Please help ASAP with overheating and teacher!

M

mneville

Guest
I totally understand your issue. My son with CF is also extremely active at age three and runs like crazy. He also turns bright red and his mood gets really' off'. He has an IEP and now that the weather is getting warmer, an aide knows that he needs to bring Gatorade, extra water and pretzels outside for Aidan. He needs to be reminded to drink and eat the salt. So far,that has worked. If she has an IEP, you should make sure this is in the IEP.

Megan
 
M

mneville

Guest
I totally understand your issue. My son with CF is also extremely active at age three and runs like crazy. He also turns bright red and his mood gets really' off'. He has an IEP and now that the weather is getting warmer, an aide knows that he needs to bring Gatorade, extra water and pretzels outside for Aidan. He needs to be reminded to drink and eat the salt. So far,that has worked. If she has an IEP, you should make sure this is in the IEP.

Megan
 
M

mneville

Guest
I totally understand your issue. My son with CF is also extremely active at age three and runs like crazy. He also turns bright red and his mood gets really' off'. He has an IEP and now that the weather is getting warmer, an aide knows that he needs to bring Gatorade, extra water and pretzels outside for Aidan. He needs to be reminded to drink and eat the salt. So far,that has worked. If she has an IEP, you should make sure this is in the IEP.

Megan
 
M

mneville

Guest
I totally understand your issue. My son with CF is also extremely active at age three and runs like crazy. He also turns bright red and his mood gets really' off'. He has an IEP and now that the weather is getting warmer, an aide knows that he needs to bring Gatorade, extra water and pretzels outside for Aidan. He needs to be reminded to drink and eat the salt. So far,that has worked. If she has an IEP, you should make sure this is in the IEP.

Megan
 
M

mneville

Guest
I totally understand your issue. My son with CF is also extremely active at age three and runs like crazy. He also turns bright red and his mood gets really' off'. He has an IEP and now that the weather is getting warmer, an aide knows that he needs to bring Gatorade, extra water and pretzels outside for Aidan. He needs to be reminded to drink and eat the salt. So far,that has worked. If she has an IEP, you should make sure this is in the IEP.
<br />
<br />Megan
 
C

consmom

New member
Hi, I agree about the IEP. This is the best tool you can have. We have had issues with dehydration, food,coughing and bathroom breaks. I was told to request an IEP meeting and we sorted out what he needs and what the school should and could provide. We got the scripts and letters from the clinic and it is all in his file. The school nurse ( our angel ) made a care plan that will follow him and now the teachers have a point of reference.
We now have a day where gatorade, snacks and boost are provided as he needs them.He gets extra bathroom breaks ( without the obscene questioning ) and the teacher makes sure he always has his gatorade outside and they know what to look for with dehydration.
There is also a packet you can request either via your clinic or the cf site that is specificaly for teachers and caregivers. It is very helpful !!!
Oops before I forget, when you have your IEP meeting make sure the cafeteria director is there( for the extra and specific food cf kids need ) we did this and now we get to personalize his menu with good old fashined hight fat, high calorie junk food <img src="i/expressions/face-icon-small-happy.gif" border="0">
Hope it helps !!! Good luck !!
 
C

consmom

New member
Hi, I agree about the IEP. This is the best tool you can have. We have had issues with dehydration, food,coughing and bathroom breaks. I was told to request an IEP meeting and we sorted out what he needs and what the school should and could provide. We got the scripts and letters from the clinic and it is all in his file. The school nurse ( our angel ) made a care plan that will follow him and now the teachers have a point of reference.
We now have a day where gatorade, snacks and boost are provided as he needs them.He gets extra bathroom breaks ( without the obscene questioning ) and the teacher makes sure he always has his gatorade outside and they know what to look for with dehydration.
There is also a packet you can request either via your clinic or the cf site that is specificaly for teachers and caregivers. It is very helpful !!!
Oops before I forget, when you have your IEP meeting make sure the cafeteria director is there( for the extra and specific food cf kids need ) we did this and now we get to personalize his menu with good old fashined hight fat, high calorie junk food <img src="i/expressions/face-icon-small-happy.gif" border="0">
Hope it helps !!! Good luck !!
 
C

consmom

New member
Hi, I agree about the IEP. This is the best tool you can have. We have had issues with dehydration, food,coughing and bathroom breaks. I was told to request an IEP meeting and we sorted out what he needs and what the school should and could provide. We got the scripts and letters from the clinic and it is all in his file. The school nurse ( our angel ) made a care plan that will follow him and now the teachers have a point of reference.
We now have a day where gatorade, snacks and boost are provided as he needs them.He gets extra bathroom breaks ( without the obscene questioning ) and the teacher makes sure he always has his gatorade outside and they know what to look for with dehydration.
There is also a packet you can request either via your clinic or the cf site that is specificaly for teachers and caregivers. It is very helpful !!!
Oops before I forget, when you have your IEP meeting make sure the cafeteria director is there( for the extra and specific food cf kids need ) we did this and now we get to personalize his menu with good old fashined hight fat, high calorie junk food <img src="i/expressions/face-icon-small-happy.gif" border="0">
Hope it helps !!! Good luck !!
 
C

consmom

New member
Hi, I agree about the IEP. This is the best tool you can have. We have had issues with dehydration, food,coughing and bathroom breaks. I was told to request an IEP meeting and we sorted out what he needs and what the school should and could provide. We got the scripts and letters from the clinic and it is all in his file. The school nurse ( our angel ) made a care plan that will follow him and now the teachers have a point of reference.
We now have a day where gatorade, snacks and boost are provided as he needs them.He gets extra bathroom breaks ( without the obscene questioning ) and the teacher makes sure he always has his gatorade outside and they know what to look for with dehydration.
There is also a packet you can request either via your clinic or the cf site that is specificaly for teachers and caregivers. It is very helpful !!!
Oops before I forget, when you have your IEP meeting make sure the cafeteria director is there( for the extra and specific food cf kids need ) we did this and now we get to personalize his menu with good old fashined hight fat, high calorie junk food <img src="i/expressions/face-icon-small-happy.gif" border="0">
Hope it helps !!! Good luck !!
 
C

consmom

New member
Hi, I agree about the IEP. This is the best tool you can have. We have had issues with dehydration, food,coughing and bathroom breaks. I was told to request an IEP meeting and we sorted out what he needs and what the school should and could provide. We got the scripts and letters from the clinic and it is all in his file. The school nurse ( our angel ) made a care plan that will follow him and now the teachers have a point of reference.
<br />We now have a day where gatorade, snacks and boost are provided as he needs them.He gets extra bathroom breaks ( without the obscene questioning ) and the teacher makes sure he always has his gatorade outside and they know what to look for with dehydration.
<br />There is also a packet you can request either via your clinic or the cf site that is specificaly for teachers and caregivers. It is very helpful !!!
<br />Oops before I forget, when you have your IEP meeting make sure the cafeteria director is there( for the extra and specific food cf kids need ) we did this and now we get to personalize his menu with good old fashined hight fat, high calorie junk food <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br />Hope it helps !!! Good luck !!
 
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