Physio Vests

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mousesmom

New member
Chris

I've heard that before. The doctors here say that the Vest is not necessary because hand clapping is better (and cheaper).

Anyhow I'm trying to raise the funds for my African friend who's problem is that she leaves for work at 5.00 am and get's back home at 6.00pm and has little time in which to do physio. As a result her daughter(12) gets really congested and is often sick. In this situation I think the Vest would help.
 
M

mousesmom

New member
Chris

I've heard that before. The doctors here say that the Vest is not necessary because hand clapping is better (and cheaper).

Anyhow I'm trying to raise the funds for my African friend who's problem is that she leaves for work at 5.00 am and get's back home at 6.00pm and has little time in which to do physio. As a result her daughter(12) gets really congested and is often sick. In this situation I think the Vest would help.
 
A

anonymous

New member
My first 15 years of my life...3 manual PFT's a day (minimum, sometimes up to 5 a day) and my FEV 1's were around 60-75%....the next 14 years of my life on the vest (done 1-2 times per day whenever I my personal schedule allowed)...I have never been below 92%. I am not suggesting it works for everyone, but for your doctors to say manual treatments are better isn't totally accurate. I cough up far more stuff using the vest then i ever did receiving manual treatments. But that is just my experience...someone else could reply to this and have the opposite experience. But to say manual is always better is wrong.
 
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anonymous

New member
My first 15 years of my life...3 manual PFT's a day (minimum, sometimes up to 5 a day) and my FEV 1's were around 60-75%....the next 14 years of my life on the vest (done 1-2 times per day whenever I my personal schedule allowed)...I have never been below 92%. I am not suggesting it works for everyone, but for your doctors to say manual treatments are better isn't totally accurate. I cough up far more stuff using the vest then i ever did receiving manual treatments. But that is just my experience...someone else could reply to this and have the opposite experience. But to say manual is always better is wrong.
 
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debs2girls

New member
We went to the clinic on Wednesday..he was supposed to order the vest (I was led to believe that) anyway, he said he doesnt think it would be good for her right now since he hasnt given her a possitive cf dx...only probable...ok, fine...but the vest isnt only for cf and Cheyenne has alot of lung damage already and I dont think the manual cpt is working very well for her...the vest lady said she can get her approved by her insurance but her doctor said we would end up paying for it...what do you all think?
 
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debs2girls

New member
We went to the clinic on Wednesday..he was supposed to order the vest (I was led to believe that) anyway, he said he doesnt think it would be good for her right now since he hasnt given her a possitive cf dx...only probable...ok, fine...but the vest isnt only for cf and Cheyenne has alot of lung damage already and I dont think the manual cpt is working very well for her...the vest lady said she can get her approved by her insurance but her doctor said we would end up paying for it...what do you all think?
 
J

JazzysMom

New member
Although CF is the illness the vest is most frequently prescribed for, if You look on the vest website it indicates anyone with COPD (which includes emphysema, asthma, CF etc) can receive a benefit. People with CP also. The fact that your child already has lung damage should be enough to order it & have the insurance carrier pay (if they cover durable medical equipment). If there is proof of damage without a known cause than that is what the dx would be until the cause is finally determined.........


maybe print the info off the site...... <a target=new class=ftalternatingbarlinklarge href="http://www.thevest.com">http://www.thevest.com</a>
 
J

JazzysMom

New member
Although CF is the illness the vest is most frequently prescribed for, if You look on the vest website it indicates anyone with COPD (which includes emphysema, asthma, CF etc) can receive a benefit. People with CP also. The fact that your child already has lung damage should be enough to order it & have the insurance carrier pay (if they cover durable medical equipment). If there is proof of damage without a known cause than that is what the dx would be until the cause is finally determined.........


maybe print the info off the site...... <a target=new class=ftalternatingbarlinklarge href="http://www.thevest.com">http://www.thevest.com</a>
 
A

anonymous

New member
Deb,

Like your daughter, my daughter has had many lung problems. She will be three in March. I have noticed a definite improvement since she started the vest. I normally listened to her with a stethoscope daily. Prior to the vest, she almost always sounded coarse, had popping in her lower lobes.

Since the vest, her hospitalizations are minimal to none. Her lungs sound so much clearer than they ever had before. Even when she starts to get sick or cultures a new "bug", an oral anitibiotic is enough now. Before the vest, she always ended up in the hospital and on IVs despite trying oral meds and doing a lot of CPT.

They can give you a trial month free, why not try and see if you notice an improvement? If you see improvement, at least you have a good argument for the doctor, diagnosis or not.

Maria (mom of three girls, the youngest, Sami w/cf)
 
A

anonymous

New member
Deb,

Like your daughter, my daughter has had many lung problems. She will be three in March. I have noticed a definite improvement since she started the vest. I normally listened to her with a stethoscope daily. Prior to the vest, she almost always sounded coarse, had popping in her lower lobes.

Since the vest, her hospitalizations are minimal to none. Her lungs sound so much clearer than they ever had before. Even when she starts to get sick or cultures a new "bug", an oral anitibiotic is enough now. Before the vest, she always ended up in the hospital and on IVs despite trying oral meds and doing a lot of CPT.

They can give you a trial month free, why not try and see if you notice an improvement? If you see improvement, at least you have a good argument for the doctor, diagnosis or not.

Maria (mom of three girls, the youngest, Sami w/cf)
 
A

anonymous

New member
We went to the clinic on Wednesday..he was supposed to order the vest (I was led to believe that) anyway, he said he doesnt think it would be good for her right now since he hasnt given her a possitive cf dx...only probable...ok, fine...but the vest isnt only for cf and Cheyenne has alot of lung damage already and I dont think the manual cpt is working very well for her...the vest lady said she can get her approved by her insurance but her doctor said we would end up paying for it...what do you all think?

-------------------------
Mom to Cheyenne 5 with c/f

You are getting the exact run around that we did with my son who is 3. They kept saying he was going to get it and then all of a sudden they changed their minds. They said it wouldnt fit him (of course they fitted him with a medium instead of small, go figure the medium wouldnt fit) they said they didnt make them in a small, which is bull. I ended up going through his regular pediatrician, and they got it. Then the CF doctors got word of it and sent the other doctors a not so nice note saying they should make us send it back. After a fight with the doctors we just gave in and sent it back. I feel they like to do a lot of research and not so much about worrying about the patients health. We know there are other children with CF that are small and younger than my son and yet they have the vest? So how does that work? RESEARCH its all about the research.
dawn
dawnnicolerumph@yahoo.com
 
A

anonymous

New member
We went to the clinic on Wednesday..he was supposed to order the vest (I was led to believe that) anyway, he said he doesnt think it would be good for her right now since he hasnt given her a possitive cf dx...only probable...ok, fine...but the vest isnt only for cf and Cheyenne has alot of lung damage already and I dont think the manual cpt is working very well for her...the vest lady said she can get her approved by her insurance but her doctor said we would end up paying for it...what do you all think?

-------------------------
Mom to Cheyenne 5 with c/f

You are getting the exact run around that we did with my son who is 3. They kept saying he was going to get it and then all of a sudden they changed their minds. They said it wouldnt fit him (of course they fitted him with a medium instead of small, go figure the medium wouldnt fit) they said they didnt make them in a small, which is bull. I ended up going through his regular pediatrician, and they got it. Then the CF doctors got word of it and sent the other doctors a not so nice note saying they should make us send it back. After a fight with the doctors we just gave in and sent it back. I feel they like to do a lot of research and not so much about worrying about the patients health. We know there are other children with CF that are small and younger than my son and yet they have the vest? So how does that work? RESEARCH its all about the research.
dawn
dawnnicolerumph@yahoo.com
 
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debs2girls

New member
Until I can get the doctor to order the vest, do you think this will help? Chey never coughs anything up just around...lol

PEP is a technique that uses a hand held device which can be used with a nebulizer attached. It has a restricted orifice. When exhaled into, this creates pressure in the lungs. This pressure allows air to enter behind areas of mucus obstruction and keeps the airways open during exhalation. As you exhale, mucus moves towards the larger airways, so it can be more easily coughed up with the huff technique. PEP can be taught to children as young as 5 years, and can be passively given to infants via a mask. The treatment time is about 20 minutes.
 
D

debs2girls

New member
Until I can get the doctor to order the vest, do you think this will help? Chey never coughs anything up just around...lol

PEP is a technique that uses a hand held device which can be used with a nebulizer attached. It has a restricted orifice. When exhaled into, this creates pressure in the lungs. This pressure allows air to enter behind areas of mucus obstruction and keeps the airways open during exhalation. As you exhale, mucus moves towards the larger airways, so it can be more easily coughed up with the huff technique. PEP can be taught to children as young as 5 years, and can be passively given to infants via a mask. The treatment time is about 20 minutes.
 
2

2005CFmom

Super Moderator
Is the PEP similar the the Acapella? My daughter uses an Acapella occasionally, but since we don't know how effective she is at using it, we don't depend on that only. When we are traveling we will let her use the Acapella in the car, but we still make sure she gets atleast 1 manual CPT a day. Sarah only occasionally coughs things up so it is difficult to tell which method is more effective.
 
2

2005CFmom

Super Moderator
Is the PEP similar the the Acapella? My daughter uses an Acapella occasionally, but since we don't know how effective she is at using it, we don't depend on that only. When we are traveling we will let her use the Acapella in the car, but we still make sure she gets atleast 1 manual CPT a day. Sarah only occasionally coughs things up so it is difficult to tell which method is more effective.
 
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