Please help!
My son is now 10. As a baby, he grew very well until 9 months of age when he began to lose weight (failure to thrive). At 9 months, we had started him on some "solid" foods. Many times, I would pull his diaper off and he would be burned (almost like someone had used a lit cigarette on him). We were told his body couldn't break down certain proteins. Not missing an enzyme, just couldn't break the proteins down. The main culprits were dairy and fatty meats.
He has always had unusually large, foul-smelling, greasy stools that are often impossible to flush.
Once he started pre-school, he began to get "walking pneumonia" as many as six times a year. He still continues to have either WP or true pneumonia four to six times every year. He has had a continuous cough for five years. He was diagnosed with asthma and they have him on Albuterol, Pulmacort, Singular and Nasonex (not to mention antibiotics for 1 week to ten days out of every month). Yet, he continues to have pneumonia. Many times at night, he wakes up choking and gagging. When he has either WP or pneumonia, he has to sleep in a recliner in a mostly upright position.
My son eats a fairly balanced diet, yet, if he doesn't eat a high calorie diet (a lot of junk food) he loses weight.
Last year, my son was on the speed skate team and actually finaled in some events. This year, he has had to give up the sport he loves because he can't finish a practice session. My family doctor is the skate team's physician, and he told me I needed to have my son checked for CF. However, my son's physicians say he doesn't have the right symptoms. They have checked him for TB, thyroid problems, etc.
Suggestions?
Anxious Mom
My son is now 10. As a baby, he grew very well until 9 months of age when he began to lose weight (failure to thrive). At 9 months, we had started him on some "solid" foods. Many times, I would pull his diaper off and he would be burned (almost like someone had used a lit cigarette on him). We were told his body couldn't break down certain proteins. Not missing an enzyme, just couldn't break the proteins down. The main culprits were dairy and fatty meats.
He has always had unusually large, foul-smelling, greasy stools that are often impossible to flush.
Once he started pre-school, he began to get "walking pneumonia" as many as six times a year. He still continues to have either WP or true pneumonia four to six times every year. He has had a continuous cough for five years. He was diagnosed with asthma and they have him on Albuterol, Pulmacort, Singular and Nasonex (not to mention antibiotics for 1 week to ten days out of every month). Yet, he continues to have pneumonia. Many times at night, he wakes up choking and gagging. When he has either WP or pneumonia, he has to sleep in a recliner in a mostly upright position.
My son eats a fairly balanced diet, yet, if he doesn't eat a high calorie diet (a lot of junk food) he loses weight.
Last year, my son was on the speed skate team and actually finaled in some events. This year, he has had to give up the sport he loves because he can't finish a practice session. My family doctor is the skate team's physician, and he told me I needed to have my son checked for CF. However, my son's physicians say he doesn't have the right symptoms. They have checked him for TB, thyroid problems, etc.
Suggestions?
Anxious Mom