I realized if anyone would want to hear it - it would be you guys here. Most likely you could relate <img src="i/expressions/face-icon-small-wink.gif" border="0">
Have a great day,
Lindsey