Hi I have a ton of questions but don't know where to start, but I guess I should start at the beginning.
My cousin who I was raised with was just recently diagnosed with CF and even though she made the doctor send her for the sweat test 2 times already she is still in denial her attitude towards this is that this disease is something they should have diagnosed her with when she was a baby. She keeps saying that there was a mistake some where. My cousin is 23 and my mother raised her after her mother passed away years ago so no one really knew much of her genes on either parents side. My family is very private and still a bit old fashion and even my mom was in denial for a a bit. I finally talk my cousin into going to just cunsult with the CF doctor and she broke down. All she kept saying was that she couldn't believe this and why her. My cousin has always lives a "normal" life but was always sick. She has been to see an ENT he told her it was sinusitis. She has been to see a neuorologist he told her that the migranes were because of her sinuses. Then 2 years ago she started have (I'm only going by what she told me and what I know) problems with her bowl movements she said she would eat something and it would "run" right out of her and then there were days that she would have severe gas pains and not go at all. She would also have really bad pains in her chest and the stupid doctors told her that she had bad indegestion and IBS. Needless to say that it was her new doctor who decided to do the test. My cousin has also always had a weight problem, she would always quickly put on weight and she would also take it off very fast as if she were sick.
She doesn't take her medication all the time and I don't know what to do for her other then stay on her back. When we were younger we had a friend with CF and we watched her go through her ups and downs and at the age of 13 she passed. That was tough for us back then how can I help my cousin.
My cousin who was never really a pill talker now has to take a lot and is always so sad what can I do? I'm scared.
My cousin who I was raised with was just recently diagnosed with CF and even though she made the doctor send her for the sweat test 2 times already she is still in denial her attitude towards this is that this disease is something they should have diagnosed her with when she was a baby. She keeps saying that there was a mistake some where. My cousin is 23 and my mother raised her after her mother passed away years ago so no one really knew much of her genes on either parents side. My family is very private and still a bit old fashion and even my mom was in denial for a a bit. I finally talk my cousin into going to just cunsult with the CF doctor and she broke down. All she kept saying was that she couldn't believe this and why her. My cousin has always lives a "normal" life but was always sick. She has been to see an ENT he told her it was sinusitis. She has been to see a neuorologist he told her that the migranes were because of her sinuses. Then 2 years ago she started have (I'm only going by what she told me and what I know) problems with her bowl movements she said she would eat something and it would "run" right out of her and then there were days that she would have severe gas pains and not go at all. She would also have really bad pains in her chest and the stupid doctors told her that she had bad indegestion and IBS. Needless to say that it was her new doctor who decided to do the test. My cousin has also always had a weight problem, she would always quickly put on weight and she would also take it off very fast as if she were sick.
She doesn't take her medication all the time and I don't know what to do for her other then stay on her back. When we were younger we had a friend with CF and we watched her go through her ups and downs and at the age of 13 she passed. That was tough for us back then how can I help my cousin.
My cousin who was never really a pill talker now has to take a lot and is always so sad what can I do? I'm scared.