PICC Lines

zoeg

New member
Hello all,
My daughter was admitted last spring for PA. THey did eradicate it and she has had 3 clean cultures since. YAY! Anyway, they couldn't get in a PICC at the time, said her veins were too small (she was 6 months at the time.) I guess my question is, I know it will happen again when we must go in to the hospital. Does PICC line access get better with age, or from your experience will there always be trouble? I know it seems irrelevant right now, but of course I started thinking of this at 4 am today and couldn't get back to sleep and can't get it off my mind!

Thanks,
Zoe mom to Kate wCF
 

zoeg

New member
Hello all,
My daughter was admitted last spring for PA. THey did eradicate it and she has had 3 clean cultures since. YAY! Anyway, they couldn't get in a PICC at the time, said her veins were too small (she was 6 months at the time.) I guess my question is, I know it will happen again when we must go in to the hospital. Does PICC line access get better with age, or from your experience will there always be trouble? I know it seems irrelevant right now, but of course I started thinking of this at 4 am today and couldn't get back to sleep and can't get it off my mind!

Thanks,
Zoe mom to Kate wCF
 

zoeg

New member
Hello all,
My daughter was admitted last spring for PA. THey did eradicate it and she has had 3 clean cultures since. YAY! Anyway, they couldn't get in a PICC at the time, said her veins were too small (she was 6 months at the time.) I guess my question is, I know it will happen again when we must go in to the hospital. Does PICC line access get better with age, or from your experience will there always be trouble? I know it seems irrelevant right now, but of course I started thinking of this at 4 am today and couldn't get back to sleep and can't get it off my mind!

Thanks,
Zoe mom to Kate wCF
 

Emily65Roses

New member
It depends. Lots of people have no trouble with PICCs. Because your daughter is so young (and therefore small), she has the opportunity to grow enough to have bigger veins and tolerate PICCs much better.

But there are adults that don't do well with PICCs too, myself included. I had 3 rounds of IVs with a PICC (all from my ages 16-18), and every time I couldn't keep one in (the 3 rounds of IVs forced me to have 6 [almost 7] different PICCs while one is supposed to last the entire round). My veins were like "Uhm... no." So I had a port placed to take over where PICCs failed me. In other words, I hope she'll grow into PICCs so she can use them for a while, but she may not (in which case you might want to look at ports). And she may grow into them but eventually have her veins go "Screw this, I've had enough" in which case, you'll want to discuss a port anyway.
 

Emily65Roses

New member
It depends. Lots of people have no trouble with PICCs. Because your daughter is so young (and therefore small), she has the opportunity to grow enough to have bigger veins and tolerate PICCs much better.

But there are adults that don't do well with PICCs too, myself included. I had 3 rounds of IVs with a PICC (all from my ages 16-18), and every time I couldn't keep one in (the 3 rounds of IVs forced me to have 6 [almost 7] different PICCs while one is supposed to last the entire round). My veins were like "Uhm... no." So I had a port placed to take over where PICCs failed me. In other words, I hope she'll grow into PICCs so she can use them for a while, but she may not (in which case you might want to look at ports). And she may grow into them but eventually have her veins go "Screw this, I've had enough" in which case, you'll want to discuss a port anyway.
 

Emily65Roses

New member
It depends. Lots of people have no trouble with PICCs. Because your daughter is so young (and therefore small), she has the opportunity to grow enough to have bigger veins and tolerate PICCs much better.

But there are adults that don't do well with PICCs too, myself included. I had 3 rounds of IVs with a PICC (all from my ages 16-18), and every time I couldn't keep one in (the 3 rounds of IVs forced me to have 6 [almost 7] different PICCs while one is supposed to last the entire round). My veins were like "Uhm... no." So I had a port placed to take over where PICCs failed me. In other words, I hope she'll grow into PICCs so she can use them for a while, but she may not (in which case you might want to look at ports). And she may grow into them but eventually have her veins go "Screw this, I've had enough" in which case, you'll want to discuss a port anyway.
 

Emily65Roses

New member
Ports is one of my best knowledge areas. Hahaha.

Okay, a port is a surgically implanted device used for IV access. The device is always there, but there's not always a needle in you. It's placed because they can make sure they put it in a MAJOR vein, so you always have a very good place to inject IV meds. It sounds scary, because it's fairly permanent (they stay as long as the device lasts... assuming there is no clot or infection, it can sometimes last as long as 10 years), but it's incredibly convenient.

This is a picture of where mine is placed (though usually they are up higher, on the collarbone):
<img src="http://i14.photobucket.com/albums/a347/Emily65Roses/PortFrontView10-10-05.jpg">
This is a sideview of it:
<img src="http://i14.photobucket.com/albums/a347/Emily65Roses/PortSideView10-10-05.jpg">

I know it looks painful. But it's not. I can ram that thing into almost anything, and it doesn't hurt a bit. It hurt when it was healing, but that's true of any incision.

This is what it looks like when I'm using it (that means I'm on IVs, and there's a needle in the device at almost all times:
<img src="http://i14.photobucket.com/albums/a347/Emily65Roses/Accessedport12-15-06.jpg">

Having a needle in at all times also sounds scary, but it's anchored in the device, so it won't budge and accidentally puncture your lungs or anything nuts like that.

This is what the port itself actually looks like, as well as the type of needles that are used in it (they are right angle, or 90 degree needles, so that they can go into the port and still lie flat on your skin):
<img src="http://www.snwlk.nl/images/DSC00002.JPG">

Most of the port is made of surgical steel. That usually makes people ask "Well then how do the needles get into it?" The top of the port is a hard gel, allowing sharp objects (like needles) in... meanwhile keeping liquids (like blood) from getting out.

I had mine implanted when I was 18, so I've had it for almost 5 years now, and it has given me almost no trouble. It was painful healing from (more so than my other surgeries in my opinion, as my tissue was like "WHAT IS THIS FOREIGN CRAP?!?!"), but 100% worth it. I'd recommend a port to anyone who is having trouble with PICCs or who has so many that they're tired of getting poked all the time. The needles used for a port are incredibly thin. They are 20 or 22 gauge, while regular earrings are 18s, and needles get thinner as the numbers get higher. So in other words, a port needle is a size or two THINNER than regular lobe earrings.
<img src="i/expressions/face-icon-small-smile.gif" border="0">
Feel free to ask me anything ever, but especially port stuff. It's, as I said, one of my best areas. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Emily65Roses

New member
Ports is one of my best knowledge areas. Hahaha.

Okay, a port is a surgically implanted device used for IV access. The device is always there, but there's not always a needle in you. It's placed because they can make sure they put it in a MAJOR vein, so you always have a very good place to inject IV meds. It sounds scary, because it's fairly permanent (they stay as long as the device lasts... assuming there is no clot or infection, it can sometimes last as long as 10 years), but it's incredibly convenient.

This is a picture of where mine is placed (though usually they are up higher, on the collarbone):
<img src="http://i14.photobucket.com/albums/a347/Emily65Roses/PortFrontView10-10-05.jpg">
This is a sideview of it:
<img src="http://i14.photobucket.com/albums/a347/Emily65Roses/PortSideView10-10-05.jpg">

I know it looks painful. But it's not. I can ram that thing into almost anything, and it doesn't hurt a bit. It hurt when it was healing, but that's true of any incision.

This is what it looks like when I'm using it (that means I'm on IVs, and there's a needle in the device at almost all times:
<img src="http://i14.photobucket.com/albums/a347/Emily65Roses/Accessedport12-15-06.jpg">

Having a needle in at all times also sounds scary, but it's anchored in the device, so it won't budge and accidentally puncture your lungs or anything nuts like that.

This is what the port itself actually looks like, as well as the type of needles that are used in it (they are right angle, or 90 degree needles, so that they can go into the port and still lie flat on your skin):
<img src="http://www.snwlk.nl/images/DSC00002.JPG">

Most of the port is made of surgical steel. That usually makes people ask "Well then how do the needles get into it?" The top of the port is a hard gel, allowing sharp objects (like needles) in... meanwhile keeping liquids (like blood) from getting out.

I had mine implanted when I was 18, so I've had it for almost 5 years now, and it has given me almost no trouble. It was painful healing from (more so than my other surgeries in my opinion, as my tissue was like "WHAT IS THIS FOREIGN CRAP?!?!"), but 100% worth it. I'd recommend a port to anyone who is having trouble with PICCs or who has so many that they're tired of getting poked all the time. The needles used for a port are incredibly thin. They are 20 or 22 gauge, while regular earrings are 18s, and needles get thinner as the numbers get higher. So in other words, a port needle is a size or two THINNER than regular lobe earrings.
<img src="i/expressions/face-icon-small-smile.gif" border="0">
Feel free to ask me anything ever, but especially port stuff. It's, as I said, one of my best areas. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Emily65Roses

New member
Ports is one of my best knowledge areas. Hahaha.

Okay, a port is a surgically implanted device used for IV access. The device is always there, but there's not always a needle in you. It's placed because they can make sure they put it in a MAJOR vein, so you always have a very good place to inject IV meds. It sounds scary, because it's fairly permanent (they stay as long as the device lasts... assuming there is no clot or infection, it can sometimes last as long as 10 years), but it's incredibly convenient.

This is a picture of where mine is placed (though usually they are up higher, on the collarbone):
<img src="http://i14.photobucket.com/albums/a347/Emily65Roses/PortFrontView10-10-05.jpg">
This is a sideview of it:
<img src="http://i14.photobucket.com/albums/a347/Emily65Roses/PortSideView10-10-05.jpg">

I know it looks painful. But it's not. I can ram that thing into almost anything, and it doesn't hurt a bit. It hurt when it was healing, but that's true of any incision.

This is what it looks like when I'm using it (that means I'm on IVs, and there's a needle in the device at almost all times:
<img src="http://i14.photobucket.com/albums/a347/Emily65Roses/Accessedport12-15-06.jpg">

Having a needle in at all times also sounds scary, but it's anchored in the device, so it won't budge and accidentally puncture your lungs or anything nuts like that.

This is what the port itself actually looks like, as well as the type of needles that are used in it (they are right angle, or 90 degree needles, so that they can go into the port and still lie flat on your skin):
<img src="http://www.snwlk.nl/images/DSC00002.JPG">

Most of the port is made of surgical steel. That usually makes people ask "Well then how do the needles get into it?" The top of the port is a hard gel, allowing sharp objects (like needles) in... meanwhile keeping liquids (like blood) from getting out.

I had mine implanted when I was 18, so I've had it for almost 5 years now, and it has given me almost no trouble. It was painful healing from (more so than my other surgeries in my opinion, as my tissue was like "WHAT IS THIS FOREIGN CRAP?!?!"), but 100% worth it. I'd recommend a port to anyone who is having trouble with PICCs or who has so many that they're tired of getting poked all the time. The needles used for a port are incredibly thin. They are 20 or 22 gauge, while regular earrings are 18s, and needles get thinner as the numbers get higher. So in other words, a port needle is a size or two THINNER than regular lobe earrings.
<img src="i/expressions/face-icon-small-smile.gif" border="0">
Feel free to ask me anything ever, but especially port stuff. It's, as I said, one of my best areas. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Nicole

New member
My son had his first PICC placed when he was a few days old. They never even mentioned that size was/could have been a problem.
 

Nicole

New member
My son had his first PICC placed when he was a few days old. They never even mentioned that size was/could have been a problem.
 

Nicole

New member
My son had his first PICC placed when he was a few days old. They never even mentioned that size was/could have been a problem.
 

glbazzle

New member
My name is Grace and i'm 18 with CF. I've had 2 ports but recently have been relying on PICC lines. I have the same problem as your daughter though with very small veins. they take me to radiology when they put my PICCs in and use an ultrasound to find my veins. PICCs are good for people who don't get IVs every other month, but depending on your daughter's health you might want to consider a port later down the road. I had mine when i was 10-14 yrs old and i actually liked them most of the time haha <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

glbazzle

New member
My name is Grace and i'm 18 with CF. I've had 2 ports but recently have been relying on PICC lines. I have the same problem as your daughter though with very small veins. they take me to radiology when they put my PICCs in and use an ultrasound to find my veins. PICCs are good for people who don't get IVs every other month, but depending on your daughter's health you might want to consider a port later down the road. I had mine when i was 10-14 yrs old and i actually liked them most of the time haha <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

glbazzle

New member
My name is Grace and i'm 18 with CF. I've had 2 ports but recently have been relying on PICC lines. I have the same problem as your daughter though with very small veins. they take me to radiology when they put my PICCs in and use an ultrasound to find my veins. PICCs are good for people who don't get IVs every other month, but depending on your daughter's health you might want to consider a port later down the road. I had mine when i was 10-14 yrs old and i actually liked them most of the time haha <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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