You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Planning for a Tx?
- Thread starter CowTown
- Start date
Thanks for everyone's input. It is a tough decision and something I've never delt with before. I've decided to take a high elevation test here at sea level to check whether 8k feet is going to be an issue for me. Who knows. If it is a problem then I know what to do. I agree being happy and comfortable is very important. I'll also see what my doctor thinks. Thanks for the suggestions!
Thanks for everyone's input. It is a tough decision and something I've never delt with before. I've decided to take a high elevation test here at sea level to check whether 8k feet is going to be an issue for me. Who knows. If it is a problem then I know what to do. I agree being happy and comfortable is very important. I'll also see what my doctor thinks. Thanks for the suggestions!
Thanks for everyone's input. It is a tough decision and something I've never delt with before. I've decided to take a high elevation test here at sea level to check whether 8k feet is going to be an issue for me. Who knows. If it is a problem then I know what to do. I agree being happy and comfortable is very important. I'll also see what my doctor thinks. Thanks for the suggestions!
That is what I would do ask your doctor. You can even call the nearest transplant center and tell them what you plan on doing. Maybe a transplant nurse will talk with you. I know when I called around to different centers, they always gave me time on the phone with any questions.
Go with your gut. You are very fortunate that you can move if you have to. Your husband must have a flexible job schedule. You are blessed.
Go with your gut. You are very fortunate that you can move if you have to. Your husband must have a flexible job schedule. You are blessed.
That is what I would do ask your doctor. You can even call the nearest transplant center and tell them what you plan on doing. Maybe a transplant nurse will talk with you. I know when I called around to different centers, they always gave me time on the phone with any questions.
Go with your gut. You are very fortunate that you can move if you have to. Your husband must have a flexible job schedule. You are blessed.
Go with your gut. You are very fortunate that you can move if you have to. Your husband must have a flexible job schedule. You are blessed.
That is what I would do ask your doctor. You can even call the nearest transplant center and tell them what you plan on doing. Maybe a transplant nurse will talk with you. I know when I called around to different centers, they always gave me time on the phone with any questions.
Go with your gut. You are very fortunate that you can move if you have to. Your husband must have a flexible job schedule. You are blessed.
Go with your gut. You are very fortunate that you can move if you have to. Your husband must have a flexible job schedule. You are blessed.
I saw my doctor yesterday and I asked him his thoughts on my moving back to 8,500 feet elevation now that I'm at 46%. I took an elevation test last year for 8,000 ft and it showed then that if I were to exert myself any more then normal slow walking that I would "definitely" need O2.
I guess my question now is would that be a bad idea for me to move knowing that I would need O2, when I don't need it at sea level? I mean, isn't that the solution....just use oxygen. My mom mentioned that she doesn't want me to move to that elevation b/c to her it would seem like I'm digressing by choice. "Why speed up the process and use oxygen before you naturally need it?" is what she says. I don't know about that. If we were to move back there, I would want to rock climb again (hopefully I would feel up to it!) which gets up to 9,500 ft and I'm thinking I would obvisouly just take my O2 with me and all would be fine. Is that a bad idea or is it just a solution? If I have enough oxygen then I'm not hurting my body in anyway, right? Maybe the move would only for be 2 years or so. Obviously when I get closer to tx I would have to move back to LA.
What do you guys think?
I guess my question now is would that be a bad idea for me to move knowing that I would need O2, when I don't need it at sea level? I mean, isn't that the solution....just use oxygen. My mom mentioned that she doesn't want me to move to that elevation b/c to her it would seem like I'm digressing by choice. "Why speed up the process and use oxygen before you naturally need it?" is what she says. I don't know about that. If we were to move back there, I would want to rock climb again (hopefully I would feel up to it!) which gets up to 9,500 ft and I'm thinking I would obvisouly just take my O2 with me and all would be fine. Is that a bad idea or is it just a solution? If I have enough oxygen then I'm not hurting my body in anyway, right? Maybe the move would only for be 2 years or so. Obviously when I get closer to tx I would have to move back to LA.
What do you guys think?
I saw my doctor yesterday and I asked him his thoughts on my moving back to 8,500 feet elevation now that I'm at 46%. I took an elevation test last year for 8,000 ft and it showed then that if I were to exert myself any more then normal slow walking that I would "definitely" need O2.
I guess my question now is would that be a bad idea for me to move knowing that I would need O2, when I don't need it at sea level? I mean, isn't that the solution....just use oxygen. My mom mentioned that she doesn't want me to move to that elevation b/c to her it would seem like I'm digressing by choice. "Why speed up the process and use oxygen before you naturally need it?" is what she says. I don't know about that. If we were to move back there, I would want to rock climb again (hopefully I would feel up to it!) which gets up to 9,500 ft and I'm thinking I would obvisouly just take my O2 with me and all would be fine. Is that a bad idea or is it just a solution? If I have enough oxygen then I'm not hurting my body in anyway, right? Maybe the move would only for be 2 years or so. Obviously when I get closer to tx I would have to move back to LA.
What do you guys think?
I guess my question now is would that be a bad idea for me to move knowing that I would need O2, when I don't need it at sea level? I mean, isn't that the solution....just use oxygen. My mom mentioned that she doesn't want me to move to that elevation b/c to her it would seem like I'm digressing by choice. "Why speed up the process and use oxygen before you naturally need it?" is what she says. I don't know about that. If we were to move back there, I would want to rock climb again (hopefully I would feel up to it!) which gets up to 9,500 ft and I'm thinking I would obvisouly just take my O2 with me and all would be fine. Is that a bad idea or is it just a solution? If I have enough oxygen then I'm not hurting my body in anyway, right? Maybe the move would only for be 2 years or so. Obviously when I get closer to tx I would have to move back to LA.
What do you guys think?
I saw my doctor yesterday and I asked him his thoughts on my moving back to 8,500 feet elevation now that I'm at 46%. I took an elevation test last year for 8,000 ft and it showed then that if I were to exert myself any more then normal slow walking that I would "definitely" need O2.
I guess my question now is would that be a bad idea for me to move knowing that I would need O2, when I don't need it at sea level? I mean, isn't that the solution....just use oxygen. My mom mentioned that she doesn't want me to move to that elevation b/c to her it would seem like I'm digressing by choice. "Why speed up the process and use oxygen before you naturally need it?" is what she says. I don't know about that. If we were to move back there, I would want to rock climb again (hopefully I would feel up to it!) which gets up to 9,500 ft and I'm thinking I would obvisouly just take my O2 with me and all would be fine. Is that a bad idea or is it just a solution? If I have enough oxygen then I'm not hurting my body in anyway, right? Maybe the move would only for be 2 years or so. Obviously when I get closer to tx I would have to move back to LA.
What do you guys think?
I guess my question now is would that be a bad idea for me to move knowing that I would need O2, when I don't need it at sea level? I mean, isn't that the solution....just use oxygen. My mom mentioned that she doesn't want me to move to that elevation b/c to her it would seem like I'm digressing by choice. "Why speed up the process and use oxygen before you naturally need it?" is what she says. I don't know about that. If we were to move back there, I would want to rock climb again (hopefully I would feel up to it!) which gets up to 9,500 ft and I'm thinking I would obvisouly just take my O2 with me and all would be fine. Is that a bad idea or is it just a solution? If I have enough oxygen then I'm not hurting my body in anyway, right? Maybe the move would only for be 2 years or so. Obviously when I get closer to tx I would have to move back to LA.
What do you guys think?
I think being on oxygen is easier said than done. That's a lot of work.... people get dry noses, bruses around their ears where the tube sits, and all kinds of other things.
I don't know what's going onto your decisions to move (you seem very anxious to do it), but all other things equal, I wouldn't volunteer for oxygen. It sounds not-so-fun to me <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0">
I don't know what's going onto your decisions to move (you seem very anxious to do it), but all other things equal, I wouldn't volunteer for oxygen. It sounds not-so-fun to me <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0">
I think being on oxygen is easier said than done. That's a lot of work.... people get dry noses, bruses around their ears where the tube sits, and all kinds of other things.
I don't know what's going onto your decisions to move (you seem very anxious to do it), but all other things equal, I wouldn't volunteer for oxygen. It sounds not-so-fun to me <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0">
I don't know what's going onto your decisions to move (you seem very anxious to do it), but all other things equal, I wouldn't volunteer for oxygen. It sounds not-so-fun to me <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0">
I think being on oxygen is easier said than done. That's a lot of work.... people get dry noses, bruses around their ears where the tube sits, and all kinds of other things.
I don't know what's going onto your decisions to move (you seem very anxious to do it), but all other things equal, I wouldn't volunteer for oxygen. It sounds not-so-fun to me <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0">
I don't know what's going onto your decisions to move (you seem very anxious to do it), but all other things equal, I wouldn't volunteer for oxygen. It sounds not-so-fun to me <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0"> <img src="i/expressions/face-icon-small-sad.gif" border="0">
Using oxygen when needed is fine. I would not personally want to move and use oxgyen to survive when I could live without it living in another location. Living on oxygen for five months pre transplant was not enjoyable for me. I hate using oxygen and that is the reason for needing a transplant because you cannot function without the use of wearing oxygen.
I agree with your Mother. You can live where you are now without needing oxygen then that is wonderful. 46% is great. Appreciate what your FEV1 is and build your body back into the best shape if you can. Rock climbing is a great goal for your future.
The rule for me was the more I used oxygen, the more I needed to wear it. Your body gets use to the oxygen and if you forget to take it off when you sit down etc... you body develops a resistance and you eventually need more oxgyen over time. When a person has a diseased lung, wearing oxygen helps them to survive but they do feel the suffering and for me, wearing oxygen hurt me because I was taking in too much. When I was able to lower the amount over a months period of time, I felt back to normal.
Wearing oxygen is like living on another plane in life. You feel funny. You are controlled by another force. I am sorry but that was my experience.
O2 is not the answer. Be happy that you have a SMART Mother
I agree with your Mother. You can live where you are now without needing oxygen then that is wonderful. 46% is great. Appreciate what your FEV1 is and build your body back into the best shape if you can. Rock climbing is a great goal for your future.
The rule for me was the more I used oxygen, the more I needed to wear it. Your body gets use to the oxygen and if you forget to take it off when you sit down etc... you body develops a resistance and you eventually need more oxgyen over time. When a person has a diseased lung, wearing oxygen helps them to survive but they do feel the suffering and for me, wearing oxygen hurt me because I was taking in too much. When I was able to lower the amount over a months period of time, I felt back to normal.
Wearing oxygen is like living on another plane in life. You feel funny. You are controlled by another force. I am sorry but that was my experience.
O2 is not the answer. Be happy that you have a SMART Mother
Using oxygen when needed is fine. I would not personally want to move and use oxgyen to survive when I could live without it living in another location. Living on oxygen for five months pre transplant was not enjoyable for me. I hate using oxygen and that is the reason for needing a transplant because you cannot function without the use of wearing oxygen.
I agree with your Mother. You can live where you are now without needing oxygen then that is wonderful. 46% is great. Appreciate what your FEV1 is and build your body back into the best shape if you can. Rock climbing is a great goal for your future.
The rule for me was the more I used oxygen, the more I needed to wear it. Your body gets use to the oxygen and if you forget to take it off when you sit down etc... you body develops a resistance and you eventually need more oxgyen over time. When a person has a diseased lung, wearing oxygen helps them to survive but they do feel the suffering and for me, wearing oxygen hurt me because I was taking in too much. When I was able to lower the amount over a months period of time, I felt back to normal.
Wearing oxygen is like living on another plane in life. You feel funny. You are controlled by another force. I am sorry but that was my experience.
O2 is not the answer. Be happy that you have a SMART Mother
I agree with your Mother. You can live where you are now without needing oxygen then that is wonderful. 46% is great. Appreciate what your FEV1 is and build your body back into the best shape if you can. Rock climbing is a great goal for your future.
The rule for me was the more I used oxygen, the more I needed to wear it. Your body gets use to the oxygen and if you forget to take it off when you sit down etc... you body develops a resistance and you eventually need more oxgyen over time. When a person has a diseased lung, wearing oxygen helps them to survive but they do feel the suffering and for me, wearing oxygen hurt me because I was taking in too much. When I was able to lower the amount over a months period of time, I felt back to normal.
Wearing oxygen is like living on another plane in life. You feel funny. You are controlled by another force. I am sorry but that was my experience.
O2 is not the answer. Be happy that you have a SMART Mother
Using oxygen when needed is fine. I would not personally want to move and use oxgyen to survive when I could live without it living in another location. Living on oxygen for five months pre transplant was not enjoyable for me. I hate using oxygen and that is the reason for needing a transplant because you cannot function without the use of wearing oxygen.
I agree with your Mother. You can live where you are now without needing oxygen then that is wonderful. 46% is great. Appreciate what your FEV1 is and build your body back into the best shape if you can. Rock climbing is a great goal for your future.
The rule for me was the more I used oxygen, the more I needed to wear it. Your body gets use to the oxygen and if you forget to take it off when you sit down etc... you body develops a resistance and you eventually need more oxgyen over time. When a person has a diseased lung, wearing oxygen helps them to survive but they do feel the suffering and for me, wearing oxygen hurt me because I was taking in too much. When I was able to lower the amount over a months period of time, I felt back to normal.
Wearing oxygen is like living on another plane in life. You feel funny. You are controlled by another force. I am sorry but that was my experience.
O2 is not the answer. Be happy that you have a SMART Mother
I agree with your Mother. You can live where you are now without needing oxygen then that is wonderful. 46% is great. Appreciate what your FEV1 is and build your body back into the best shape if you can. Rock climbing is a great goal for your future.
The rule for me was the more I used oxygen, the more I needed to wear it. Your body gets use to the oxygen and if you forget to take it off when you sit down etc... you body develops a resistance and you eventually need more oxgyen over time. When a person has a diseased lung, wearing oxygen helps them to survive but they do feel the suffering and for me, wearing oxygen hurt me because I was taking in too much. When I was able to lower the amount over a months period of time, I felt back to normal.
Wearing oxygen is like living on another plane in life. You feel funny. You are controlled by another force. I am sorry but that was my experience.
O2 is not the answer. Be happy that you have a SMART Mother
For what it's worth, I have had a completely different experience with oxygen than what was described to you. I have used oxygen on and off for about 9 years now. I have used it for a few months at a time and been able to get off of it for long periods. This latest episode has been tougher. I've been on for about a year straight now. I work a high level, full-time, very visible job and just cart it with me. Would I prefer not to have it - sure! But it's not going to limit where I go and what I do if I can help it. I take it up to visit my daughter at college in Flagstaff (8,500 feet at the ski resort), and I make arrangements to have plenty at the beach in San Diego for vacations. I have never had nose or ear problems with it. It is possible that with more exercise I could get myself off ot it, but that's not for certain. Still, I'm going to work toward that goal. I have never had to increase the amount up - it's not something that your body gets used to one amount that then requires you to up the next higher dose. The only reason to up the dose would be if your lungs got progressively worse.
I think each person needs to consider what he or she wants out of life. If you'd rather live somewhere else, but deal with O2, go ahead and do it. The other option is live an unsatisfactory life where you can say "well, at least I'm not wearing ozygen." And what kind of quaility life will that be for you? I am into quality, not quantity of life. Lucky for me, I've had both, having reached nearly 55 years later this month. Before making any final decisions, get some more information from those who are experts in oxgen, not just those of us think we know about it. And good luck, whatever decision you make. Remember, there is no right or wrong decision - just the one that works for you personally.
I think each person needs to consider what he or she wants out of life. If you'd rather live somewhere else, but deal with O2, go ahead and do it. The other option is live an unsatisfactory life where you can say "well, at least I'm not wearing ozygen." And what kind of quaility life will that be for you? I am into quality, not quantity of life. Lucky for me, I've had both, having reached nearly 55 years later this month. Before making any final decisions, get some more information from those who are experts in oxgen, not just those of us think we know about it. And good luck, whatever decision you make. Remember, there is no right or wrong decision - just the one that works for you personally.
For what it's worth, I have had a completely different experience with oxygen than what was described to you. I have used oxygen on and off for about 9 years now. I have used it for a few months at a time and been able to get off of it for long periods. This latest episode has been tougher. I've been on for about a year straight now. I work a high level, full-time, very visible job and just cart it with me. Would I prefer not to have it - sure! But it's not going to limit where I go and what I do if I can help it. I take it up to visit my daughter at college in Flagstaff (8,500 feet at the ski resort), and I make arrangements to have plenty at the beach in San Diego for vacations. I have never had nose or ear problems with it. It is possible that with more exercise I could get myself off ot it, but that's not for certain. Still, I'm going to work toward that goal. I have never had to increase the amount up - it's not something that your body gets used to one amount that then requires you to up the next higher dose. The only reason to up the dose would be if your lungs got progressively worse.
I think each person needs to consider what he or she wants out of life. If you'd rather live somewhere else, but deal with O2, go ahead and do it. The other option is live an unsatisfactory life where you can say "well, at least I'm not wearing ozygen." And what kind of quaility life will that be for you? I am into quality, not quantity of life. Lucky for me, I've had both, having reached nearly 55 years later this month. Before making any final decisions, get some more information from those who are experts in oxgen, not just those of us think we know about it. And good luck, whatever decision you make. Remember, there is no right or wrong decision - just the one that works for you personally.
I think each person needs to consider what he or she wants out of life. If you'd rather live somewhere else, but deal with O2, go ahead and do it. The other option is live an unsatisfactory life where you can say "well, at least I'm not wearing ozygen." And what kind of quaility life will that be for you? I am into quality, not quantity of life. Lucky for me, I've had both, having reached nearly 55 years later this month. Before making any final decisions, get some more information from those who are experts in oxgen, not just those of us think we know about it. And good luck, whatever decision you make. Remember, there is no right or wrong decision - just the one that works for you personally.
For what it's worth, I have had a completely different experience with oxygen than what was described to you. I have used oxygen on and off for about 9 years now. I have used it for a few months at a time and been able to get off of it for long periods. This latest episode has been tougher. I've been on for about a year straight now. I work a high level, full-time, very visible job and just cart it with me. Would I prefer not to have it - sure! But it's not going to limit where I go and what I do if I can help it. I take it up to visit my daughter at college in Flagstaff (8,500 feet at the ski resort), and I make arrangements to have plenty at the beach in San Diego for vacations. I have never had nose or ear problems with it. It is possible that with more exercise I could get myself off ot it, but that's not for certain. Still, I'm going to work toward that goal. I have never had to increase the amount up - it's not something that your body gets used to one amount that then requires you to up the next higher dose. The only reason to up the dose would be if your lungs got progressively worse.
I think each person needs to consider what he or she wants out of life. If you'd rather live somewhere else, but deal with O2, go ahead and do it. The other option is live an unsatisfactory life where you can say "well, at least I'm not wearing ozygen." And what kind of quaility life will that be for you? I am into quality, not quantity of life. Lucky for me, I've had both, having reached nearly 55 years later this month. Before making any final decisions, get some more information from those who are experts in oxgen, not just those of us think we know about it. And good luck, whatever decision you make. Remember, there is no right or wrong decision - just the one that works for you personally.
I think each person needs to consider what he or she wants out of life. If you'd rather live somewhere else, but deal with O2, go ahead and do it. The other option is live an unsatisfactory life where you can say "well, at least I'm not wearing ozygen." And what kind of quaility life will that be for you? I am into quality, not quantity of life. Lucky for me, I've had both, having reached nearly 55 years later this month. Before making any final decisions, get some more information from those who are experts in oxgen, not just those of us think we know about it. And good luck, whatever decision you make. Remember, there is no right or wrong decision - just the one that works for you personally.