per mamerth

[china]

thanks for your reply.
I'm an Italian girl of 22 years.
until now only forum I attended Italian and I never trussed anyone with Emie same mutazioni.eppure'm not so rare.
possible that in the American forum there is no one besides you and me?

i tell of me:
only 3 years ago I was diagnosed with cystic fibrosis.
I've never had growth problems.
I was only 5 years after pancreatitis.
Even as a child I had to alternate periods cough (not particularly serious), also edited by the same doctor for allergy.
At 18 years and decided to change my doctor made me suspicious that the sweat test risultai positive with a value of 117 (more 'or less).
I have the staphylococcus and chronic AND YOU?
FEV 1 around 80%
o2 sat 99-100 AND YOU?
no case in the family (perhaps a cousin azoospermia) AND YOU?
I did 2 cycles per vein And YOU?
2 times a day do physio and I take hyaneb and fluimucil AND YOU?

NOW HAVE YOU GOT MUCH MUCO??

do you know if for our 2 mutations will come out 'any new farmaco?

 

[china]

thanks for your reply.
I'm an Italian girl of 22 years.
until now only forum I attended Italian and I never trussed anyone with Emie same mutazioni.eppure'm not so rare.
possible that in the American forum there is no one besides you and me?

i tell of me:
only 3 years ago I was diagnosed with cystic fibrosis.
I've never had growth problems.
I was only 5 years after pancreatitis.
Even as a child I had to alternate periods cough (not particularly serious), also edited by the same doctor for allergy.
At 18 years and decided to change my doctor made me suspicious that the sweat test risultai positive with a value of 117 (more 'or less).
I have the staphylococcus and chronic AND YOU?
FEV 1 around 80%
o2 sat 99-100 AND YOU?
no case in the family (perhaps a cousin azoospermia) AND YOU?
I did 2 cycles per vein And YOU?
2 times a day do physio and I take hyaneb and fluimucil AND YOU?

NOW HAVE YOU GOT MUCH MUCO??

do you know if for our 2 mutations will come out 'any new farmaco?

 

[china]

thanks for your reply.
<br />I'm an Italian girl of 22 years.
<br />until now only forum I attended Italian and I never trussed anyone with Emie same mutazioni.eppure'm not so rare.
<br />possible that in the American forum there is no one besides you and me?
<br />
<br />i tell of me:
<br />only 3 years ago I was diagnosed with cystic fibrosis.
<br />I've never had growth problems.
<br />I was only 5 years after pancreatitis.
<br />Even as a child I had to alternate periods cough (not particularly serious), also edited by the same doctor for allergy.
<br />At 18 years and decided to change my doctor made me suspicious that the sweat test risultai positive with a value of 117 (more 'or less).
<br />I have the staphylococcus and chronic AND YOU?
<br />FEV 1 around 80%
<br />o2 sat 99-100 AND YOU?
<br />no case in the family (perhaps a cousin azoospermia) AND YOU?
<br />I did 2 cycles per vein And YOU?
<br />2 times a day do physio and I take hyaneb and fluimucil AND YOU?
<br />
<br />NOW HAVE YOU GOT MUCH MUCO??
<br />
<br />do you know if for our 2 mutations will come out 'any new farmaco?

 

[mamerth]

I am had Staph, and pseudomonas. O2 stats of 95-99% at rest. FEV1 at 72%. I don't know if I have family member with CF.... I am adopted. I have two cycle of IV antibiotics... getting ready for round #3. I do physio 2-3 times per day otherwise my numbers drop temporarily. Hypertonic saline and nasal washes. I am currently on Augmentin antibiotics.

 

[mamerth]

I am had Staph, and pseudomonas. O2 stats of 95-99% at rest. FEV1 at 72%. I don't know if I have family member with CF.... I am adopted. I have two cycle of IV antibiotics... getting ready for round #3. I do physio 2-3 times per day otherwise my numbers drop temporarily. Hypertonic saline and nasal washes. I am currently on Augmentin antibiotics.

 

[mamerth]

I am had Staph, and pseudomonas. O2 stats of 95-99% at rest. FEV1 at 72%. I don't know if I have family member with CF.... I am adopted. I have two cycle of IV antibiotics... getting ready for round #3. I do physio 2-3 times per day otherwise my numbers drop temporarily. Hypertonic saline and nasal washes. I am currently on Augmentin antibiotics.

 

[mamerth]

I sent you a Private Message (top of your page when you are logged in).

 

[mamerth]

I sent you a Private Message (top of your page when you are logged in).

 

[mamerth]

I sent you a Private Message (top of your page when you are logged in).

 

[robert321]

Just out of curiosity, how do you say cystic fibrosis in Italian? I have some friends in Italy and while they speak a little bit of english, I do not speak any Italian. I have been wondering about this.

 

[robert321]

Just out of curiosity, how do you say cystic fibrosis in Italian? I have some friends in Italy and while they speak a little bit of english, I do not speak any Italian. I have been wondering about this.

 

[robert321]

Just out of curiosity, how do you say cystic fibrosis in Italian? I have some friends in Italy and while they speak a little bit of english, I do not speak any Italian. I have been wondering about this.